is there anyone with a child that is c

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Registered: 09-10-2003
is there anyone with a child that is c
9
Wed, 09-24-2003 - 10:31am
Hi everyone just wondering if anyone has a child that has compulsive issues and if they do how do you help them?? My son who is 7 cant get even a drop of water on his shirt it has to be changed. When fixing his hair for school in morning I spary a little water on hair if it gets on his neck or shirt its the end of the world. Tags on his shirt have to be cut off all his clothes. His pants cant be a little loose on his waste or he wont wear then he wont wear a belt, this too botheres him and so did the zip up sweatshirt he wore yesterday He would not keep it zipped because it bothered him up against his waste he said.He very rarely liked to get wet in the summer because it would make his clothes wet up against his skin. When he did get wet he had to change immediatly after getting wet.In the night alot of the time he wakes up to change underwear because he thinks they are wet from a drop of urine, They usually arent. Certain kids of blankets he wont use because the way they feel on his skin he says. Although I will say since being on concerta he has gotten alot better with thease things. Well, I was just wondering if this is something other kids may do or what? Thanks Deb
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Registered: 06-25-2003
Wed, 09-24-2003 - 10:54am
Debby,

I'm a lurker, but I had to respond to this.

Your son sounds like he might have some issues with sensory input. have you had him evaluated for Occupational Therapy? It might not be a bad idea.

I would recommend you talk to you pediatrician about it.

-Paula

-Paula

visit my blog at www.onesickmother.com
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Registered: 03-27-2003
Wed, 09-24-2003 - 1:39pm

I agree with Paula on this one. Golly lurkers have the advice. But I think it is wise to do this and see what pans out of it. It could be nothing but could be alot..


 

Avatar for kathy_in_ga
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Registered: 03-26-2003
Thu, 09-25-2003 - 10:46pm
My son has lots of sensory problems too. No tags on clothes, socks are always a huge fight, they bug his feet. I have put them on inside out and that helps most times. He can't stand anything sicky. Once I made grand cinnamons and he didn't know how to eat it. I had to cut the thing up & give him a fork. He has to have syrup in a small bowl so he can dip his pancakes in it. We actually has to switch a med b/c it was a stucky syrup type med. It went into his mouth, no where else, but he put up such a fight because it was sticky. My son also is sensative to loud noises, even though he is very loud himself.

What do we do? We adapt, we do things that will help. No use in talking yourself blue over the subject. They wont change how they feel. My son also changes right after he gets wet from a pool or sprinkler. he can't stand the feeling of wet clothes. A good book "The out of sync child". I have learned ther are some things my son can't do, like a fair at night or eating cotton candy (sticky), and if his socks are bugging him, I might as well change the socks, put them on inside out or have him wear no socks.

Good luck!

Kathy

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Registered: 03-28-2003
Thu, 09-25-2003 - 11:26pm
Debbie and Kathy,

I think Paula would agree with me here, going to the OT and getting a good sensory diet for my son made life a lot easier! Especially for him, and, thankfully for me. it got him able to handle a lot of his sensory issues, instead of just suffering with them. Now, my son, who thought the grass was terible, will take his shoes off ASAP, and run through the grass!

A sensory diet integrates sensory desisitization gradually so that the child can better accept that sensation. (Right, Paula?). You can get him evaluated via your IEP. But I did OT privately and it is one of the biggest bangs for the buck I've experienced out there. I know Liam is a lot happier with his sensory issues under control.

I mean, can you imagine how much easier your life would be if you could just give him a pair of socks and any pair would be a non-issue each day?

Sio

Avatar for kathy_in_ga
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Registered: 03-26-2003
Thu, 09-25-2003 - 11:38pm
I have talked with his teacher about this. She has a son who has SID. I need to call our insurance to see if they will pay for OT. He gets OT at school for handwriting twice a week. His meds have helped somewhat, on certain days he can fall out b/c of socks or noise. With Joiner it may not be all the time these things bother him, all but the sticky thing that is all the time. I have made things easier for him, and I don't sweat the small struff. One of these days he will have to learn that not everyone will do these things for him.

Question: Is personal space a sensory thing? Joiner has a huge personal space, and can't stand it if someone enters it. Like when the kids are lined up and one bumps into him, or this one kid in class who thinks it is funny to put his face right in Joiner's face. Right now Joiner is sitting at a desk, but is alone away from all the other kids. The other kids sit at desks and are grouped in 3's. His teacher is going to try & get him to sit at the end of a group of 3, and then after that get him in the middle of the three. His space thing can cause problems, mostly when he stricks out for someone bumping into him, or gets angry if someone sits right next to him.

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Registered: 03-28-2003
Fri, 09-26-2003 - 10:06am
Could it be that, more then wanting space he actually doesn't like to be touched? If so, YES! Very sensory related. But I saw on your web pages, you touch him a lot, and so did his best buddy. Is that a rare event, or is it OK if certain people touch him, while others don't? It could be that touching is overwhelming and so uncomfortable physically, that he needs space as a safety buffer. (Mom opinion here, not professional at all!)

How is his OT at school? Do they have a good relationship? Have you talked to the OT about any of this stuff? I think it effects his school day and his ability to interact with his peers. If I am hearing you correctly. So, that, in my mind, should be part of his IEP. (I'm in the beginning of the IEP thing, so I am not sure). I do know that I am very happy with the private OT we get, because I am a part of it! Or dh. We go, watch, and do everything she does at home in between sessions.

I know she said one of the reasons she went into private practice was because she'd see kids once, maybe twice a week, but they'd get nothing at home, so the OT did very little to actually help. Now, hand writing is different. His teachers can reinforce that in class, and he can get exercises as part of his homework. We use Handwriting Without Tears. But a true sensory diet may require a lot of work from you and your dh. But it is SO worth it. Reading your posts, I have no doubt you will be more then willing to do the at home stuff. My point here is (yes, I have one), you may want to do this privately. I know you work, so it may be easier for you &/or your dh to be a part of the process at a time when you don't have to get out of work.

HTH

Sio



Avatar for kathy_in_ga
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Registered: 03-26-2003
Sat, 09-27-2003 - 10:08am
Thanks Sio!

I am no longer working. So I can do a lot at home. The OT, school, Spec Ed teacher, and his teacher all know about the sensory thing. I have talked to the OT a couple of times, Joiner likes her. She has even sent home a huge pack of raised line paper for him to use. She is also using handwriting without tears with Joiner. She is doing it one on one with him, because of his bad handwriting habits.

As far as touching, he usually is all over me. His friends can touch him, when he wants them to. He loves to wrestle now, something he didn't want to do a while ago b/c of the touching. He usually pulls away if someone tries to hug him, he does it a lot with his granny & other adults he doesn't see often. He will lean on them & that is his hug. That may be a boy thing, I don't know. He has a huge personal space, but if he wants to he can be all in someones face & in their space. Some days it is worse, he wont even want the dog to look at him. Even looking at him you are crossing the line on those days. Once we went to the store & he kept telling me that a little girl was "messing" with him. All she was doing was looking at him. It was just his interpretation of it that was wrong. I agree with the space thing being a safty buffer for him.

Joiner's teacher is helping him in some ways to have peer relationships. She gets him to ask other kids for things. He will go to her and ask her to ask a child something. She is also working on him using feeling words when a conflict occurs. Things like, Stop that you are making me angry or I don't like that. Joiner has friends, they are almost all younger than he is. That's really no problem for me. It's a huge change from a few years ago when he would tell me he hated kids, they weren't his friends. Even in 1st grade he would paralell play. It has gotten much better & he seeks out other kids to play now.

Thanks for the input!

Kathy

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Registered: 06-25-2003
Mon, 09-29-2003 - 2:52am
I'd forgotten I'd posted here! And here I am lurking again (insomnia sucks) and I find this thread.

And listen to Sio. She gives good advice!

Yes. personal space is a sensory thing. Ther is a difference between touching and being touched-especially on certain parts of your body, or at particular pressure levels. Therefore many kids seem to give mixed messages. They will paw and touch all day long, but cringe if you try and touch them!

All of this can be helped with OT and the sooner it starts the better.

If you are in touch with a therapist, corner him/her with a full list of your concerns and get some ideas on next steps.

HTH

-Paula

-Paula

visit my blog at www.onesickmother.com
Avatar for kathy_in_ga
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Registered: 03-26-2003
Tue, 09-30-2003 - 8:52am
Thanks Paula. I hope you can get some rest!