Does anyone else

iVillage Member
Registered: 07-20-2002
Does anyone else
5
Fri, 02-26-2010 - 6:57pm

just feel completely alone?

Because Matthew is so high functioning, people forget that he IS ASD. The school doesn't understand why his hair isn't always cut, why his nails get long sometines, why his ears aren't cleaned out sometimes. My family forgets to give me warnings at family get togethers, so there is no family picture including me and Matthew...as I am often trying to pry him out from under a table or something since I only got a two minute notice and I tried to transition him from playing to getting pictures taken. My friends forget that when he is acting hyper, it is likely because his anxiety level is up,and he isn't trying to be a pain.

Nicole confuses people. Her school assumes since she is "smart", she is lazy and spoiled. That the reason she cries is to manipulate situations. She is not capable of that type of action. They forget that her capabilities change minute by minute. One time she may be capable of a math concept. The next time she has no clue what she is doing. One time she may be ok to write three paragraphs on a topic. Another time it may look like a Kindergarten child did the work. That due to the NVLD she processes verbally. Except that her verbal working memory impairment negates that strength. My family thinks she just needs more discipline. My friends don't have a clue.

I don't have a s/o to talk things through with. No one who can see what happens in this house daily. I am tired. And it just seems like no matter how hard I try, I feel like I must be doing something wrong.

Ugh. Ok...this just turned into a big pity post LOL...sorry!

Kelly, single mom to


N, 11 years old, Bipolar, ADHD, Anxiety Disorder, Sensory Regulatory Disorder,Non Verbal Learning Disorder, Developmental Coordination Disorder, Complex Partial Epilepsy,Verbal Working Memory Impairment.


H, 9 yrs, Very active. And very typical too LOL!


M, 7 yrs, Anxiety Disorder, PDD NOS.


Kelly, single mom to


N, 11 years old, Bipolar, ADHD, Anxiety Disorder, Sensory Regulatory Disorder,Non Verbal Learning Diso

iVillage Member
Registered: 06-25-2003
Fri, 02-26-2010 - 11:56pm

yes I feel very alone sometimes but for different reasons. No-one else I know or have heard of has suimilar medical issues to me.

So ((((hugs)))) we can be completely alone together.

-Paula

visit my blog at www.onesickmother.com

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 09-13-2008
Sat, 02-27-2010 - 12:58am
Add me too. My family just does not get it. I'm really tired of trying to explain it to people. I have pretty much given up and I don't trust anyone to care for my son but me.
5 yr siggy
Photobucket
iVillage Member
Registered: 07-20-2002
Sat, 02-27-2010 - 6:28pm

I have to admit, I haven't heard of anyone with your particular mix either...

I hate that no one seems to truly "get it"...kwim?

Kelly, single mom to


N, 11 years old, Bipolar, ADHD, Anxiety Disorder, Sensory Regulatory Disorder,Non Verbal Learning Disorder, Developmental Coordination Disorder, Complex Partial Epilepsy,Verbal Working Memory Impairment.


H, 9 yrs, Very active. And very typical too LOL!


M, 7 yrs, Anxiety Disorder, PDD NOS.


Kelly, single mom to


N, 11 years old, Bipolar, ADHD, Anxiety Disorder, Sensory Regulatory Disorder,Non Verbal Learning Diso

iVillage Member
Registered: 07-20-2002
Sat, 02-27-2010 - 6:37pm

No one watches my kiddos either.

My one sister openly dislikes my children,and blames them for anything that may happen(in December I had to go to a work related conference. I got a phone call that "your children knocked down my christmas tree". *sigh* later I found out the whole story...my sister was outside talking to a friend(a huge no no...they need constant supervision),and her 11 yr old son started chasing them around her living room. Since she has blocked access to my kids to the rest of the house, they ran into the corner...where the tree was)

My other sister has a one yr old and her boyfriend can't handle Nicole's behaviours.

My mom just doesn't babysit, or take her grandchildren. Ever.

And there are no babysitters qualified to watch them. LOL...not that I could afford to pay them if I did find someone anyway....

Kelly, single mom to


N, 11 years old, Bipolar, ADHD, Anxiety Disorder, Sensory Regulatory Disorder,Non Verbal Learning Disorder, Developmental Coordination Disorder, Complex Partial Epilepsy,Verbal Working Memory Impairment.


H, 9 yrs, Very active. And very typical too LOL!


M, 7 yrs, Anxiety Disorder, PDD NOS.


Kelly, single mom to


N, 11 years old, Bipolar, ADHD, Anxiety Disorder, Sensory Regulatory Disorder,Non Verbal Learning Diso

iVillage Member
Registered: 09-13-2008
Tue, 03-02-2010 - 1:54am
My mom could babysit once my ds is in bed and asleep but he has seizures and they scare her and he does not settle for her after they are over. I have respite care for 20 hours per month FREE through a local Achieve chapter but it is just so rough getting him used to a new person. My son's father chooses not to visit thus its mommy 24/7/365. I need a vacation.
5 yr siggy
Photobucket