I know the sites you're talking about, and no, they're not too hard to find. But I don't have to look for them to know what they mean either. <?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" />
Okay, we're going to play one of my quickly imaginations games again.
Maybe it is from my past as a counselor working with adults with disabilities, but I don't see that attitude as being just bad. What I see it as being is a motivator and a coping mechanism. Also, in my mind it lends credence to my opinion that people who are on the spectrum actually are very social beings, just in an atypical way. And, when they are able to communicate among themselves, they understand their way of socialization a whole heck of a lot better then, say, I do! They also see the value of their way of interpreting the world.
Actually, the Deaf community has been going through this for ever, but with the introduction of cochlear implants, it has shifted from the prism of "if there was a cure out there, would you take it?" to "are you going to get an implant, let your deaf kid get one, or stay in the deaf culture?" Now, cochlear implants don't cure all forms of hearing loss or functional deafness, but it addresses a lot of the issues in that population. A lot of people in the deaf community have turned away from this advent of technology. Our society doesn't have too much of problem with adults making this decision, but, as a whole, society is completely opposed to a deaf parent not allowing there child to get an implant. Actually, as I understand it, society is much more accepting of a hearing parent making the decision not to get an implant for their deaf child. It has become fodder for the court systems. At this point, I know parents still have a foot to stand on in saying their child doesn't have to get an implant, but I seriously doubt that it will stay that way. And, I often wonder, should a parent be allowed to make that decision?
Anyway, What I think is, by forming the Aspie/Autie culture, what these folks are doing, as well as giving themselves the clout that comes with numbers, is, giving and getting acceptance. We all want that.
Who's procrastinating! Back to the dreaded paper that is due Wednesday and I can't seem to write!
First, I don't think I would want to "cure" my kids as they have many strengths and gifts with their asperger's and are unique individuals. However, I am fortunate that my children are on the high/ mild end of the autism spectrum. I dare say that most of the adults online who don't want to "cure" their autism are also high functioning and able to live independently. For them I can see the point that autism for them is not a disability.
That being said, we are in the minority. I read recently that the majority of people with autism are still considered to also be mentally delayed or function as though they are. I asked DH if he felt this is true. (He works with a large number of children on all areas of the spectrum and knows what is going on within the county with regards to this) He says that those like are kids are the minority for sure.
Also, I have had the pleasure in my professional as well as personal life to meet a wide variety of autistics. I believe many of the parents wanting to cure autism have children on this end of the spectrum.
LEts do the imagining thing. Imagine you are a mom of 7 y.o. child with autism who has never called you by name. Imagine that this child only has a limited amount of cumminication of a few words that is used only to request need. Due to the lack of communication when you don't understand what they want and they don't understand you tehy can become very aggressive. It has gotten quite severe they hurt their little sister pretty significantly. This is common in your house and you have been wondering how long this child can live with you. You begin looking all over teh country for the good residential placements so your family can move to that state to be near your child for visits when that time comes. Would you want a cure for autism then? It is not as uncommon as you think.
Cait rides horses with this boy around her age with autism. I don't beleive he has ever said a word. Other than being more compliant and less anxious(medication) and a bit taller I have not seen him change in 2 years. He will never live independently. His mom also has a dd with PDD-NOS who Mike loves to play with. She is a really neat kid. I wonder how that mom feels on a cure?
I love my kids the way they are and I don't want to change them, but I realize that compared to others their expression of autism is much different. I wonder if the adults with severe autism living in residential and group homes could be online and communicate effectively how they would feel about being cured.
If I could I would take this disorder from him. I would do it because it is what he wants. I love my son and ache for him when he attempts to talk to someone but struggles because he can not get the words out right and people shrug him off.
Now that I am in tears (thinking about watching him outside the school trying to make conversation after I drop him off at school) I will close my post. Please understand I would not want him cured for me but because he asked for it.
Oh, I don't have to imagine, I've lived it. I've also seen it, in much more severe forms than I live with through both my social and work lives. <?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" />
A friend of mine, who is now passed away, had a son with severe Kanner's.
We seem to have gotten off on a footing of debating whether we should be looking for a cure or not. Correct me if I'm wrong (don't worry I'll take no offense) but isn't the question "Why is the mainstay of the Aspie Culture against the 'cure'?"
Well, to be honest, not all of them are. My friend Diane(AS) would love to find a cure. And Linda brought up that her DS has actually said he wants a cure. And they have the right to it if it ever becomes available. Even though I live with Aspies who are a part of that 'volitilely against being cured' sect I still support the Cure For Autism Campaigne. Why? Because there ARE people out there who WANT to be cured of their autism. It's like people being over weight. Some people want to find an answer that will help them effectively maintain a medically ideal weight while others could care less. My mom is chronically 30 lbs over weight and would LOVE to find something that would help her. But her sisters are 40 lbs over weight and are perfectly happy with themselves.
My DH is in the league of 'no cures'. He doesn't feel like there is anything 'wrong' with him. If offered a cure he would walk away from it. He has made very sure I know this. To him it's the same as being told that he is handicapped b/c he likes motorcycles instead of sports cars, or b/c he is a Modern Jew as opposed to Christian. He sees the porblems he has with society as more of a language/cultural barrier than anything else. He just wonders why it is his sole responsiblity to learn to live and speak as an NT while he lives in a state who's primary language is English but you can't get a job if you don't speak Spanish.