Diagnosis? more...

iVillage Member
Registered: 04-17-2003
Diagnosis? more...
2
Wed, 07-30-2003 - 2:04am
Hi,

Where did you go to get diagnosis?a Psychologist?Psychiatrist? Dev. Ped.? Dev.Neurologist?or we're you satisfied with the diagnosis the first time? Please share your experiences.

We are currently seeing a PhD,he Dx my ds with Pdd-nos with adhd(inattentive type) I'm doubting the adhd, I'm thinking it's just part of the pdd-nos, generally my ds is good at home, we get a couple of whine here and there, and occassional tantrum, but nothing that a 2 minute time-out can't resolved.we're going to see a Dev. Ped. on Aug. at our Local Children's Hospital to see what he says.I've done so much research about the disorder that there's not much that the PHD tells me that I don't know yet.We've seen him about 4 times so far, and we're scheduled to see him again in Sept.provided he sent a written report of Medical necessity to my Ins. 'cause they only allow 4 meetings without any written report.

With a Dev. Ped.How many appointments do you have to go to before he give the diagnosis?

TIA,

C.

iVillage Member
Registered: 07-11-2003
Wed, 07-30-2003 - 5:25pm
Hi again, :)

We actually had to struggle to get Jade's dx. We weren't aware of the level of ASD in our family until she was a few years old. She is our lowest functioning person on the Spectrum, everyone else just seemed 'odd' to me (Okay, so DID know something was wrong with DH, LOL)

She was first dx'd with generalised brain damage, unchatable mental retardation, and several physical disablities by the Navy Hospital in San Diego(they no longer have this service I hear). This happened somewhere between birth (she was 9 weeks premature) and age 3. But it was at age 3 that she started NOT fitting the dxs given to her. I asked about classic autism and I was told that she didn't have it because she was 'freindly enough'. Until that point she had been almost completely non-verbal. They had told me she would never learn to talk because her brain damage from the traumatic pregnancey effected her speech centers. THIS is why they call it 'practicing' medicine. LOL. At 3 she started talking, saying simple words, joining single words to actions, asociating her basic raw language to the things around her, etc. By 4 she was speaking in broken sentances, relaying complete thoughts and ideas with a mix of verbalization, pics, and gestures, etc. By 5 she used complete sentances, relayed detailed ideas and concepts, but she had zero conversational skills, her basic cognative abilies were still low in most areas and yet she could understnd the hows and whys of the Saturn 5 rockets and every other part of the Apollo Space Program.

During that 2.5 years from 3 to 5.5 we had swithed drs 4 times. Each time I asked about autism and each time I was told she was 'too friendly'. It was also during that time that I got my phd in ergomnuemonics with an extended specialty in ADHD. I saw the ADHD in Jade very clearly. But I still felt she was on the spectrum. It was also during this time that I met my current DH and remarried. I was able to transfere Jade to his ins and get things going through his HMO. This was my first actual experiance with a dev ped as a parent. I had written numberous referals to them, but I had never actually had the chance to get Jade in with one.

I didn't mention autism on the first visit, I just listed our reason for seeing him as "developmental delays". After 20 minutes with her and hearing about how she acted at home he said he wanbted to get a full ASD reviw. YIPPPY! A dr with a clue!. She saw him 3 times, the nuro twice, and a few other drs to rule out other things (like delays due to her vision impaiment). It took about 4 months all together seeing all those drs. But she was eventually dx'd with HFA. She saw the nuero regularly for several reasons, but he eventually moved and we had to get another one. THIS one was great! ASD runs in his family so he was very familiar with it form both sides of the fence. After reading through her records and meeting her a few times he said he thought she was more Asperger's than HFA and that her verbal problems were delays caused by her premture birth. He assigned us to do various activities at home with her then saw her again after a a few months. He looked at our logs of the activities and said "Ya know, this girl is deffinately and Aspie. She's kinda in between AS and HFA....oh btw, your husband's an Aspie too and so is your grandmother." He immediately set about doing a Family Histories Eval and our family lit up like an Asperger's Christmas tree.

But this was almost 4 yeas ago, her official dx was modified to AS last year though. In that time drs in general have become more aware of what the Autistic Spectrum is and how sneaky it can be. They've had the opportunity to see how it interacts with comorbid conditions, like ADHD, and they know better what to look for. Today, dev peds usually come up with a dx in about 3-5 visits. But remember this, only an autism specialist can rule ASDs out altogether.

As far as the ADHD in your son, I say go with your gut. It has been my experiance that 9 out of 10X kids with a little too much energy at school are dx'd as ADHD when they don't actually fit the bill. If he is controllable at home then I would doubt he actually has it. But then, I have my own theories on ADHD too, and a lot of my contemperaries don't agree with me, even when faced with genetic eveidance.

LOL, I ramble again. Sorry. I hope I made some sort of sence

Candes (who has ADHD, PBD, and few other little things)

iVillage Member
Registered: 04-17-2003
Thu, 07-31-2003 - 1:47am
Thank you Candes, Yes, we're definitely going to see this Dev.Ped. he specializes on kids with Dev. delays,Pdd's and Autism, he was the pres. of the Children's Hosp. a while back, now he is the Chief of Pediatrics.When I read about Asperger's, I thought tis fits my son perfectly, and my dh said that he reminds him of the time when he was he's age. my ds was 2 more than 2 weeks early, he had echolalic speech before he attended the special-ed preschool, after a year of the sp.ed, he now speak in full sentences, but still doesn't have any conversational skills like the kids his age.Generally he is good at home, it's only when he's with a crowd that he gets uncomfortable, which is typical for a person within the spectrum.

Thanks again for sharing,

C.