Welcome back! Well, someone was looking out for you yesterday! I mean, I am sorry you went through all of that, I can only imagine how terrified you must have been, but you were in the best location for it to happen!
Try to take some time out for yourself if you can. I don't know about you, but it takes me several days to decompress after a big scare like that, and you probably need some downtime to allow that to happen.
I KWYM about being so protective of the "normal" child. I feel a little like that about my second born; -although she is Aspie, she is higher on the Spectrum than Peter, and is the only one who really displays affection.
Actually I notice I am like that about all my kids and family. I think for me part of it was that my dad died in a scuba accident when I was 13 so I always had this fear that it (an accident taking a loved ones life) could happen again. Then add to that the kids developmental problems and I can get a bit neurotic. Once when I was in college I was home on summer break. I came home from work and mom was out. At 2am she still wasn't home. This was pre-cellphone days. I called the police hysterical and started driving around town looking for an accident. She was at a concert and forgot to tell me.
After that I have learned to control it when my fears start to get a bit irrational. And actually in emergency situations, I am usually the cool headed one that knows what to do. For me it isn't what is happening at the time that I can do something about it is things out of my control or perceived what could happen. For instance, when Cait went to the beach on a field trip or when she was lost at school.
Wow- I got tears in my eyes reading what happened! That is a huge scare- thank goodness you were already at the doctor's office. Whether or not you know about fever induced seizures, it is still horrifying to see your son go through.
I know what you mean about feeling like you are waiting for something to be wrong. In the last year I have just been so shell shocked with all we have gone through with our son since his diagnosis, that I feel like I keep waiting for "the other shoe to drop". My daughter Ava is 7 months old now- she was born 6 weeks after Ian's diagnosis. She is so different from the way he was as a baby that I think if we had had her first, I would have known something was wrong sooner. Last week our RDI therapist did a home visit. At the end of the visit the therapist said 'She has not made a peep the whole time I was here, is that normal for her?' In my heart I knew everything was fine with Ava and that often she babbles up a storm. But, when the therapist asked me that I got a terrible sense of dread in my stomach.
I sounds like you have your hands full right now with doctors appointments. I hope they figure out quickly what Nate is allergic to so poop issues get under control soon.
My oldest, Tyler NT 8, had febrile seizures when he was little. I was working at the time and he was always getting colds from being at the sitters. He had a seizure every month for, I believe it was 4 months. We also had an appt with a neuro and ended up putting him on phenobarbitol.
I had lots of scares too. He went into a seizure in the car, while I was driving. I pulled over and quickly got him out of the carseat (the dr told me to lay him on his side when this happens). Blood started coming from his mouth. Scared me to death! I ran from house to house, with him in my arms, trying to get someone to help me. Luckily, there was a couple who helped me and drove me to the hospital. I was on my way there, because his temp was spiking again and I couldn't get it down.
The lady happened to be a nurse too. The blood came from his tongue....he bit it during the seizure. Anyway, I just wanted to let you know that I know the panic that you felt. It's a horrible feeling. Tyler was supposed to be on the meds for a few years, but after a year, we took him off. After discussing it with his ped, we felt that he was doing well, and had no seizures while on the meds. He's fine now, no problems. He has normal fevers when he gets sick, although after taking him off the meds....I think I panicked for a year everytime he got sick!!
I watched Nathan like a hawk when he was born, hoping that he wouldn't have the seizures too. And he didn't. Our doctors had me rotating tylenol and motrin every 3 hours, when Tyler would get sick. Did your ped give you any suggestions?? It did help sometimes, but not always.
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Hi Fran,
((((Huge Hugs!!!))))
Hey Fran,
Welcome back! Well, someone was looking out for you yesterday! I mean, I am sorry you went through all of that, I can only imagine how terrified you must have been, but you were in the best location for it to happen!
Try to take some time out for yourself if you can. I don't know about you, but it takes me several days to decompress after a big scare like that, and you probably need some downtime to allow that to happen.
I KWYM about being so protective of the "normal" child. I feel a little like that about my second born; -although she is Aspie, she is higher on the Spectrum than Peter, and is the only one who really displays affection.
(((Hugs)))
-Paula
visit my blog at www.onesickmother.com
Actually I notice I am like that about all my kids and family. I think for me part of it was that my dad died in a scuba accident when I was 13 so I always had this fear that it (an accident taking a loved ones life) could happen again. Then add to that the kids developmental problems and I can get a bit neurotic. Once when I was in college I was home on summer break. I came home from work and mom was out. At 2am she still wasn't home. This was pre-cellphone days. I called the police hysterical and started driving around town looking for an accident. She was at a concert and forgot to tell me.
After that I have learned to control it when my fears start to get a bit irrational. And actually in emergency situations, I am usually the cool headed one that knows what to do. For me it isn't what is happening at the time that I can do something about it is things out of my control or perceived what could happen. For instance, when Cait went to the beach on a field trip or when she was lost at school.
Renee
Hi Renee!
Hi Pam, Thanks!
Hi Paula!
Thanks!
Wow- I got tears in my eyes reading what happened! That is a huge scare- thank goodness you were already at the doctor's office. Whether or not you know about fever induced seizures, it is still horrifying to see your son go through.
I know what you mean about feeling like you are waiting for something to be wrong. In the last year I have just been so shell shocked with all we have gone through with our son since his diagnosis, that I feel like I keep waiting for "the other shoe to drop". My daughter Ava is 7 months old now- she was born 6 weeks after Ian's diagnosis. She is so different from the way he was as a baby that I think if we had had her first, I would have known something was wrong sooner. Last week our RDI therapist did a home visit. At the end of the visit the therapist said 'She has not made a peep the whole time I was here, is that normal for her?' In my heart I knew everything was fine with Ava and that often she babbles up a storm. But, when the therapist asked me that I got a terrible sense of dread in my stomach.
I sounds like you have your hands full right now with doctors appointments. I hope they figure out quickly what Nate is allergic to so poop issues get under control soon.
GL!
Marisol
delete
Edited 2/19/2008 9:17 pm ET by littleroses
Fran,
My oldest, Tyler NT 8, had febrile seizures when he was little. I was working at the time and he was always getting colds from being at the sitters. He had a seizure every month for, I believe it was 4 months. We also had an appt with a neuro and ended up putting him on phenobarbitol.
I had lots of scares too. He went into a seizure in the car, while I was driving. I pulled over and quickly got him out of the carseat (the dr told me to lay him on his side when this happens). Blood started coming from his mouth. Scared me to death! I ran from house to house, with him in my arms, trying to get someone to help me. Luckily, there was a couple who helped me and drove me to the hospital. I was on my way there, because his temp was spiking again and I couldn't get it down.
The lady happened to be a nurse too. The blood came from his tongue....he bit it during the seizure. Anyway, I just wanted to let you know that I know the panic that you felt. It's a horrible feeling. Tyler was supposed to be on the meds for a few years, but after a year, we took him off. After discussing it with his ped, we felt that he was doing well, and had no seizures while on the meds. He's fine now, no problems. He has normal fevers when he gets sick, although after taking him off the meds....I think I panicked for a year everytime he got sick!!
I watched Nathan like a hawk when he was born, hoping that he wouldn't have the seizures too. And he didn't. Our doctors had me rotating tylenol and motrin every 3 hours, when Tyler would get sick. Did your ped give you any suggestions?? It did help sometimes, but not always.
Michelle
Marisol, thanks for the feedback!
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