New here, need input on meds...(M)

iVillage Member
Registered: 03-27-2003
New here, need input on meds...(M)
2
Mon, 08-18-2003 - 12:48pm
My ds is 9 3/4 and has been on 40 mg metadate since March of 2002. He had a fabulous year last year in school. He was on High honors for 3 quarters and honor roll for the 4th. He had staight A's the whole year except for the last quarter he had a 92 in reading, 1 point short of an A. His teachers thought he was awesome and we had virtually no problems the whole year. I am so grateful to have found a med that worked so well for him for so long. He of course hasn't grown much, but he is healthy otherwise. He will be 10 at the beginning of Dec. and is 62 lbs and almost 53 inches. Not too bad. So on too my confusion...



He is still difficult at night and in the evening. He was pretty ok for a long time and his meds seemed to last him a lot longer than they said they should. More like at least 10 hours instead of 8. But I think that is changing. It is hard to take him and do things at night because the impulse is gone and he is very hard to handle. So we asked the dr if there was anything we could do when we wanted to do something at night. He suggested we give him another metadate at 12 so it would last him longer. We tried this one day. He also takes clonodine at night to help with bedtime, which I must say was a lifesaver and when we finally broke down and tried it I wished I would have tried it a lot sooner. Anyway, that night I saw a kid I had never seen before. He was mean and unreasonable and just completely freaking out because I would not make him a corn dog at 10:30. I offered him 3 other things that did not need to be cooked and he just freaked out beyond anything I had ever seen him do and saying things I have never heard him say. He was completely not himself. He even came to me first thing the next morning and said how sorry he was and he didn't know why he was like that and he was so sorry. I couldn't even talk to him much of the day because of the awful things he said. So we thought maybe that the combo of the increased meds and then the clonodine with it made a bad reaction in him and we never tried it again.

He has been increasingly harder to deal with during the day now. He is not hyper and he has impulse control, but he isn't very nice and is pretty defiant most of the time. He has his times when he is ok, but a lot of the time we are struggling unless we are doing exactly what he wants to do. So I am thinking it is time for a change maybe in meds. Plus I would like something for the evening when we need it. Though not that summer is over, that is not so much a problem. I can see us having trouble with homework though because that is about the time his meds seem to not be working so well now. If he hears no, he has a big problem now but when the meds were working well, he was very compliant and easy to deal with.



When we talked to the dr. about something for night, he said if the added metadate at 12 didn't work, we might try switching him to adderall. I am nervous about that because I have heard so many stories about mood swings and wierd behavior on that. I have also thought about straterra and whether we should give that a try. I want to do something before school starts in 2 weeks, or less than that really, so I can see how he is on it. So I guess I am coming here to ask if anyone has any imput for me on these issues, or these meds, or has any suggestions for me. I do not want to do an afternoon dose of ritalin because we, first of all, tried ritalin by itself and he was very moody and depressed it seemed. Then we went to the metadate, just 20 mg and it was good for 3 months. When it started not working so well we tried an afternoon dose of ritalin and it did nothing. That's when we switched to the 40 mg. of metadate. We tried clonodine 18 mg for the very first thing ever tried, and it did nothing and messed with his sleeping at night. I remember about a year ago or more there was supposed to be a 10 mg metadate coming out. Has anyone heard of that yet?

TIA for any feedback I can get. I tried over at parentsplace and I only got 1 response. I used to go there before the switch over but not since. I came here and it seems there is a lot more discussion going on and more feedback for everyone. I would love to join this group more often.

Jen

iVillage Member
Registered: 03-25-2003
Mon, 08-18-2003 - 3:11pm
Welcome to our board. I'm not familiar with Metedate, but from what you described it seems not to be working as it has. Is there a higher dosage you could try rather than giving a second dose b/c that didn't work. He should be getting nasty with a second dose, however having too much in your system can do that.

Adderall is ok. My SD tried that and she could only take a lower dose (1.25mg) otherwise she was zombie like. Now she's on Strattera. My friend's DD is on Concerta and it works for her. Everyone works differently and will react to medications differently. Work with your doctor to find the right medication and dose for your DS.

I hope this helps. Again welcome and I hope to see more from you.

Roxie

Roxie

CL-mommys_crew

 

iVillage Member
Registered: 03-27-2003
Tue, 08-19-2003 - 12:35pm
Some people swear by Adderall - but I'm not one of them. It made my son very nasty, and he had awful rebound episodes, making homework close to impossible. My understanding is that Straterra is supposed to be effective for 24 hours, unlike the extended release Adderall and Concerta. Each child's body is different, though, which is why we have a variety of medications to choose from. Unfortunately, it's a crap shoot for the doctor to figure out which one will work best for each individual child. It is also my understanding that Concerta and Ritalin are basically the same drug, so if Ritalin did not work for your child you probably would not want to try Concerta.

Ask your doctor about Straterra - I'm almost ready to ask my doctor. My son starts school next week and we can really tell when the Concerta is out of his system. I figure I'll give school a couple of weeks and see how he is doing with his homework before I request a change. It always takes him a little while to adjust to a new situation, so I don't want to jump the gun.

I was not aware that Metadate was given for ADHD - I thought it was used for treatment of bipolar disorder. I guess that's why we come here - to learn new things!