Cait had her first realseizure symptoms

iVillage Member
Registered: 03-26-2003
Cait had her first realseizure symptoms
3
Fri, 04-18-2003 - 12:01pm
complaint yesterday. We have known to keep watch, especially with puberty drawing nearer. So far her EEG, tics and some minor regressive stuff was all the info we had. The EEG showed mostly stuff in sleep and it wouldn't be unlike Cait to not complain of some weird symptom, so we didn't know.

In church she started complaining of the inside of her mouth and part of her face going numb. Lasted a minute or so and then went away. Numbness is a sign of partial seizures. She goes to the Neuro on Thursday. I may email her in advance and ask to increase her anti convulsant.

Have to say the teacher has not noticed her "forgetting" how to do work this year, so I think that is a good sign.

Renee

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Community Leader
Registered: 04-05-2002
Fri, 04-18-2003 - 10:11pm
That's interesting. Lucky for her that you've been so pro-active. As I've read more about seizures, I'm surprised at how many different kinds there are with similar symptoms. My concern with my son's seizures is also that they might get more severe. Good luck with Cait's and let's hope for both of them that this is as bad as it gets for them.





iVillage Member
Registered: 03-26-2003
Fri, 04-18-2003 - 6:04pm
Cait had an EEG that showed partial siezures and possible epileptic aphasia. Her epileptic spikes are most often in sleep. She hasn't had an actual seizure on record that we know of, but she used to have tremors in her hands and spacing out episodes when she was in preschool. She also had a habit of losing skills that she had already gained, though not really severely. like in school one day she could do addition and the next day she couldn't. She also walked a couple times at 13 months old and then regressed back to crawling for 4 more months. That is the aphasia. Had her first EEG done when she was 3 but it was only an hour and didn't show anything conclusive. We just had a 24 hour one done not quite a year ago where they diagnosed partial seizures and possible epileptic aphasia (also know as LKS or landau-kleffner syndrome)

My main concern as well is developing more severe seizures. We have been told she is at increased risk for it and to not let her swim alone, bike without a helmet or walk upstairs alone.

Thanks for your post,

Renee

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Community Leader
Registered: 04-05-2002
Fri, 04-18-2003 - 2:27pm
Hi! I'm an occasional lurker because my nephew has Asperger's. Your daughter's seizure symptoms sound so much like my son's. He doesn't have PDD, but he was diagnosed with Benign Rolandic Epilepsy. Last year, he started w/ short seizures at night. He's had about half a dozen that we know about. A few weeks ago, he had an episode at home and school where his mouth went numb and felt like it fell asleep and afterward, he drooled. Did Cait's EEG show something like this? That's how my son was diagnosed. As scary as it seemed (and seems), this goes away by itself by puberty. My biggest worry is that it could possibly become full seizures and he could lose consciousness. I wonder about things like biking, swimming, skiing (on the lifts), etc. I don't want to be an overprotective mother, because it's highly unlikely to get that serious but it's a worry.