Anyone have experience with Risperdal

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Registered: 05-28-2003
Anyone have experience with Risperdal
8
Mon, 06-30-2003 - 7:23pm
We're looking into meds. for DS. William's 6 1/2 & he's your basic "bull in a china shop" ASpie. He's had intensive therapies for 3 year now (speech, OT, behav. therapy, social skills therapy & seeing a psych.) We've seen definitely seen major improvements in lots of areas (having a "sensory diet has help alot!)...but his behavioral problems are still a MAJOR problem.

A few weeks ago we went to a DR. He spoke w/ me for 2 hours, spoke w/ William's teachers & his psych., & also met w/ William for an hour. The dr. is RXing Risperdal & I'm alittle nervous about this med.

I'd love to hear about others experience w/ meds. especially risperdal.

Elizabeth

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Registered: 03-26-2003
Mon, 06-30-2003 - 10:44pm
My son doesn't take this but a friend's son does. His appetite increased incredibly and he gained 50 percent of his original weight. They are trying to wean him off it now. It did help with the behaviors (tremendously) but now they are concerned about his weight.

bless

bugs

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Registered: 11-05-1998
Tue, 07-01-2003 - 1:19pm
My son's been on Risperdal for four years and it was a lifesaver for us. After he went on it, we were finally able to discover the truly delightful child that was hidden behind the aggressive, violent, anxious boy he had been. It also calmed him down enough that we could begin to teach him other coping mechanisms and ways to handle his anger and frustration appropriately.

That said, we did see a big initial weight gain with the Risperdal, as well as a lot of sleepiness. We adjusted his dose so he was taking a smaller dose in the morning so he could function at school and a larger dose with supper, so he slept well at night. After about six months or so, his body adjusted to the medication and the weight began to come off, and now he's actually on the slender side. We did monitor his eating habits, though, too. He may have wanted thirds for dinner, but we didn't allow it. We steered him to fruit and water when he was hungry and that helped to regulate his weight.

Hope this helps.

Elizabeth mom to Chris, 10 (AS)

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Registered: 05-28-2003
Tue, 07-01-2003 - 7:37pm
thanks Bugz! Well weight gain actually sounds good to me...then maybe we'd be able to find pants to fit William ;>) He's 4'6" & weights 41 lbs.
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Registered: 05-28-2003
Tue, 07-01-2003 - 7:40pm
Thanks Chris! Glad to hear your ds has had a great results from Risperdal. I hope it helps William as well

Elizabeth

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Registered: 04-05-2003
Wed, 07-02-2003 - 10:21am
Jordan is 9 years old and his dr. put him on two meds. The combination works wonderfully and he's much better. She put him on Luvox for his obessessive issues and anxiety and Strattera for anxiety and impulse issues (like his freaking out during transitions and having a huge meltdown). The Strattera is a non-controlled ADHD drug and it works more like an anti-depressant. He is much calmer, more focused on the world (and less in his world) and more rational. I'm happy with the combo.

Hope this helps

Leenie

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Registered: 03-26-2003
Wed, 07-02-2003 - 11:03am
OHHHH, have I got a question for you.

My son was in the strattera study and on it for months. It helped some, but not enough. The rigidity and anxiety were bigger problems. We just started Luvox. I had been considering using the 2 together, but the study folks told me that luvox increased the levels of strattera in the blood stream and were not good to use together. They also thought Luvox would cause extereme sleepiness (infact he is more hyper than ever)

Did your doc have any of these concerns. Did the study folks just not understand Luvox? I have heard our neuro is one of the few that still perscribes it. How is the combo working for you?

Photobucket
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Registered: 04-05-2003
Thu, 07-03-2003 - 10:55am
Jordan has not had any problems with the combo, but he's pretty drug tolerant/resistant. My ds is also a thinker not an action kid, so if either drug made a little hyper it would be a good thing since he sits around thinking all day. Our dr. told us that she's had great success with this combo of drugs in AS kids.

He's been on the Luvox (50 mg)since 9/02 and we started the Strattera (25 mg) on 6/16. The Luvox got rid of alot of the "abnormal" what if the world blows up kind of obsessions and some anxiety, but he still goes crazy over Yugi-Oh and Bey Blades. The dr. says those are pretty normal obsession for a boy his age. Neither the Luvox nor has adding the Strattera changed him in any negative way or made him hyper. With the combo of drugs he's able to settle down and go to sleep very quickly. Before adding the Strattera he had some difficulty sleeping because he mind was racing on gloom,doom and what if thoughts. The Strattera got rid of the extra anxiety that he has and the impulsive anger problems (when things didn't go according to plan anger).

With both drugs he is more aware and a part of the world and is so much more confident. Friends have commented on the drastic change of Jordan because he is able to handle things so much better. For example, I had to finish a project before we went to his friend's house. Prior to the medications, he would have flipped out waiting for me to finish. Even with just the Luvox he would have flipped out, but not as bad as the non-medicated version. Now he says call me when you are done and he waits patiently. Transitions are also much easier because he can handle it. He much calmer when his little brother touches his stuff and actually helps him do things.

I love the effects the combo has on him to see him so relaxed and happy. He doesn't have that medicated groggy look nor is he sleepy. I now have a kid that I can work with helping him with transitions, change in routines, surprises, etc. that were such huge issues even with the Luvox.

Good luck and I hope this helps

Leenie

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Registered: 05-28-2003
Tue, 07-08-2003 - 10:06am
Hi Leenie,

We haven't started meds. yet, but I always thought about that same combo for William. Glad to hear it's working great for your kiddo. Thanks for the info.!

Elizabeth