Feeling like I'm at end of rope.

iVillage Member
Registered: 05-19-2005
Feeling like I'm at end of rope.
4
Tue, 04-28-2009 - 6:41pm

I'm nearly going crazy with everything concerning Gray and this has only just begun. SIGH. As most of you know, he turned four in Feb and has sensory issues, ADHD (according to dev ped and I couldn't agree more)and a weird smorgasboard of developmental issues which are inconsistant, random, Spectrumish at times and basically the bane of my existance! LOL! First of all the teachers, doctors, specialists, ME have no idea what to do with Mr. Gray. He has been on a trial run of Ritalin and we have had VERY mixed reviews and results. Some days/times I see him really calm and focused and I'm thinking this stuff is great. The side effects for him though are not wanting to eat and being overly emotional, adamant about weird things...almost OCDish. All while like I said some days/times are great, other times he is still whizzing around like a whirling dervish. His teachers didn't think they were seeing much of a difference but saw the emotional side effects. We are TRYING to move him up to a least restrictive class for next year with a higher ratio of slightly less effected kids. I took him off for a week without telling the teachers and at the end of the week they asked if he was still on his meds because although he was happy he was running around like a mad man and would not be able to move up to the "Classic" class since he couldn't stay attentive. I put him back on this week without telling them and they have said he is being hyperactive!!!!!! AHHHHHH! It's only 5mg a day once a day, so he's getting the side effects of being on too much, but it isn't REALLY curbing the ADHD either...well...at least not to the extent one would hope..it is working some. He's only four so I know lots of meds aren't available for him. I just want him to be able to focus and stay to task so that he can be with more "typical" kids. Hardly any of the kids in his class speak and he talks like mad. I basically want him with kids who are better socially because he really struggles in that and I think he needs to be around kids who will approach HIM. The kids in his current class don't really interact at all.

That then leads me to preschool for next year. They can't decide whether to keep him in his current class or try and move him up. Every person who has observed him says he needs time with typicals and I've found an amazing private preschool who has accepted him. Problem is it clashes time wise with the County PEP program that he's in. I wanted him to do both, but that probably isn't possible. I'm rambling. Sorry. I'm just so confused and I want to do what is best for Gray. I have no idea what that is.

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iVillage Member
Registered: 03-25-2003
Wed, 04-29-2009 - 10:51am

Plain Ritalin, or a long-acting form? I ask 'cause plain lasts about 3 hrs & thus I'd think school would possibly be seeing both on & off the pill.

Overly emotional--again, *when*? When the pills are wearing off (med crash) or all the time?

OCD--did someone tell you about gaining ticks being one of the potential side effects of ritalin? I'm not sure if that's what you mean OCD-wise, but watch for that. Doesn't happen to everyone (did the OCD-like behaviors go away that week without meds?)

Do know that lots of people have to change around meds to find what best suits their kid--even meds that you'd think would be the "same", like ritalin, concerta, focalin, etc., have different release profiles & can affect different kids really differently. There's no med that works for every kid & some kids where no med works--here's hoping you don't have that case!

Megan
Megan
iVillage Member
Registered: 05-19-2005
Wed, 04-29-2009 - 12:53pm
Insurance wouldn't cover Ritalin so our doctor prescribed Methylphenidate. We pay out of pocket but it's much cheaper than the brand. It is the regular kind. Works for three hours or so. I give it to him right before he gets on the bus for preschool. It's three hours long. He makes me nuts, but I'm fine with him not on meds at home. School is where we really want him to have help focusing. He doesn't have ticks he just gets non-sensical about things and is adamant about weird things. He'll say the opposite of what he means and be dead set on it and say it over and over. Kind of hard to explain. He was very upset yesterday because the park we went to was empty. "Mommy the park is CLOSED. We need to go home now. No one is here, it's closed. We need to go home." It was open...he was just unnerved that it wasn't crowded like normal. This was when they were almost worn off. The problem is that isn't never consistant. Some times it's great and makes him calm/focused. Other times he's emotional the entire time he's on it...other days just at the end. Some days when not on it he was INSANE hyperactive....other times like this morning he wasn't on it yet and did great at the mall. It's NEVER CONSISTANT. The OCDish things are pretty much only when he's on the meds.Does that help?
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iVillage Member
Registered: 03-25-2003
Fri, 05-01-2009 - 9:18am

I only wish I thought I could help...

The nonsensical as the meds wear off--we've seen some stuff like that, I think--very emotional & not much logic. My kid was older when he first started taking meds, and he couldn't explain what was going on--even last summer at age 10, he felt it was just wrong, too. If that makes any sense? When he FIRST started meds, the med crash was worse for him, took a month or two to improve. It does come back at odd times (and when we increase meds).

My kid is more on the inattentive side, though the hyperactivity component becomes clearer as all the other kids lose theirs ;}. But ALL his symptoms are come-and-go, as it were. Honestly, the one I could pin to a wall was his lack of ability to write a sentence without falling off track. I still do a fair amount of my measuring of what he can & can't handle by watching his writing abilities. Some of that variability you're seeing is normal, I'd say, but I so do not envy you trying to pick out what is actually helping & what isn't, in a kid that young. No fun!

Megan
Megan
iVillage Member
Registered: 05-19-2005
Fri, 05-01-2009 - 12:35pm
I just had a conference with his teacher and they said they can officially say they see a big difference with him on the meds. After seeing him on for quite a while and then seeing him OFF of them for a week and now back on they say it's a big difference. In fact the teacher whose class we were hoping he could move up to said he would ONLY be able to move to that less restrictive class if he was on medication. I don't really like that although I understand. I get it. She has 12 kids and if Gray is running around like a mad man it's really hard...I hate knowing thought that in order for my kid to be around higher functioning children he HAS to be medicated. *Sigh*
I have a conference with the doctor on the phone today so I'll tell him on the info and see where it leads us.
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