Don't believe everything you read

iVillage Member
Registered: 07-11-2003
Don't believe everything you read
5
Tue, 10-14-2003 - 6:20am

Okay, so there I was, doing a little 'middle of the night searchfest' while I was thinking about how I wanted to word my reply to bugs' post on the Cure. I was reading through the site neurologychannel.com and started getting a strange feeling. I couldn't quite put my finger on it, but the content of this site deffinately seemed 'off'. Then I got to the bottom of the page I was reading and it said...

Avatar for rissc
iVillage Member
Registered: 03-26-2003
Tue, 10-14-2003 - 9:13am
This is one of the things that worries me. Misinformation on the internet for the uninformed or uninitiated.

Thanks for reminding me to tell ds's paed to recommend a reading list to those families he diagnoses with autism. He, unfortunately, suggests that one way of learning about it is to look it up on the internet!

Larissa

Larissa
iVillage Member
Registered: 06-25-2003
Tue, 10-14-2003 - 10:23am
People learned with the print and television media and are slowly learning on the internet: It's the source that counts. We will all give a lot more credence to a piece in the Wall St journal than the National Enquirer. The Internet is even more fraught, becase any Tom, Dick or Harry can put up a site about ANYTHING (1st amendment, baby).

The trick is to stick with the official sites, such as fragilex.org, which is excellent. Larissa; your doctor should add a note to these effect when advising patients.

Candes; I have renamed our male (of couse) friend who so badly attempted to muddy the waters with that piece:

"Misimis" short for Misinformed Misogynist (and oh so feminine to boot!)

-Paula

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 07-11-2003
Tue, 10-14-2003 - 6:37pm

Yup, it does all come down to the 1st Amendment, and as much as I hate to say it, I support these bozos right to print what ever the heck they feel like. The moment they can't say that, from thier point of view, only Autism Disorder is autism and everything else is just a PDD is the moment I have to worry about whether or not I will be allowed to say the sky is 'rather cyan today'.

iVillage Member
Registered: 03-26-2003
Tue, 10-14-2003 - 7:17pm
Unfortunately what I find most in media, particularly mainstream media, is the short simple form of many of the disabilities we know about. Often there is misinformation because of this, it is true with TV, internet, movies and written articles. For instance, that article about the AS boy who killed his ex-girlfriend saying AS was a disorder that required psychotherapy and medication.

I think it is the same with the fragile X thing. When I was first hearing and learning about fragile X I remember looking it up and reading that the effect was much more severe for boys than girls typically and the symptoms were different. For males it typically caused severe retardation and possibley autistic like behaviors along with a variety of physical features. For girls it was milder looking more like a LD or mild MR. This was a while ago and I assume that the research and understanding of fragile x is much further along. However, I bet that someone read something similar to that and then spit back the info incorrectly.

Kind of reminds one of the old game of telephone. I also think it just rots and there is lots of misinformation out there because of this. I think we all need to be careful when reading information and where it's source is. We also have to be careful when relating information. We all have our own experiences and understanding of information and becuase of this can make mistakes just like the game telephone. I know I have done it, just maybe not to that extent, nor would I publish what I think is the truth knowing that I have probably made mistakes. Ever notice that in scientific journals they are very careful about stating the facts and where they got their information from. Heck 1/2 the article is bibliography.

Good point Candes. It is true and it is scary how much misinformation is out there.

Renee

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iVillage Member
Registered: 07-11-2003
Tue, 10-14-2003 - 8:01pm

I think that is one of the good things about this board. We can go looking for info, though any medium, and bring it back here for discussion. That helps us weed through the nonsense and figure out fact from fiction. You all have been so great at bringing things from around the world here to be put under our little community's 'cyber microscope' and picked apart. LOL. I've even taken to calling Littleroses our "newshound":if it weren't for her famous midnight searchfests we proabably wouldn't know a lot of the things we do (as a community).


It helps to have a group of friends to discuss this stuff with, even if you don't always see eye to eye on every issue.


Peace,
Candes