Any Advice Please?

iVillage Member
Registered: 04-28-2010
Any Advice Please?
5
Fri, 05-14-2010 - 11:08am

Hello,


I am still awaiting the dx of my ds who is going to be 3.5 yrs old next month. I'm very concerned as I'm noticing more symptoms. I was wondering if any of you are dealing with or have dealt with frequent jibberish and jaw clicking? If so what should I do to try to have him minimize it? Also, another recent symptom is that at least twice a day now there are times when I speak to him that he isn't turning to look at me or acknowledge me. The last symptom has become more apparent in the last two weeks and I don't know what to do :(. I feel so helpless and am trying to stay strong but I find myself crying myself to sleep

iVillage Member
Registered: 03-24-2010
Fri, 05-14-2010 - 11:19pm
I am sorry!! I know it's so hard...especially the not knowing part. I don't know what's going on with my 20 month old for sure, but I definitely can relate to how you are feeling. Sometimes I just feel so helpless. Hang in there!! I really don't know what to say to make things better as I kind of feel like I am in the same boat. Sometimes I don't know if the 'symptoms' are becoming more apparent, or if I just keep over analyzing every little thing. Just know that you are not alone!!
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iVillage Member
Registered: 01-07-2009
Sat, 05-15-2010 - 5:12pm

Hi Patricia,

I was totally where you were about a year ago. Things will get better. Do you currently have your son in any sort of treatment or therapies? I went ahead with therapies before we got the Dx and we have made tremendous progress. My son did have the clicking and jibberish - this is stimming. My son also didn't answer when we called his name. This is classic behaviour. Since we began the therapies, it is much better. When you call your son's name, try not calling him a second time and go down to his level and say his name again. I sometimes even grab my son's hand and pull his body toward me. He may not look me in the eye, but I usually will get my message across.

Does he also have language delays?

iVillage Member
Registered: 04-28-2010
Mon, 05-17-2010 - 7:55am

Thank you so much it makes me feel like I'm not so alone knowing others have experienced the same thing that I'm going through. Yes my son also has language delays and the only therapy that he's been provided is ST one day a week for 1/2 hour which doesn't help at all. He was getting 1 hour a week ST up until he turned 3 and although it didn't help with his language development he did learn some signs. This Speech Therapist doesn't want him to sign and every time he does she tells him to use his "big boy words." Needless to say he does not like his therapy sessions and I don't either. He has about 48 words but does not use them daily. On a daily basis he may only use 10 if that :(. I try to work with him as much as I can but work very far and so I'm away from him 12 hours a day which doesn't help. I wish the specialists didn't have such a long wait list but am not sure what they will recommend.


I'm happy to hear that your son has made progress with his therapies and hope that maybe my son will too.


iVillage Member
Registered: 05-06-2009
Mon, 05-17-2010 - 10:33am

I'm no expert by any means but almost everyone I have talked to would disagree with the ST's opinion on signs.

iVillage Member
Registered: 01-07-2009
Tue, 05-18-2010 - 1:15pm

Hi Patricia,

I agree with PP that signs are good. Any form of communication is communication (signing, picture cards, pointing, etc). If your child is just at the requester stage (little or no speech) I would highly recommend you try using picture cards. Your son can show you want he wants that way. You can put pictures on the fridge of foods he like, you can post his sleep schedule by his bed, you can have pictures of his favourite books, etc. The caregiver at my daycare suggested taking pictures of my son doing different activities, like drinking a cup of juice, taking a bath, eating dinner at the table, watching a video, etc. Of course it will lead to speech as you just repeat it when he shows you. If he goes to the fridge and your DS points to a picture of apple juice, you can say,"want juice" or "want apple juice". He may not repeat it, that's OK just give it to him, don't wait for him to say it. Eventually, when you do it enough times, he will start to echo you. This is the start of real speech.

Also, if your son does not like speech therapy, then you might need to find someone new. It should be like play, and not seem like a chore for your child.

Hope this is helpful!
Heidi.