Newly posting here (pardon my hat) -

Avatar for cl_tagteamof2jrzydevils
iVillage Member
Registered: 03-26-2003
Newly posting here (pardon my hat) -
15
Wed, 04-16-2003 - 11:56pm
Hello I am the mom of a 5.5 yr Kindi boy that was evaluated and diagnosed in November... There is just soo much going on lately and I am sooo lost - he's on 20 mg of Strattera and we are almost on it now 6 wks - we started at 10 mg and after a week went to 20 (I had left over prescript and at $40 each time we decided to just double the 10 instead of filling a script for 18... we still have a little room to expand... we DO see better focus WHEN he wants to focus on work but we are having some serious defiance problems this past week and half... You can read the full story of Deven and my life at http://tagteam.crimsonblog.com there is just soo much to have to retype it's easier to direct you to the blog! *L* I am sure I will be here more and more as the days move on... Look forward to your advice, insight and support!!

Angel

Editted this to correct the link - will reply to Kathy separately...


Edited 4/17/2003 1:31:04 PM ET by cl-tagteamof2jrzydevils

Angel- Tired Momma to the Tagteam of Destruction and Disaster affectionately known as Deven (6/97) and Dilen (10/99)

Pages

Avatar for kathy_in_ga
iVillage Member
Registered: 03-26-2003
Thu, 04-17-2003 - 11:37am
Your link didn't work for me. Something for you to read is "1, 2, 3 Magic", it is a behavior modification book that is very helpful for most parents. If things get wose, maybe another medication is needed. I have heard good & bad about strattera. All kids are different, and some meds affect kids differently. Has he tried any other meds? My son has tried 3, the only one that does not affect his mood is adderall, but it doesn't quite do the job. We may try strattera this summer. Good luck!

Kathy

iVillage Member
Registered: 04-17-2003
Thu, 04-17-2003 - 1:54pm
Kathy - I fixed the link - I had left out a / - guess it makes a big difference.. As for other meds - Deven has been on Adderall XR and reg Adderall - he did ok at first w/them but the rebound was HORRIBLE - at first we had trouble w/sleeping and there was the crying, frustration, emotional outbursts each night... we did ok w/the Adderall reg for a bit and then it seemed wear off early so we added a small booster at noon - that lasted about a week then the tantrums he would have in school were sooo explosive it was scarey and he would pass out asleep cold immediately after - the last one he was even still fighting in his sleep - his face was just twitching away as if he was still arguing... When he woke (we woke him as I was there to get him) he had a brief look of confusion/displacement that really worried me - so we stopped the meds, had an EEG done to rule out seizures and then a week later started the Strattera... for the most part it seems to be working albeit slowly but he CAN focus better WHEN he WANTS to... Right now we are seeing ALOT of ODD w/him so much so it is down right disheartening.... I am thinking of asking for either Concerta or some depressant to be throw in the mix as I have seen the posts that the Concerta helps w/ADHD and ODD combos.... and then someone recently suggested perhaps he's depressed due to certain conditions in his life (my DH is a very active yet functioning alcoholic who has been detoxed 3 times since Sept) and Deven is very smart, aware and perceptive to it all... I am going to discuss these possibilities w/psychologist when he calls shortly as I just had to call to reschedule an appt.... Thanks for the book suggestion - I have used a form of 123 for years now, and behavior mod charts, etc.... Nothing really seems to motivate him but then again his impulstivity is soo strong maybe nothing can right now... I am just sooo frustrated at the moment.. Well I have rambled enough - wanna know something I didn't cover please ask!

Angel

Angel - Tired Momma to the Tagteam of Destruction and Disaster affectionately known as Deven (6/27/97), Dilen (10/20/99) and Ethen (4/14/05)  http://tagteam_of_2_jerzydevils.blogspot.com/

iVillage Member
Registered: 04-15-2003
Thu, 04-17-2003 - 5:41pm
Hi Angel,

Boy, I know that's frustrating! I really hope you find some answers soon. I just wondered -- a few things in your post stood out to me, like your dh having alcohol problems, Deven's explosive outbursts at school, followed by falling asleep, the way he's responding to stimulants, the continued ODD and lack of motivation -- has Deven ever been evaluated for bipolar disorder? The reason I ask is because you mentioned trying antidepressants, and they can worsen symptoms, sometimes dramatically, in bipolar kids. Hope you don't mind my suggesting it, I just wondered if it had been considered.

Melissa

Avatar for cl_tagteamof2jrzydevils
iVillage Member
Registered: 03-26-2003
Thu, 04-17-2003 - 7:38pm
Melissa - Thanks for the response, it's nice to know I am not alone - as for the BP - they tend to NOT be willing to dx that til they have ruled out all else from everything I have learned, researched, discussed BUT the more that I read and the more that I think about it I lean to that too... It's somethign I will be discussing w/the psychiatrist at our next appt which is first wk in May... actually I might call him a bit sooner... like Tues when all is quiet here....

Angel - who again begs forgiveness on wearing her hat!!! *sigh*

Angel- Tired Momma to the Tagteam of Destruction and Disaster affectionately known as Deven (6/97) and Dilen (10/99)

iVillage Member
Registered: 04-15-2003
Thu, 04-17-2003 - 8:13pm
Hi Angel,

Unfortunately, it's true that pdocs tend to be not willing to dx bp until they've ruled out everything else; even though it should actually be the other way around, since many of the meds for disorders that resemble bp, like ADHD, can worsen bp -- some even suggest permanently. Even the APA guidelines now say that bp should be ruled out first, but a shocking number of pdocs don't keep up with the research or even with their own industry guidelines, and are way behind the times. If you have any suspicion, before you start antidepressants, you might want to read "The Bipolar Child," by Papolos and see if your son fits the profile.

Good luck,

Melissa

Avatar for kathy_in_ga
iVillage Member
Registered: 03-26-2003
Thu, 04-17-2003 - 10:42pm
Angel, does his dad have any type of psych diagnosis? MANY alcoholics have some kind of psychological problems. Using drugs & alcohol are a way for them to self medicate.

It's horrid that child psychs tend to DX ADHD & give meds for that, my son nad a horrid reaction to ritalin. Kind of like what you are discribing. The rebound was he!!. We finally went to a place where they did lots of psych testing wwhen Joiner was almost 5. he was then placed on a mood stabilizer along with his ADHD med and was stable for 2 years. A good child psych should also consider family history, esp. since many psych disorders are hereditary.One good thing for you to do it write down any family members who may have a psych illness. ANyone who's an alcoholic, drug user, some who may have several failed marriages or a gambling problem, someone who's considered escentric or odd (not saying all these kinds of people have a disorder, just may). If you continue to have problems one thing that would help is to keep a journal of your sons behavior, sleep patterns, and even eatig paterns (my son eats much more when manic). This will help you determine if there is an actual cycle, dailey, weekly or monthly. Or if it is just depression, this can help determine what meds to use if he needs more help.

Avatar for cl_tagteamof2jrzydevils
iVillage Member
Registered: 03-26-2003
Fri, 04-18-2003 - 12:51pm
Actually Kathy - YES my DH was recently diagnosed w/BP in February which is something I have been saying about him for a while now... He was put on Depakote however the illness of the alcoholism is stronger then anything and he is either drinking AND taking his meds (he took the label that says DO NOT TAKE ALCOHOL WITH THIS MED so that in his mind he CAN drink plus the nurtitionist accounted for a beer or two in his diet *sigh*) or he just doesn't take the meds cause he feels his problem is just that he needs to "stop partying soo much" or that he's really NOT BP and it's the cigarettes or this or that causing the problems.... Someone has mentioned that CHILD mag has a good article about BP Children this month so I am gonna see about finding that and I am gonna put a call into the doctor to talk about these things.... Perhaps a mood stablizer is what Deven needs along w/the Strattera - I will say that his focus is better WHEN HE WANTS to concentrate and we haven't seen as many explosions but we are still seeing them so for now I feel the Strattera is a good med but we need a little something else too.. Deven is an active child and he's ALMOST as if he's not medicated when at home but he does do a bit better at home then he does at school then again we don't expect the same tasks from him that school does... I am just at the end of my rope with all this and totally confused on what to do!!!! Thanks for your input...

Angel

Angel- Tired Momma to the Tagteam of Destruction and Disaster affectionately known as Deven (6/97) and Dilen (10/99)

Avatar for ashdenson
iVillage Member
Registered: 03-26-2003
Fri, 04-18-2003 - 6:07pm
Hi,

I don't have advise because I have no experience on bi-polar - however you have received excellent advise. Just remember YOU must fight to get these docs to evaluate what you want - especially since SO many times docs say its add/adhd when in fact its bi-polar or a combination of both. I am using Strattera for almost 5 weeks - but just having problems getting my son (15.5yrs) to his max dose - but I am very happy with it.

What REALLY caught my eye was your bio. You are the first person I've seen that knows Any Day Now. This is my favorite show. the problem here (so Calif) is it only comes on satalite Lifetime - not regular cable Lifetime (we have both) and it's only on Monday-Wed at 10.:30PM.

Have a nice Easter and good luck with your son.


Denise

Denise

Avatar for cl_tagteamof2jrzydevils
iVillage Member
Registered: 03-26-2003
Fri, 04-18-2003 - 6:39pm
Denise - tooo funny - not many people here know Any Day Now either - I just love that show and was totally bummed they ended it and not very well either - left ya hanging in a way.... It comes on regular Cable late at night - often at 12 or 1 am after Golden Girls and such run at end of night - usually you find it as the last show of the night before it goes off the air for the day... ANYWAY - Good luck w/the Strattera - I think it's ALMOST time to increase Deven to 25mg which would be his full dose as we have been on the 20 mg now for just about 3 wks actually a bit longer I guess.. and I DO plan on calling shrink on Monday and talking to him... much easier to do when DH is not home as he's just too nosey, noisey and aggrevating when I am trying to talk business while he's home... thanks for the support - I sure feel like I need tons of it these days!

Angel- Tired Momma to the Tagteam of Destruction and Disaster affectionately known as Deven (6/97) and Dilen (10/99)

Avatar for ashdenson
iVillage Member
Registered: 03-26-2003
Fri, 04-18-2003 - 8:58pm
They ended it! I'm at the part where Renee just had a heart attack. Remember these shows are old to begin with - oh - I'll be so upset!

Definetly up the dose - it's time. But if there is any hyperness/sleepiness on the 25mg - go back down to the 20mg.

Denise

Denise

Pages