Advice needed

iVillage Member
Registered: 11-24-2009
Advice needed
5
Tue, 11-24-2009 - 10:15am

Good morning...


I need your help and support.

iVillage Member
Registered: 02-14-2007
Wed, 11-25-2009 - 7:20pm
Yes - my nephew was diag with ADHD - the pills worked for awhile - but he was diag with bi-polar but SIL would not accept that - every med worked a couple of months and then MAJOR side effects

Denise

Denise

Avatar for sabrtooth
iVillage Member
Registered: 12-03-1999
Wed, 11-25-2009 - 9:59am
I have to echo what everyone else has said. He needs a full workup by a competent Neuropsychiatrist. I see the possibility of something on the autism spectrum, like Pervasive Developmental Disorder, or Tourette's Syndrome, at the very least, and am very surprised that no one has been more aggressive about discovering what's wrong. And yes, having a diagnosis DOES help, because then you know what you are dealing with, and what direction to go. If he is NOT ADD, then medication to treat the ADD symptoms will NOT help, and may cause unintended side effects. If the ADD is only a co-morbid, then there are other issues that need to be addressed also. He may need a combination of medications, which would be best prescribed by a Neurologist or Neuropsychiatrist--both MD'S. Also, having a complete diagnosis, and a competent Dr in your corner, will help you get the services you need for your son, because you will know WHAT EXACTLY to ask for. Even kids with ONLY low IQ get more services than you've had.
iVillage Member
Registered: 03-25-2003
Wed, 11-25-2009 - 9:27am

You said, private testing--with what kind of expert?

Have you been to the wright's law page? It *really* sounds to me like the school isn't doing all they can. Does he get academic support of any kind? Or is this all just YOU?

Has he ever been tested specifically for forms of LD, dyslexia, etc., etc.?

Why don't you *know* if he has memory problems, when that's something that any school or private tester ought to have tested (not yelling at you, but let's be real, memory tests are really fairly simple for them, you should have the results!)

Was the IQ testing only that once? Were *all* the scores low, or is it the case of 1 really low sub-test & rest were higher? That kind of thing (wildly varying scores) is pretty typical of ADHD/LD.

I really don't know exactly what you should do--sounds like you've run through the formal eval-at-school process several times. Do you go for an advocate & get something better there? Maybe force the school to pay for a complete outside eval? Or do you just go for a full private eval on your own? I'd agree with you that a *good* diagnosis should give you some new tools about how to work with your kid. How DOES he learn (since you already know how he doesn't, as it were). How DO you/school teach him? It's not so much about a specific diagnosis, but more about how to effectively help the kid, KWIM?

Megan
Megan
iVillage Member
Registered: 05-19-2007
Tue, 11-24-2009 - 5:51pm

Kudos to you and your son for working so hard.

I have no advice for you but hope you get a diagnosis soon. It seems easier to deal with something when you know what it is.

iVillage Member
Registered: 06-10-2007
Tue, 11-24-2009 - 1:45pm

HI, and welcome


I would write a letter to the school asking for a full educational evaluation, they have 60 days to complete it.


i would also contact a Neuropsychologist, and have a full evaluation done. It does sound like there is more than ADHD, and a Neuropsych can find out what that is. I would do this before trying meds.


Guanfacine(tenex) is a Blood Pressure med, it does help with impulsivity, and sleep issues but does little to nothing for attention and focus. It has to be monitored to make sure the BP doesn't drop too low. It is not a timulant, and will not work like one. There are other meds however, and once you have a diagnosis they can probably help.

A child may HAVE ADHD, but it is not what they ARE. Never tell a child they ARE ADHD.