Can I just vent

iVillage Member
Registered: 03-25-2003
Can I just vent
4
Mon, 04-21-2003 - 9:24am
I don't know how much more sleep deprivation I can handle. Jamie is so unpredictable lately he will go to bed between 8pm and midnight. There is no rhyme nor reason between why he sleeps or doesn't.

To compound the issue, he wakes frequently, and he comes and sleeps with me and I toss and turn all night and get very little sleep.

The later he goes to bed the earlier he wakes up....I'm working on 4hrs sleep from last night.

Also his moods are incredibly unpredictable, he's still on the ritalin and respirdol, I'm still waiting for an appt with the med specialist. I've seen him start the day screaming and crying from his first foot on the floor, temper tantrums for no reason, to calm for a few hours, then sad for an hour, then pinging off the ceiling.

Trying to work around this mood fluctuation is dam near impossible, and I never know what's going to set him off or what he's thinking.

For some reason he seems to have no sense of temperature, he's always hot and I went in the bathroom the other day for a minute and he took off outside in near freezing weather in just sweat pants, no shirt, socks or shoes and was out in the back yard kicking around a soccer ball. The very same day he managed to sneak out...I've got the alarm set now so if he takes off the alarm will go off....and he went to our neighbours house and told him he was hungry??????? I had been trying to get him to eat something for an hour. The guy cooked him some hot dogs.

I was running up and down the street bawling my guts out when Glen stuck his head out the door and said he was at his house. Thank God he's a great neighbour and likes Jamie. He asked if I wanted him to look after him for an hour til hubby came home to give me a break. I thanked him and they played in our yard with his dog and a frisbee.

I've got him 24/7...365...I just can't take it any more. I need a day off so bad, but there is no where for him to go.

Anyway if you got this far you are a saint.

Elspeth

iVillage Member
Registered: 04-04-2003
Mon, 04-21-2003 - 9:54am
Bless your heart! You need a break, something that you can do just on your own. I thought my weekend was hard!



We just moved from niehgborhood and my old nieghbor had a son who is autistic(4) and one who is ADHD/ODD (7) she was a stay at home mom until the 4 year old turned 2 and she was going crazy. She found a school in our city for Autistic children and children with learning behaviors that takes kids at age 2 and starts to work with them, at first it is just a day or two a week until they get used to the school then it is 3 days until they are old enough for kindergarden then it is full time. It is expensive and she said that they are barely able to afford it but it is worth her sanity and her son is doing so much better. She was able to get a job part time and I personally have never seen her or her family happier. I hope you have something similar available to you.

If not do you have anyone that could give you a *mommy day out break* just for a couple hours like one day a week? We all get so caught up with our children sometimes we forget about ourselves.

I hope that today is wonderful for you, maybe when the weather is warmer where you are getting outside will help him to run off some of his energy.

Good luck and big ((((HUGGS))))

Shaun

Avatar for kathy_in_ga
iVillage Member
Registered: 03-26-2003
Mon, 04-21-2003 - 4:05pm
I wished your appointment was sooner, of course that wont help things now. I have been where you are several times. One thing that heped me so much was me calling my doc. I talked to the nurse through my tears. They prescribed two meds for me, one which took a few weeks to start working, the other was xanax. That made all the difference in the world for me. I don't fell my blood boiling, I am able to look beyond the behavior. I am able to sleep, cuz even after Joiner was put on something to help him sleep I couldn't sleep. The best advice I can give you is for you to get some away time, some how you need ot do it. For your own sanity. You will be in a better frame of mind, be able to cope much better. Can that neighbor look after him for an hour a day or every other day, so you can go for a walk? Is there anyone whom he connects with who can help you out?


As far as the hot naturedness (is that a word?) Joiner is the same. He will want to wear shorts when it is cold out & wear long sleves & pants in the heat of the summer (and I'm talking 100 degrees!). There is a study being done on BP kids & their ability to regulate their body temps. Here take a look!

http://www.bipolarchild.com/survey/studyc.html




iVillage Member
Registered: 04-15-2003
Mon, 04-21-2003 - 4:54pm
Elspeth,

Just wanted to send (((hugs)))), I know what hell sleep deprivation can be. I don't really know anything about your situation, but is there any chance of respite care? A friend of mine recently got respite care and several other services through the school district (early childhood intervention program) for her 2 year old, who has a skin disorder and is hyper to boot. Or can the pdoc's office tell you how you can find those kinds of services? Bless your neighbor, he sounds like a great guy. I like Kathy's suggestion, could he keep Jamie for a little while on a regular basis just so you can catch your breath?

About the sleep, I feel your pain. Our ds Niels has had horrible insomnia from day 1. Took forever to get him to sleep, and then my other son wouldn't stay asleep, so we were seriously sleep deprived for a long time. What was worse, I'm a bad sleeper, and if woken in the middle of the night, couldn't get back to sleep. Does Jamie have anything to help him sleep? We use Clonidine for Niels, works great for sleep. And I'm taking Neurontin, which has improved my sleep a lot. Is the pdoc willing to prescribe something for sleep for either or both of you?

have to run, but if I think of anything, I'll pass it on --

Melissa

iVillage Member
Registered: 04-01-2003
Tue, 04-22-2003 - 2:09pm
Elspeth,

Not sure where in Canada you are, but here in Ontario the high school students have to do 40 hours community service. If they have that there and you go talk with the school, they should be able to send over a teenager to give you a break sometimes. Possibly a couple hours after school once a week or something. You don't have to pay them, just sign their community hours sheets. I know people here who have done stuff like that and its all worked out very well. Just a thought.

((((Hugs)))) Susan