Longest time meds successful for you?

iVillage Member
Registered: 07-03-2003
Longest time meds successful for you?
4
Thu, 07-24-2003 - 12:42pm
Our DS has been on Concerta (18mg) for almost 5 months now - it is like a miracle. So happy for him and us. I saw that ad for Strattera that is a road sign that says "Welcome to normal" That's the way Cocerta makes us feel. But, I keep reading and hearing and getting the message not to get too compfortable becuase these meds don't work forever - that they are short-lived, etc. Makes me nervous - not wanting to borrow trouble, but my question:

What is the longest times meds have worked for your child?

And - how did you know it was time to try something else?

Thanks,

Mary

iVillage Member
Registered: 03-27-2003
Thu, 07-24-2003 - 1:39pm
The metadate ER has been the longest we've stayed on a med. He takes that plus a five mg. booster of ritalin with it in the morning. Regular ritalin was hard because it had too much up and down for us, and Concerta was too long acting. We've stayed with the same metadate dose for two years now. In our case it was time to try something else due to the insomnia problems with Concerta.
iVillage Member
Registered: 07-03-2003
Thu, 07-24-2003 - 1:57pm
That is great - 2 years seems like a long time.
Avatar for keke0116
iVillage Member
Registered: 03-26-2003
Fri, 07-25-2003 - 8:28pm
Kevin (11) was on Concerta successfully for 15-16 months. It was for us, too, the 'miracle' we had hoped for. Finally! we had a child who was happy and able to control his impulses, and live a normal life, and be part of a normal household. Then, things stopped working. Wasn't 'horrible' just not as effective. Kevin also decided he didn't need meds, he didn't have a problem (he has several, BTW, including ADHD, ODD, auditory processing issues) and he shouldn't be on meds. Rather than upping the dose (he was on 36 mg.) the doc tried something different, and the roller coaster ride began ... he was on Strattera, then Strattera with a small dose of Concerta, then Strattera with Ritalin, than Ritalin LA alone, then Ritalin LA with some Focalin in the afternoon. NOthing worked well, not as well as on the Concerta. A month ago, I said ENOUGH! I pulled him off meds ... cold turkey ... and then called the doc and told him what I was doing. I braced myself for the worst. I expected a meltdown, and rages, and all sorts of problems. What did I get? A happy, 'normal' child! It has been a full month now, and there has not been a single problem. Do I think it'll last? I have no idea. I don't even care much at this point ... I'm just enjoying the reprieve and the normalcy that I've not experienced since becoming a parent.

There is a point here ... Sometimes meds work well, and sometimes they do lose their effectiveness and need to be adjusted or changed or added to. BUT, it's also what you do with your child while on meds that might make a difference. In our case, Kevin's primary problem was ODD. ADHD was secondary, and with that, it's the impulsivity (not attention or hyperactivity) that's the problem, and I think (perhaps) the reason we're experiencing sucess off-meds. The 'goal' of the meds (in our case) was to help Kevin see what it is like to behave well, to get along, to be 'normal' as defined by society so that when he was (eventually) off meds, he could replicate those behaviors and feelings. Now, we didn't expect this to happen for many years down the road ... and maybe I'm being premature in thinking that he's 'outgrown' some of this ... but I've gotta keep hope, right?

So, the point is that while the meds ARE working, just enjoy it. Rather than wondering if this will be the day it stops, enjoy the fact that it is a miracle, that your child is happy, and it's going well. I wonder every day now (off meds) if this will be the day that life turns again and we need to run back to the doc to find some medical intervention that's going to help. I think sometimes we spend too much time wondering about 'what's next' rather than enjoying the moment. AND, with kids like ours, we really need to appreciate and enjoy every good, calm, sane, normal moment we get.

Nancy

Nancy 

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iVillage Member
Registered: 07-03-2003
Sat, 07-26-2003 - 8:33am
Wow - thanks, Nancy. That was 1) really encouraging and 2) very thoughtful. You are right - it is good to live and enjoy the moment.

One day this week our DS had a terrible day - like a pre-med day - hit a kid, went to time-out, kicked the wall in time-out, later on took a toy from another child. Just a BAD day. But, when he got home, he was fine. We put him in his room for a while, but I told him that he was having a great summer and this was just one bad day. So, we're going to leave it behind and start over the next day. He thought this was a good idea, so that's what we did. However, I told him if he continued to make bad choices the next day, he wouldn't get to do a fun thing we had planned this weekend. He had a great day the next day.

My point - I could have gone two ways with this. One - to say it was just one bad day and afterall he only just turned 7 AND he's a boy. Or, I could have started wondering if this was the end of the effectiveness of the meds, will we start living like we were before meds...panic...ect! I decided to move along - I think it was better for both of us.

The support of people like you and this board has really helped me to do that.

Thanks so much.