Ok, comparasin between on and off meds

iVillage Member
Registered: 03-25-2003
Ok, comparasin between on and off meds
5
Mon, 05-12-2003 - 5:13pm
Yesterday we did not give Jamie ritalin. He was happy, no meltdowns, however needed to be supervised all day, you could not leave him alone for a second or he was doing something dangerous. He did not sleep any better than usual, in fact it was a little worse because he was so afraid of having nightmares he refused to be left alone in the bedroom even with the light on.

Today, I put him back on it. He cried, was obsessive, clicked his tongue and made bzz bzz sounds all day. He as usual never was quiet. He kept telling me he was sad and spent some time crying over things he was obsessing over. I had to dress him in a red shirt and green pants and his christmas socks with pics of santa on them. He pretended he was an elf all day and seemed in his own little world. The verbal tics have gotten worse over time. He had 3 severe meltdowns.

I don't know what is worse or better. Either way I have trouble dealing with him and I don't want to do the on again off again thing with the ritalin. I feel like it's giving him too many episodes.

I still have not been contacted by his doctor and I'm getting very frustrated and truthfully a little confused about what to do. I'm afraid to play with his meds any more until I get a proper schedule to get him off stimulants and on a mood stabilizer.

I just feel like giving up and running away

Elspeth

iVillage Member
Registered: 04-01-2003
Mon, 05-12-2003 - 11:32pm
Did you not say they were going to treat him as bipolar. If so why is even on Ritilan????

We lasted on Dexadrine for only 5 days and I just stopped giving it to my DD, I knew something was not right with that med for her. Fortunately the Dr. was able to see me 2 days later and we tried something different.

If you still can't get to speak with the Dr., take Jamie to emerg. as Kathy suggested. Its not fun or fair to either of you to keep him on a med that you know really is not working for him.

IMHO Susan

Avatar for kathy_in_ga
iVillage Member
Registered: 03-26-2003
Tue, 05-13-2003 - 11:52am
Dexadrine was AWFUL for Joiner. He tried to jump out of my truck while I was driving him home. He raged because I didn't have 4 quarters right away to get something he wanted, I was trying to get change, but he went waaay past the point of no return. He was on it for 3 days before I stopped it. Even 3 days after he took it he was very violent, had to carry him out of church. Was an awful experience that I never want to repeat. What med are you using now??? We may try Strattera, but I am scared after what happened with the last trial of Dexadrine.
iVillage Member
Registered: 04-01-2003
Tue, 05-13-2003 - 12:44pm
The latest is Risperidol and it seems to be working so far. Very low dose but compared to the disinibition she showed on Celexa (thew last one) its a great improvement. She is also eating more and sleeping again, showing very little aggression so I'm happy.

Susan

iVillage Member
Registered: 05-02-2003
Thu, 05-15-2003 - 9:48am
Sounds like it is time to find a new doctor. Obviously your doctor is not listening to your concerns.

Have you tried Adderall? Ritalin did not work for my ds, but Adderall does. Adderall is a mix of salts, whereas Ritalin, Metadate, and Concerta is methylfenidate (spelling ?).

I would not play with his medication to much without the doctors supervision.
 

 

iVillage Member
Registered: 03-25-2003
Fri, 05-16-2003 - 10:32am
I live in Canada, we have our choice of ritalin and dexadrine. That's it, no other meds are approved here.

It will be at least 5 years before strattera is approved here. His pdoc is a good one, it's just that he's very cautious, and anyway I don't have a choice because there are no private childrens pdocs in this quarter of my country and we go to who the health system sends us too. He's the best of the lot.

Anyway we are having a bad day today and my head is spinning.

Elspeth