Doctors out of ideas - 2 kids with PDD & ADD
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|Thu, 08-02-2012 - 2:58pm|
I have two kids who have been dx with PDD-NOS and ADD - 6 & 9. We have been through the gamut of ADD meds and nothing works and their doctors have pretty much thrown up their hands and said they don't know what else to try, which has been massively frustrated because pretty much everything on their IEPs tie back to lack of attention span. They've both extremely smart but can't apply it do to lack of attention.
My oldest has been on all sorts of meds. The stimulant ones either make him aggressive (he's aggressive even without but this amplifies it) or it makes him an emotional basket case. He was on Strattera for a long time and it seemed to help a little but when we switched from a developmental ped to a psych she took him off and felt it was contributing to the aggression as well. The only one we saw any benefit from was Daytrana - his teachers actually saw noticible improvement. But the patches themselves left huge red squares that would take weeks to go away and would itch so bad he would end up in the nurses office sometimes a few times a day for ice or benedryl cream to make it stop. So we had to give it up - both hips and back were just one itchy, flakey, red blob. Right now he's on tenex and abilify but it's not doing anything. He went to summer school and his teachers said even sitting with him they couldn't keep him focused and didn't get anything out of him. His doctor is out of ideas. He's going to fall way behind if we don't get his attention under control, but I don't know what to do. We tried the diet a few years ago and that did nothing but give him eczema and cause him to lose weight that he can't afford to lose. What do I do when all the "experts" give up?? The school does what they can but they can only do so much.
My middle child was dx last fall with PDD and ADD. He's just always off in his own world. He's constantly moving. He did good in preschool but then started kg last year and wouldn't speak to anyone - his para thought he was mute. He wouldn't draw or write so they assumed he couldn't until I showed them pictures he'd drawn and my grocery list he had added things to. We tried Strattera and it didn't do squat. He's now on ritalin but his teachers saw absolutely no improvement and over the summer I can see that he's just off in lala land most of the time. He's still not 100% toilet trained. He did great for about 2 months at the beginning of the summer but now it back to several accidents a week. He starts 1st grade in a few weeks and will be at school all day. I don't know how he'll get through the day when he couldn't manage half day kg. His doctor has also pretty much said he doesn't know what else to try with him.
These doctors just give up and act like this is just how they are and we'll have to accept it. But I don't want my kids to fall behind just because of this when I know they both have the ability and intelligence to be amazing if they can just focus. At some point the school will have to stop passing them on to the next grade.
What else can I do? As I said, the school gives them every accommodation they can but it's just not enough. The doctors just give up. I feel like I'm out of options to help my kids. Any ideas??