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Avatar for littleroses
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Registered: 03-28-2003
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Wed, 12-22-2010 - 12:51am

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iVillage Member
Registered: 05-05-2003
Thu, 01-27-2011 - 1:01pm
Thank you for posting this!
Avatar for littleroses
iVillage Member
Registered: 03-28-2003
In reply to: littleroses
Wed, 01-26-2011 - 5:03pm

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Avatar for littleroses
iVillage Member
Registered: 03-28-2003
In reply to: littleroses
Wed, 01-26-2011 - 4:51pm
iVillage Member
Registered: 02-02-2009
Wed, 01-26-2011 - 2:54pm
Hi Littleroses, thanks for replying to my pp with this info. I went to the site and printed off the info, and am having my sons' doctor review it. I hope to try these BCAA's for him to see if they give any relief.

If you don't mind my asking, what med is your daughter on for anxiety? Brennan seems to be on edge as well, often yelling answers to questions and easily upset. He's having a tough time at school, can't seem to focus and bringing more homework home that he didn't get done during class.
We are seeing the doc Friday and wondered about trying an evening med. He used to do Seroquel, then we stopped it for a time, but when we tried to start it again it made matters worse. He takes Vyvanse for ADHD daytime, but no night meds. We may up the dose or change, as it doesn't seem to be working properly.

On a side note, when your daughter started changes of puberty did she get incredibly stinky feet just starting out of the blue? We are dealing with that now and wondering what the cause is...

Ann
iVillage Member
Registered: 02-02-2009
Wed, 01-26-2011 - 2:47pm
Hi Sara,
I'm relatively new to Facebook, mostly have used it to post pics for family but I am not on very often. Can you tell me about how to connect with other members on FB?
Is posting similar to the setup here?
Thanks.
Ann
Avatar for hokie1999
iVillage Member
Registered: 03-27-2003
Thu, 12-23-2010 - 7:40am

Wow, that's crazy that she has it too! Liam was diagnosed at age one. It was kind of incidental but a lot of things made sense after diagnosis- screaming while pulling at the back of his head, difficulty sleeping, late on milestones. He's now 5 and the headaches contine, a few a week. But tylenol works and no syrinx at this point so no surgery. He vomits frequently- if he gets very upset, if he bumps his head hard, if he gags on food. Then he's fine, it's like hitting a reset button. He's having a sleep study done tonight. He's been waking so much at night and I've seen some breathing pauses. They will likely do the surgery if he has central apnea. Symptoms do seem to be increasing so it just may be time. He hasn't been tested for EDS or anything like that. He does have extremely soft skin though. As for his herniation, it's 7 mm and his flow is mildly blocked. Hopefully it won't be time for surgery but I suspect it will. The inversion table treatment sounds amazing, I'm glad it helped for her!

Avatar for littleroses
iVillage Member
Registered: 03-28-2003
In reply to: littleroses
Thu, 12-23-2010 - 2:38am
Avatar for littleroses
iVillage Member
Registered: 03-28-2003
In reply to: littleroses
Thu, 12-23-2010 - 2:18am
Avatar for hokie1999
iVillage Member
Registered: 03-27-2003
Wed, 12-22-2010 - 11:20pm

Thanks for the encouragement. I really hope he calms down. He's had 2 heart surgeries and will need more.

iVillage Member
Registered: 10-03-2004
Wed, 12-22-2010 - 8:15pm

Hi LR,

Yes many have moved to facebook.

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