Anyone else hear "I just don't see it"?
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| Tue, 06-06-2006 - 8:34pm |
Hi again all. I normally mostly lurk, but I really need some input...maybe even just to vent.
Josh (6) is in the process of being evaluated by a Behavioral Psych. who said he "definately shows classic signs of Asperger's" after being urged by some professional friends to have him tested. Anyway, I'm sick to death of close friends that I've shared the probable diagnosis with who simply say..."I just don't see it, he's a normal kid to me". What do you say to that. I mean come on...is it "normal" to be in an amusement park and take 20 trips to the bathroom in a three hour time period just to play with the automatic paper towel dispenser? We're in an amusement park by gosh...look at the rides, cotton candy etc. tell me the most enticing thing here is the paper towel dispenser. When talking about the Star Wars obsession I get alot of "well that isn't an obsession, my child loves Dora and is obsessed with Dora". Good golly, do you try to have a conversation with your child and although there is nothing Star Wars in the topic or within view a response is "yoda has a green lightsaber"? How in the world does one ever get ones' friends to understand or at least just listen in support instead of making you feel like you are seeing things and "looking" for a problem (yes, I've been told that too). Or, maybe I AM just "looking to hard". Anyone else have this problem? If so, what do you do?
Thanks for letting me vent.
Heather
mom to Josh (6 probable AS diagnosis soon) Justin (2nt)

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Your Sylvia sounds like my Mitchell. We are not dx'ed yet, extensive expensive eval set for 6/12. When he was 3 we had to transition from county based special ed to school district based and I even had my school district turn us down after a 10 minute meeting with Mitchell because he talked so much. Please! I was so distraught. We are doing school of choice for special ed!! Anyway, I hear everyone's frustrations with it. I am planning on a letter to family after 6/12 as well. I need their support. Friends -- i haven't been able to really have any, hence lurking here with people who get it. I have co-workers but they try to help by telling me "that's normal" and "You never know what the future will bring". Talking on the phone to try an maintain/have friendships is almost impossible due to supervision and care ds requires; by the time he is in bed and finally asleep i'm too exhausted plus i have a dh to try and connect with!!
Anyway, i hear you all and am right there with you. It's more frustrating when you yourself are not sure and that is why you are going to appts and it would be great to have someione to discuss all of the appt, $$/insurance issues, worries concerns with but we don't. We pray and we come here!
Thank God for all of you!
Wendy
Thank you all so much for your ideas and encouragement! I think I had finally hit the end of my sanity when I made that post, and knowing that I'm not alone, and getting some ideas to deal with the "I don't see its" was exactly what I needed!
I'm so glad I found this board (even if I have mostly lurked). :)
Thank you all again!
Heather
My ds Xander (4) is AS.... we get that ALL the time. Not to mention I have men wanting to tall me how I am not disciplining my child properly, how he will look me in the eye if I 'hold his head and MAKE him', etc. This was at church in the nursery....I was furious and went to the director.
I have family that does that to me. They think I'm making a big thing out of nothing. Haley's obsession is Pokemon (well... currently anyway) and that is all she will talk about no matter what you say to her and no matter who is talking to her. It's like she tries to respond appropriately but just can't. You ask her a question and she will go, "Well..." There will be a short pause and then the pokemon talk will begin.
I've given up trying to explain things to family for now. I will occasionally just point them to websites about it and drop the subject. It's just too frustrating.
Mom to Erin (19) and Haley (10yo Asp
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