Starting our med Intuniv

iVillage Member
Registered: 09-21-2005
Starting our med Intuniv
6
Sat, 08-28-2010 - 5:58am
ok..so we had our appointment today and

Valentine Bingo               

iVillage Member
Registered: 06-10-2007
Sat, 08-28-2010 - 10:04am

Hi, welcome back


Intuniv( long acting Guanfacine)

A child may HAVE ADHD, but it is not what they ARE. Never tell a child they ARE ADHD.

iVillage Member
Registered: 03-04-2009
Sun, 08-29-2010 - 3:43pm

DS (7 1/2)

jenn

iVillage Member
Registered: 09-21-2005
Tue, 08-31-2010 - 8:24am
DS does not have Focus issues ( when it comes to sfchool work etC)..this is for impulsiceness only...which is our concern.

Valentine Bingo               

iVillage Member
Registered: 09-21-2005
Tue, 08-31-2010 - 8:26am
Jenn..how long did it take for him to adjust to the tiredness..??

Valentine Bingo               

iVillage Member
Registered: 03-04-2009
Tue, 08-31-2010 - 11:18am

Sue:


I think it took DS about a month to adjust. I just remember he was literally falling asleep at school. He was glassy-eyed... and just llike a zombie. At week 3 when he was on 3mg, I called th doctor and said there is no way he'll make to 4mg. So we kept him at 3 and he adjusted shortly after that. Also, I give it to him in the evening. I think initially we were supposed to give it to him in the morning, but because of the zombie factor I switched it to the evening. I figured it wouldn't matter too much WHEN with this type of medication since it needs to get built up in your system to work, much like an anti-depressant.


Anyway, when we first got the medication, there was a coupon in the starter kit. Then to get a second coupon I had to call a number and do a survey with the company. Dumb, but well worth it to save money. Then like a couple of months later i got another coupon. I would say $57/month isn't too bad of an investment, especially if it works. Our old insurance we paid $75 for the Intuniv and $75 for the focalin... $150/month just for HIS two meds. I have migraines so I am on maintenance/preventive meds and of course, abortive/rescue meds.... so add that into the mix... and wow! Anyway, my thought is that it's a small price to pay to allow your child to succeed and live to their potential. KWIM?


Give the intuniv a good six weeks to really see a difference. The biggest thing I have noticed with DS is impulse control. DS has anxiety along with the ADHD. And whenever he would get in a situation that would make him anxious (at school lunch, recess, PE...unstructured situations) he would "defend" himself with fight or flight... and impulsively react by running off or some other thing. Along with the special program he is in at school, he has made HUGE improvements in this area. Nearly all of last year he had lunch in his counselors office and also had to go to her office for recess b/c of his behavior on the playground. Though I can see why lunch would be an issue... it's a zoo in the cafeteria... and it's so dang LOUD!


Anyway, good luck with it. I will say I was skeptical about it at first b/c we had tried another non-stimulant (Strattera) without success. BUT DS still takes a stim along with the intuniv. Hope all this helps. Let me know if you have any more questions!


jenn

iVillage Member
Registered: 03-04-2009
Wed, 09-01-2010 - 11:24am

Sue:


I think I answered most of your questions with my previous response. Sorry I but I didn't see your first post about the non-stimulant.


But, yes, if you don't need anything to help with focus, then i wouldn't go with the stimulant. DS has always been thin, but healthy thin... and now he is SKINNNY. But, luckily, we have not had any other major side effects, like tics....headaches and belly aches when starting a new med, even with the Invuniv.


I think the behavior therapy is great. I am a huge proponent of it, though many in the medical community, in my experience don't feel the same way i do. But, personally, DS has had HUGE success in the past few months (as I said before). One thing, it's at all possible, that I strongly feel is a big reason that it has been working for him is that EVERYONE that works with him is doing the same thing. I had a meeting at school last week and there were 8 people there just discussing the one kid. His behavior program at school is modeled after Ross Green's Collaborative Problem Solving. http://www.livesinthebalance.org/

jenn