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Avatar for littleroses
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Registered: 03-28-2003
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Wed, 12-22-2010 - 12:51am

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Avatar for hokie1999
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Registered: 03-27-2003
Wed, 12-22-2010 - 11:42am

That's really interesting. My 9 YO has anxiety and can be very difficult, short tempered and extremelly moody. No muscle tone issues though. I'm depserate to regulate his moods a bit. So far we haven't tried meds, he has a heart defect and I'm leery of meds. It may be worth asking his docs about the amino acids.

Avatar for littleroses
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Registered: 03-28-2003
In reply to: littleroses
Wed, 12-22-2010 - 2:12pm
Avatar for hokie1999
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Registered: 03-27-2003
Wed, 12-22-2010 - 4:52pm

I'm really glad it's helping her. I definitely wouldn't try anything without consulting his doctors. I'm pretty careful about meds and supplements. He's currently in OT and also in regular therapy, and will be doing a self regulation group that our local university (and his OT provider) is starting in January. I really think that will help him some. The anxiety is hard to deal with. It looks like tantrums, and he just looks like a spoiled kid but it's really that he has a hard time with things he can't control. I only hope he gets better as he gets older.

Avatar for littleroses
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Registered: 03-28-2003
In reply to: littleroses
Wed, 12-22-2010 - 5:21pm
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Registered: 10-03-2004
Wed, 12-22-2010 - 8:15pm

Hi LR,

Yes many have moved to facebook.

Avatar for hokie1999
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Registered: 03-27-2003
Wed, 12-22-2010 - 11:20pm

Thanks for the encouragement. I really hope he calms down. He's had 2 heart surgeries and will need more.

Avatar for littleroses
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Registered: 03-28-2003
In reply to: littleroses
Thu, 12-23-2010 - 2:18am
Avatar for littleroses
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Registered: 03-28-2003
In reply to: littleroses
Thu, 12-23-2010 - 2:38am
Avatar for hokie1999
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Registered: 03-27-2003
Thu, 12-23-2010 - 7:40am

Wow, that's crazy that she has it too! Liam was diagnosed at age one. It was kind of incidental but a lot of things made sense after diagnosis- screaming while pulling at the back of his head, difficulty sleeping, late on milestones. He's now 5 and the headaches contine, a few a week. But tylenol works and no syrinx at this point so no surgery. He vomits frequently- if he gets very upset, if he bumps his head hard, if he gags on food. Then he's fine, it's like hitting a reset button. He's having a sleep study done tonight. He's been waking so much at night and I've seen some breathing pauses. They will likely do the surgery if he has central apnea. Symptoms do seem to be increasing so it just may be time. He hasn't been tested for EDS or anything like that. He does have extremely soft skin though. As for his herniation, it's 7 mm and his flow is mildly blocked. Hopefully it won't be time for surgery but I suspect it will. The inversion table treatment sounds amazing, I'm glad it helped for her!

iVillage Member
Registered: 02-02-2009
Wed, 01-26-2011 - 2:47pm
Hi Sara,
I'm relatively new to Facebook, mostly have used it to post pics for family but I am not on very often. Can you tell me about how to connect with other members on FB?
Is posting similar to the setup here?
Thanks.
Ann

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