I also thought the "cured" boy was still very spectrum - even said so out loud to DH at several points. I mean, that's fantastic that he was able to to make such progress, but - no, I wouldn't consider him cured. Still, nice to show that through therapy there can be hope.
Temple Grandin was great to watch, I'd never actually seen her before. I enjoyed watching her as much this evening with DH as I did this morning. Read some articles by her online this afternoon - interesting observations. I'll definitely be checking out more of her stuff.
I agree that The View bit off a lot of material... more than they could practically chew in an hour. But I agree that it was honorable to devote an hour to such an important topic, and to cover the various aspects of the spectrum.
I also felt a little uneasy about having the parents talk right in front of the children, but then I wonder if maybe that's something that the children have quasi gotten used to? I don't know if there's necessarily another way for us to hear their story and meet them without SOMEONE telling the story right in front of the child. Tough call.
As far as Toni, she definitely still seems to be grieving deeply. As is totally normal, of course. She actually looked as though she was going to hyperventilate at one point, and then she started exhaling slowly through her mouth. My heart goes out to her and all the parents on there.
All in all, I enjoyed today's show and appreciate The View's effort in putting it together.
Two things - today was also the first day I cried since my DS was diagnosed. Granted, his diagnosis came last week, but I've "known" for a while. So, I wanted to say you weren't alone in that.
Also, that book was called: The Autism Acceptance Book: Being a Friend to Someone With Autism by Ellen Sabin. From what I've seen, it's very well reviewed by people who've read it. Hope that helps!
I just finished watching the segment with the child they called recovered or cured. Some of you have said you still see spectrum behavior. I don't see it. He carried on a good on topic conversation. If they'd asked Kyle do you remember when you were in your own world he'd have said yea but there is this one episode of the fairly odd parents where .......on and on...... and on..... The boy in the segment had good eye contact, he wasn't stimming with his hands or rocking or stairing at the lights. So what did I miss that you guys see?
The first twin boys that were on, the one with pdd-nos reminded me so much of Kyle when he was moving his hands the way he did and got his face up real close to his Dad. I laughed out loud cause it looked just like Kyle. Kyle is way more verbal though.
Anyway, I'm really glad they did this show, despite any little flaws we might point out. (them talking in front of their kids bugged me too)
As I never, ever have TV on, it is interesting to hear about what I am missing... But it would have been of interest to me to watch that boy, as a point of comparison to my ds.
Every child is so different, though. Malcolm and most of his buddies would be able to carry on an on-topic conversation, esp. if they had been prepped, seems likely that child was prepped given the circumstances. Actually, on TV, they prep EVERYONE usually, esp. on big magazine shows like that one, which are under intense time constraints with an audience.
And Malcolm would be chewing gum, maybe tapping his foot. And he sure might be a little OVER-animated when talking. This would be why many people might think Malcolm is "cured", and many evaluator-type people do not think he is on the spectrum. But the troubles he has in life are from missing social cues, his sensory system goes out of whack when he's too over-stimulated, tired, hungry, confused.
Keep his world within his abilities and he is very, very able to function extremely well.
I have it recorded on my Tivo. My Tivo is set to automatically record anything on Autism or Selective Mutism. Love Tivo! I'm sorry, I don't know if its on their web site.
That is so funny you said that Joe (the PDD-NOS twin) reminded you of your son as the EXACT same behavior was what made me laugh and go "oh my gosh, that IS Riley!" (my son) The moving up close, playing with his dad's fingers, chin to shoulder, slight jutting out of the chin, little bit of vibration. I watched that section 3 times between watching it initially and then watching it with my mom and DH, and both my mom and DH remarked how much it was just like my DS as well. How funny that our sons are so alike.
I guess the "still spectrumlike" behavior I felt was a lot of deliberate type stuff - his style of speech was still not typical of a 10 year old, when he outstretched his arm to touch his mother and share a kind of tender moment, that didn't seem like a typical social mother/son type moment either. I can't put a finger on what it was - it just seemed odd, and still kind of awkward. I don't doubt for a second that he has made great, great strides. But I just still saw some fleeting, tell-tale signs of some spectrum issues. Just my opinion.
Isn't Tivo great? I will have to set mine up to net in all the autism stuff now. Do you have a link to your son's story on here? I have yet to post my son's, I'm still relatively new here. I'd like to start familiarizing myself with everyone's case here since I have a feeling I'll be here for a while. :)
I missed the View episode yesterday, so I can't really comment on it. I had no idea that you could set Tivo to record by subject! I'll have to check that out.
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Echoing a lot of what's already been said...
I also thought the "cured" boy was still very spectrum - even said so out loud to DH at several points. I mean, that's fantastic that he was able to to make such progress, but - no, I wouldn't consider him cured. Still, nice to show that through therapy there can be hope.
Temple Grandin was great to watch, I'd never actually seen her before. I enjoyed watching her as much this evening with DH as I did this morning. Read some articles by her online this afternoon - interesting observations. I'll definitely be checking out more of her stuff.
I agree that The View bit off a lot of material... more than they could practically chew in an hour. But I agree that it was honorable to devote an hour to such an important topic, and to cover the various aspects of the spectrum.
I also felt a little uneasy about having the parents talk right in front of the children, but then I wonder if maybe that's something that the children have quasi gotten used to? I don't know if there's necessarily another way for us to hear their story and meet them without SOMEONE telling the story right in front of the child. Tough call.
As far as Toni, she definitely still seems to be grieving deeply. As is totally normal, of course. She actually looked as though she was going to hyperventilate at one point, and then she started exhaling slowly through her mouth. My heart goes out to her and all the parents on there.
All in all, I enjoyed today's show and appreciate The View's effort in putting it together.
I watched, with my notepad and pen in hand. Today was the first time since I found out my DD has Aspergers that I cried.
Chanel,
You're thinking of Temple Grandin.
Chanel,
Two things - today was also the first day I cried since my DS was diagnosed. Granted, his diagnosis came last week, but I've "known" for a while. So, I wanted to say you weren't alone in that.
Also, that book was called: The Autism Acceptance Book: Being a Friend to Someone With Autism by Ellen Sabin. From what I've seen, it's very well reviewed by people who've read it. Hope that helps!
I just finished watching the segment with the child they called recovered or cured. Some of you have said you still see spectrum behavior. I don't see it. He carried on a good on topic conversation. If they'd asked Kyle do you remember when you were in your own world he'd have said yea but there is this one episode of the fairly odd parents where .......on and on...... and on..... The boy in the segment had good eye contact, he wasn't stimming with his hands or rocking or stairing at the lights. So what did I miss that you guys see?
The first twin boys that were on, the one with pdd-nos reminded me so much of Kyle when he was moving his hands the way he did and got his face up real close to his Dad. I laughed out loud cause it looked just like Kyle. Kyle is way more verbal though.
Anyway, I'm really glad they did this show, despite any little flaws we might point out. (them talking in front of their kids bugged me too)
Samantha
Where is that segment? I tried to find it yesterday out of curiousity and couldn't.
Renee
As I never, ever have TV on, it is interesting to hear about what I am missing... But it would have been of interest to me to watch that boy, as a point of comparison to my ds.
Every child is so different, though. Malcolm and most of his buddies would be able to carry on an on-topic conversation, esp. if they had been prepped, seems likely that child was prepped given the circumstances. Actually, on TV, they prep EVERYONE usually, esp. on big magazine shows like that one, which are under intense time constraints with an audience.
And Malcolm would be chewing gum, maybe tapping his foot. And he sure might be a little OVER-animated when talking. This would be why many people might think Malcolm is "cured", and many evaluator-type people do not think he is on the spectrum. But the troubles he has in life are from missing social cues, his sensory system goes out of whack when he's too over-stimulated, tired, hungry, confused.
Keep his world within his abilities and he is very, very able to function extremely well.
Sara
I have it recorded on my Tivo. My Tivo is set to automatically record anything on Autism or Selective Mutism. Love Tivo! I'm sorry, I don't know if its on their web site.
Samantha
Samantha,
That is so funny you said that Joe (the PDD-NOS twin) reminded you of your son as the EXACT same behavior was what made me laugh and go "oh my gosh, that IS Riley!" (my son) The moving up close, playing with his dad's fingers, chin to shoulder, slight jutting out of the chin, little bit of vibration. I watched that section 3 times between watching it initially and then watching it with my mom and DH, and both my mom and DH remarked how much it was just like my DS as well. How funny that our sons are so alike.
I guess the "still spectrumlike" behavior I felt was a lot of deliberate type stuff - his style of speech was still not typical of a 10 year old, when he outstretched his arm to touch his mother and share a kind of tender moment, that didn't seem like a typical social mother/son type moment either. I can't put a finger on what it was - it just seemed odd, and still kind of awkward. I don't doubt for a second that he has made great, great strides. But I just still saw some fleeting, tell-tale signs of some spectrum issues. Just my opinion.
Isn't Tivo great? I will have to set mine up to net in all the autism stuff now. Do you have a link to your son's story on here? I have yet to post my son's, I'm still relatively new here. I'd like to start familiarizing myself with everyone's case here since I have a feeling I'll be here for a while. :)
I missed the View episode yesterday, so I can't really comment on it. I had no idea that you could set Tivo to record by subject! I'll have to check that out.
Misty
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