AS +ADHD meds, & inflexibility

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Registered: 02-02-2009
AS +ADHD meds, & inflexibility
8
Mon, 07-12-2010 - 5:59pm

Hi, I'm wondering if anyone else out there has a child with the same issues I am dealing with. I feel like the root issues of the problems and challenges we deal with are hyperactivity, and the inability to stop obsessing about things/inflexibility. I keep trying to find ways to address these issues.

We have tried different several ADHD meds in the lat two years since dx, currently on Vyvanse which seems to be doing pretty well for daytime. However, we stopped the Seroquel at night (for hyperactivity, helping to sleep) after finding out how strong/addictive it is for a lot of people, and that it is not recommended for kids. After withdrawals (website lists 85 symptoms!) we are glad to have him off it, but now dealing with the hyperactivity. If he takes another med at night, then we have a huge problem with eating enough. He's very picky--can't add protein powder, etc. and we are trying the gfcf diet (anyone else try this?) which is also challenging.

Does anyone else have suggestions for nighttime hyperactivity?

What about the inflexibility/obsessing? Our son never wants to part with a single toy/school paper/book, anything he has ever owned! I have been periodically picking through when he's not here, weeding out the junk and things that are not particularly special to him, but I keep failing at trying to get him to see or be willing to sort things out and give things up himself. He loves legos, and is constantly begging for me to buy him new toys and legos. I have tried the swapping-out with garage bins, but he HAS to have everything, and have it where he wants it or he melts down. I have worked with him on earning money to buy toys if it is not a birthday or holiday, and have stuck with this, but he is still constantly begging--as if it is a life-or-death issue.
Anyone else have any suggestions or successes in this area?

Avatar for littleroses
iVillage Member
Registered: 03-28-2003
In reply to: momtobrennan
Mon, 07-12-2010 - 6:19pm
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Registered: 11-28-2006
Mon, 07-12-2010 - 6:41pm

Mine take Clonodine which is very similar to Intuiv. Clonodine is a blood pressure medicine but also works for kids who have ADHD. It basically calms them.

We use it to calm him at night and for sleep and it works like a charm. The only thing is we can't use it for daytime because it also makes him sleepy and interfers with school work etc.

BTW we tried some stimulant type of ADHD meds and it was a horrible experience for us. It only increased my childs anxiety and hyperness.

As for the mind being "stuck" on things, I have never been able to change that either. For all 3 of my kids I could never ever throw out anything that they owned in front of them (this is typical for Neurotypical kids too). So I would just do a few things out of his view and not try to put alot of energy into this issue. Now my 23 yr old dd is fine and can let go of things she needs too. But if you had seen her when she was younger, oh my, it was hard.

BTW I try this sometimes with my kids and sometimes it works and sometimes it doesn't, (meaning worked for my dd but not my boys). When it came time to clean their room or clear out closets, I would pay them for the things they could part with, with the promise that we would hit Toys R Us when we were done. Can I see a new Legos set (an incentive to him) coming into the picture soon? LOL And btw I NEVER throw away legos, because the attachment is too strong, and besides those suckers are expensive!

iVillage Member
Registered: 03-09-2009
Mon, 07-12-2010 - 9:39pm
My DS (13) also won't part with anything. I go through his things periodically throwing out the junky stuff that he's not looked at in 6 months or more. We've kept the good stuff (Fisher Price, Tonka trucks, Legos, his large wooden train set, books, ect). It's kind of been a blessing in disguise, as my DH and I now have a grandchild (my step-daughter's DS who is 16 months old) and we still have lots of toys for him to play with and grow into.
iVillage Member
Registered: 07-09-2010
Tue, 07-13-2010 - 9:10am

Good morning.

iVillage Member
Registered: 02-02-2009
Tue, 07-13-2010 - 9:45am

Hi littleroses,

thanks for your reply, I appreciate the input of all. I had not heard of Intuniv, but did a little bit of checking online. One thing I read is that it can lose effectiveness after 9 weeks. Have you had any issues with this? How long has your dd been on the Intuniv? Have you had problems with stomach upset and eating? That has been one of our big issues. My ds will eat very little lunch, if any, and I really have to push it. He is getting an appetite by later in the day and I hate to lose that. He is a thin kid to start with, has always been thin and wiry and a picky eater long before we started meds.

Do you give the Intuniv at night? What is the timing in regard to the evening meal or snack?

iVillage Member
Registered: 02-02-2009
Tue, 07-13-2010 - 9:56am

Thanks for your reply. So, are your kids on Clonodine only?
Do you use anything else for daytime?

Thanks for your input regarding the toys. I think the messy room and all the "stuff" is getting to me more because it's worse during the summer when ds is home all day! It doesn't help when Grandma and Grandpa buy him three new big toys after his visit, days after his birthday when he just got new legos and toys. I know if they had to manage it, there would be much less coming in!

I definitely don't throw out legos, but it is amazing how much junk they pick up from prizes at the dentist, school carnivals, school safety programs, etc. On the last day of school, I did a speed trip through his room and filled up 4 grocery bags of little junky things, broken toys, papers, tags from clothing we have cut out (he always wants to save) and just plain garbage. The bad thing about having him try to help is that ultimately he just catalogs everything mentally and then it's really hard to get rid of anything without him knowing lol!

Avatar for littleroses
iVillage Member
Registered: 03-28-2003
In reply to: momtobrennan
Tue, 07-13-2010 - 10:50am
iVillage Member
Registered: 10-13-2003
Wed, 07-28-2010 - 6:04pm

New here with a 15yr old son who was dx ADHD at 7 and awaiting Aspergers assessment (they're just saying PDD right now but most are thinking AS is likely).


Anyhow, we have always had big trouble with hoarding - toys, clothes, magazines, movies, chip bags