Decided no meds, plus some inspiration

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Registered: 01-19-2005
Decided no meds, plus some inspiration
4
Sun, 03-12-2006 - 10:18am

At least for now. After spending a lot of time on Medline and talking with all of you and others, we are foregoing the SSRI's for the time being.

Renee, I wanted to tell you virtually all the articles I pulled up on Medline bore out what you said. They may help at first, but if you go off them, the side effects may be worse than the original behavior. Plus the Journal of Psychiatry (I think) went so far as to say most of the studies were flawed, stick with ABA. I don't know about that, but there is enough question for me to say wait. It Eric's behavior gets much worst, I'll reconsider.

Then something happened, which seemed to tell me to go with my instincts, which are check out the biomed problems (esp. gastro) and add in ABA. This may seem a little "out there" but I took it as some kind of sign.

Back when we first decided to go GFCF I consulted with my aunt whose son has Celiac. She is also a psychiatrist and gave me lots of good advice. Well, the word got out in the family that we were doing this and another aunt sent me in the mail the sweetest thing. My Grammy, who died before Eric was born, had made notes to herself about the GF
diet to help her when she kept my cousin as a boy. (She even has a note that McD's fries are ok.) It's on one of those cutesie recipe cards like Grandmas like. When that came in the mail, I took it as a sign from heaven that doing the GFCF was the right thing for Eric.

I had sort of forgotten about it. I had put it in one of my cookbooks. I pulled the book to check something today and Grammy's card fell out. I took it as a sign to keep on the path and go with my instincts.

My Grammy was a fiesty, Irish, farm woman(dairy)loved all animals. She was also a registered nurse part-time, but I think of her more as part of the Earth, very organic, natural. DAN stuff is just the kind of thing that would have fascinated her. Being Catholic, she had 6 kids, (5 boys and 1 girl). I cannot imagine her energy! Today
I thought of her and my dog Jake, I am sure they adore each other!

I also thought of something someone told me around the time Eric was born. I was lamenting the fact that Grammy never met Eric who died just before he was born. My friend said, well, "she got to hold him before you did." And that has always
stayed with me. So I know it sounds sort of "out there" but maybe my Grammy knows something I don't and I should listen to these signs. Even if it is just some voice from within myself.

So, I've got recs for pediatric gastroenterologists who deal w/ASA kids and that's my next quest. Finding a good ABA person is next.

Thanks for "listening" to me this week. It's been a long one!

Katherine

Avatar for betz67
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Registered: 03-26-2003
Mon, 03-13-2006 - 11:30am

(((Katherine))) what a difficult couple of weeks you've had! I'm glad you were able to make the decision that feels right to you! the whole story about your Grammy made tears come to my eyes! how sweet and settling that is to feel that you've had a sign to make you feel better about your decision.

Betsy

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Registered: 03-26-2003
Mon, 03-13-2006 - 5:42pm

Katherine

(((HUGS)))). These decisions are never easy. I am really touched by the sign you had. I have stuff happen like that to me often too.

In fact, here is a wild one. My dad passed when I was young. I have always known he was watching over us. On my wedding day there was a huge rainbow right outside the window where the head table was. There was also a rainbow on the day Cait was born outside my hospital window and a rainbow on my way to the hospital when Mike was born. Not on the same day with Emily and Dave but within a week I saw one. I think grandpa was keeing an extra eye on Cait and Mike cause he knew they were special.

Renee

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Registered: 01-19-2005
Tue, 03-14-2006 - 11:31am

Dear Betsy and Renee,

Thank you for letting me share with you and for sending your hugs and thoughts my way. Renee, the rainbow story made me cry too. I have always thoughts of rainbows a special signs too.

I really appreciate having you all to share me feeling with. I seem to need it more these days!

Katherine

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Registered: 03-26-2003
Tue, 03-14-2006 - 3:46pm

Katherine, good luck with the plans you have started to put in place.....if you are at peace with your choice then it is a good one. I loved the story about the sign from your beloved Grammy.....too sweet! Let us know how things progress.....I have been researching medication for my son as well.....I am leaning towards no meds but I still have not made an official decision.

Katherine and Renee....my grandfather died when I was 2. My mom swears that she sees him at special occasions all the time.....my brothers first communiun, my wedding, etc. She said she sees him out of the corner of her eye standing, watching and smiling. When she looks directly at him, he is gone. I too believe they watch over us.

Christie