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Did it
| Thu, 09-28-2006 - 12:40am |
Took the big med jump.
ultra small risperadol dose as needed. So just in preparation for stressful times and hope it helps. This way we will have it to send with him to camp next week.
She wants me to try 1/2 of a 0.25 pill once a day and 1 0.25 pill once a day. I tried the half today and it helped some but not a huge difference. I could definitely tell he had more patience with his brother but i think the whole pill will be better. We try that tomorrow.
Down the slippery slope we go.
Renee


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Good luck!
Big hugs, Renee,
This must be particularly hard for you because Mike had such a rough ride on them when he was younger, but there is no guarantee it will be the same for him now that he is bigger and older. The med thing is So scary. There just isn't enough research on what this can all mean and if anything wil work and why.
Malcolm is still on Zoloft. I think about taking him off it now that he is not in school and doing very well. The main thing we see is that he gets so exhausted and needs so much more physical stimulation. But also he is very connected and participating in life so much more. And when he gets angry, he is much MUCH more accessible and able to use reason. But then I wonder, is that just maturity now? Still, he's been on it since last April and really he is a different kid.
In fact, having my mother here has been helpful because she only sees him a few times a year and she is in amazement at the change and growth in him, so that's reassuring.
Anyways, I am crossing my fingers for you and Mike. Hadn't you tried this med before and thought it was a good possibility? I seem to remember that.
Sara
Good luck, Renee, just take baby steps with it, like you are. I know this is a hard decision for you. I am also keeping my fingers crossed for you and Mike.
Hugs,
Katherine
good luck +++ I hope it helps.
Just wondering if you are still doing the supplements with Mike? We took Hannah off of the 5-HTP. We didn't see any difference at home when we took her off.
Samantha
I'm not surprised half of 0.25 did so little; that is a teeny tiny dose.
yup, see, zoloft was one we tried. Made him impossibly hyper and impulsive. That one lasted a very short time.
We have never tried risperadol. Prior to the low sugar/organic diet Mike had big food issues. He would forget to eat or obsess on food. If he had to eat it had to be RIGHT NOW! I was so afraid that we would have even bigger behavior issues over food with risperadol as well as the weight gain.
It is really stupid I know, but the kid has so many strikes against him socially that I couldn't bear the thought of him being really over weight. He is slendar and pretty darn cute. He has a hard enough time with teasing that it was like one of those final straw things I couldn't handle.
At any rate, with his current diet and food being less of an issue I think we will be ok.
Renee
I have been trying to take him off the 5HTP but he will have nothing to do with that. It is his routine now and one I am having a hard time getting rid of. Literally last night before bed he could not sleep and was near crying because I kept trying to tell him he didn't need it if he took the new pill from the doctor.
He is going to need the doctor to say to him not to take it anymore. We go back in 3 weeks and I will ask her to do just that. I see a bit of a difference with it, but I also see the bug phobia creeping back in so it isn't worth it.
However, on the risperadol last night, Mike killed a bug in his room on his own and cleaned it up. No screaming, no meltdown. I don't know if it was the med but it sure was a nice change. I heard him up and went to check and that is when I found out. Usually if he sees a bug the whole house knows.
Renee
well, risperadol is one of the only ones tested for autism and I think they were working on getting it approved for ASD's. Mostly I have heard it works on the behavioral component (outbursts, rages). It is just the TD and the appetite that scare me. My kids like to try to make sure they hit all the side effects of meds to test them out.
Trileptal was the first where I hadn't seen a side effect and then Cait decided to do the double vision thing, etc. Seems better now but jeez.
Renee
Yeah, that's why the pdoc suggested risperdal as it has had good trials with the asd community.
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