De-lurking to vent
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| Tue, 05-20-2008 - 2:51pm |
For just ONE day I want 'normal' children.
That don't require teacher conferences every 9 weeks (maximum) and DO remember basic things like doing daily chores without constant reminders, and bringing home homework.(Josh) Normal things like going to the bathroom IN the toilet (and not one's pants) and not screaming "I don't know how to sleep" for hours on end at night unless forced to sleep with medications. (Ryan)
Just one day where I don't have to fight the school for appropriate placements for either of my 'special' children.
Just one day where I don't have to lock a 5 year old in his bedroom at night for fear that he'll hurt himself or wander out of the house while I'm sleeping.
Just one day where I can enjoy an outing without wondering what is going to send my 5 year old into a meltdown (like fire engine sirens and crowds at a parade), or turn my 12 year old into an arm-flapping, toe-walking bird in the grocery store.
Just one day. Before I totally go insane.
(Yes - I'm fighting with the school again/still)

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Girl (((Hugs))) am I with you on this. May I hijack and add my own...
For just ONE day.....
I want to be able to ask something (ie: brush your teeth or put your dish in the sink) of my 8 year old without it involving professional level negotiation tactics (I could be n the FBI with the skills I've learned there).
I want Cian to not lose his shoes and pee his pants the second we get home and I am awash with two other kids' needs, (he has done that every day this week)
I want to not suddenly feel totally exhausted merely minutes after they come home from school.
I want school meetings to be Muffins with Mom or Donuts with Dad and not 7 (might be more but I lost count after 7) separate IEP and advocate meetings between both boys.
I want to not have to decide whether we can afford $650 for an ability test (ABBLS) for a child who will not use the toilet unless lead there by his ear, or threatened with all sorts of horrible things. And in the meantime we can't pay the HOA fees and have to explain to both boys why they can't go to the community pool while all the other kids can.
I want to not feel afraid of and for my son when he is threatening to kill me, himself or others.
I want to not worry that Liam will end up living with us even as an adult
I want....I want.....the biggest feckin' chocolate Brownie Sundae you can get at the Hard Rock Cafe!!!!!!! sigh...
Dee
I like this thread..
For one day I would like to...
Not have to worry about Reese's future (will she going to go to college, make friends, be happy...etc)
Not feel guilty for allowing her to play on the computer or watch tv while I sit here drinking red wine and lurking on i-village ( i should be doing some floor time)
Not dread seeing or hearing about other "typical" kids her age
ask Reese a question and have her look me in the eyes and answer it, rather than the usual where I repeat it several times
forget autism and be totally clueless and just enjoy my daughter
I can completely relate, Teri!
I'll second the daily chores and toilet thing....
plus, I would like to add
For just one day I would like....
to be able to shop with my son at a store that does not sell toys, rocks or ice cream.
to be able to take a nap without interruption from school personell, PCA's calling in sick, doctors confirming appointments, county workers asking questions, or the neighbor coming over to ask about an odor/noise coming from our apartment (btw that last one hasn't happened...yet).
to listen to an entire
I like this thread too...
For ONE day I'd like to
a) cook a family dinner that everyone will eat that *I* actually like without having to mash things in, remove certain foods, ensure that other foods are not 'touching' things, or that the 'right' cups, crockery, silverware and chairs are being used
b) ask my 9 year old Aspie to do something, and have him just do it. Without argument, explanation, negotiation, reminders, or bribery.
c) be able to give a '5 minute warning' that we are about to leave, and have that actually mean 5 minutes, and it actually galvanise the 9 year old Aspie into actually putting his shoes on, removing them, putting them back on with the socks lined up the right way, and all the other things he has to do that use up the time that I have to keep reminding him to stop doing so we can actually, like, leave the house
d) have a conversation with my DH without being interrupted and asked for an explanation of something I've said that wasn't even said to the person demanding the explanation
e) have someone try and anticipate *my* needs, for a change....
f) have any of my children, including the NT ones,
"My definition of housework is to sweep the room with a glance"
Follow my blog on http://mumsnet.com/blogs/kirsteinr/
Do you mean to say that some people actually have family dinners without all that fanfare?
-Paula
visit my blog at www.onesickmother.com
visit my blog at www.onesickmother.com
Just ONE day I wish....
I could get both boys to school.
We were sarbed last year and this year I can't get Chris to either go to school, or to STAY at school cuz he constantily goes to the nurses office.
Ooohhhhh!! I like this thread!!!! A lot of it sounds just like my house!!!!
Just once I would like......
....for my DD to be able to invite a friend over after school to play. Right now her brother is just so unpredictable that I worry he will turn on one & someone will get hurt that isn't family
....to be able to ask for something to be done & just have it done without negotiation or payment
....to not be on guard all the time in case DS feels the need to attack his sister
....to be able to ask for something to be done (or to stop being done) without fear of getting hit, smacked, kicked or bitten for my trouble
....to be able to just go to the grocery store whenever I like without having to worry about being the centre of attention when DS goes OFF
....to be able to be invisible when the stares start in the shopping centre
....to be able to teleport home when DS needs to be restrained while we are out
....to go anywhere & not worry DS is going to be looked at the wrong way & swear at the accused
....to be able to go to family gatherings & friends parties without having to be ON all the time in case DS suddenly gets offended by someone or decides that.....say......jumping off the roof would be a good idea!!! (hasn't actually done it yet, ut give him time!!)
....to just relax!!!!!!
Thre are lots more, but most of you have already said them!!!
Okay, here's mine:
For just one day, I would like to NOT have to medicate my child just so he can get through one normal day at school.
Mollie
Just for one day I would like to be able to have a conversation with my children.
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