To do or not to do the skin prick test..

iVillage Member
Registered: 04-17-2003
To do or not to do the skin prick test..
3
Thu, 08-28-2003 - 7:07pm
Hi,We had our ds (5.4 Pdd-nos/HFA) tested for food allergies(the 6 most common, like wheat, baker's yeast,corn,egg,milk, and soybean.) we also got him tested for casein,gliadin-(is this similar to gluten?) and antibodies. Now the Allergy Doctor, who also specializes in environmental allergy,(histamine?) also recommended the skin prick test, they said they'll be testing him for several molds, trees, pollen, cats,dust allergens ( nothing on Food) it will probably be like 8-10 of them.My question is, what does that have to do with autism? or on how his brain work? We know that my ds probably has some mold allergies, but we haven't noticed any bad behaviors during those times, he doesn't even seemed to be bothered by it,it is a little prevalent during the allergy season of course, and we also lived in WA state, where it rains more, seems to me like everyone here has some form of allergy, I myself seems to be developing some mold allergies.I asked the PHD we're seeing on the relevancy of the testing and he can't provide any answer.I could see the need for the testing if they're testing for a specific food allergy. Am I right on this? The PhD gave me a copy of the article about this toddler who started losing his speech when he was exposed to the toxic molds in the house they bought, his parents also started doing the same thing. I doubt if my ds was exposed to something similar, our house is fairly new.Any inputs?I don't want to subject my ds to any more testing if it's not necessary.we're scheduled to do this on Oct.7 for like , 2 hours, then a meeting with the Doc. to discuss the results of all the testing prevously done.This testing are really expensive too, I have ins. but since the lab they used is out of my plan's network they only covered 60%(Iga, antibody testing),the bloodwork is not covered bec. it's still experimental, and investigational, I don't know about the skin prick test, I called my ins. and they said there is no limit, PPO is covered 100% provided it is ordered by an M.D. and medically necessary, from which I understand is the worse case scenario, like those who has severe allergies, and require the shot? which is not true in my ds's case.I'm really torn, if we don't do it, it will make me feel that we left-out something, but on the other hand, I'd rather I spend the money on some good educational materials, which I'm sure will benefit him.Any advice please?

TIA,

C.

Avatar for maresgood
iVillage Member
Registered: 03-27-2003
Fri, 08-29-2003 - 1:04am
Hi, I'm an R.N. & have been exposed to traditional medicine, osteopathic medicine & alternative medicine in the last 25 yrs. I live in Ca. & have seen a lot of alternative medicine (mostly oriental). Why is your allergist a PHD & not an MD or DO? Are you exploring an alternative route? I think alternative medicine can help in certain diseases and have a friend who has been helped by an Oriental med. doc. I think what your allergist is suggesting is alot of expensive & questionably necessary tests. I would be leary of all this testing if it were me. What does this have to do with Autism? I have a dd with AS & have been doing lots of reading on Autism. I have read where mega doses of B vitamins help also. Who know? What good studies have been done? I have not heard of an allergy-autism correlation. I would also question your doc about this & have him enlighten you. I would hate for you to be taken advantage of by some "Quack". Just my two cents... Mary Ann
iVillage Member
Registered: 04-17-2003
Fri, 08-29-2003 - 2:31am
Thanks for your input, you echo my thoughts exactly, my dh was the one who took him to the allergy Doc. who is recommended by the PhD we're currently seeing,We're looking into dietary intervention such as the gfcf diet, I'm a little skeptical about it, because my ds is manageable, meaning, he doesn't have a very disruptive behavior,I haven't started doing the diet bec. of my skepticism, I don't want to do anything drastic in his diet untill I find out if it will benefit him at all,it will be a very traumatic experience not only for him but for me also.we decided to do the testings first to rule it out, we still haven't got the results, we will find-out the same time as when they do the skin prick testing-that is if we decide to do it. I have done a lot of reading about autism myself, and haven't read about doing the environmental allergy testing, like I said what does that have to do with Autism? I agree with what Barb Kirby, and Pat (author's of Oasis guide to Asperger's syndrome)that the people who recommends it,are the ones who benefited from it, and in case of Doctor's-the one's who practices it.I also read a book forgot the title, that I should be leery or watchful for Providers who orders unecessary test. this testing is one of them.we're looking at $60.00 per dilusion on those skin prick test, so if they do 10 of them, that'll be like $600.00 + Doctor's follow-up fee, this is if my ins. don't help cover them.I read about skin prick testing too, that it could be for almost just about any kind of testing, but when I asked the nurse at the allergy clinic, if there will be a food allergy test to be done, she said none.My dh, never ??? the Doc., I regret not going with them, if I did, I will question everything.But I did manage to squeeze some info. from the nurse when I called them, my dh did call them too, and they gave him the run-around.they did the bloodwork for food allergies, and stool for antibodies, Iga), it still cost us $375.00 with some ins. coverage applied.

By the way, we also took my ds to a Developmental Ped.and his Dx is HFA,and since my ds already is receiving the services from the school district it's just like a follow-up or second opinion, he did say that Dietary intervention is still experimental, and investigational and din't even recommend it.He and the social worker basically said that we keep doing what we're doing, and that they'll see him again in 3 years, and that with proper help and intervention which we're already doing he'll be just fine.

TIA,

C.

iVillage Member
Registered: 06-25-2003
Sun, 08-31-2003 - 10:12am
I have the opposite problem! I have been trying to get my doc to test for the gulten/casein thing and he refuses! (www.glutenfeee.com has some info on this BTW)

However on the skin prick test: It could be that the doc is just trying to be thorough, and round out all the testing. Unless you feel there is a need for the testing, don't go ahead with it. It could mean a lot of stress that your ds does not need right now. My dd (3) had this done, and she screamed her little head off. It was NOT fun.

and she tested negative for everything.

good luck

-Paula

-Paula

visit my blog at www.onesickmother.com