At Gabe's school

iVillage Member
Registered: 09-12-2008
At Gabe's school
8
Tue, 02-23-2010 - 7:18pm

Gabe is having a hard time in school. His teacher thinks it's because of all the snow days we had. Could be, but he has been back in school for almost two weeks now. He should be back to himself by now, but then again...maybe not. He was doing rather well. So I decided to go to his school and sit in on a class. I was rather impressed. One of his biggest problems he does not sit at circle at all. His body flips around everywhere. Finally I sat down next to him and he attended rather well when I let him play with my hair. He even answered some questions about the story. Yay.

Gabe has an OT consult, but they aren't doing anything for him. He is required to sit so much at school and I can tell some of his problem is sensory related. He also sat and spun the garbage can lid at circle too! He did a little bit of circle pacing, but they stopped him. I think if they let him stim a little maybe he would do better and attend more. Or give him some sensory input...something anything.

I guess I should consult with the OT again. I did ask for a full psych/ed eval...so I could wait and see what happens with that. I also noticed that Gabe talked to other kids sometimes, but not like a normal child. He mostly talks at them. He talked two times during breakfast, and no one acknowledged him....not even the teacher. In the teachers defense she had another little boy that was having a hard time. And Gabe didn't direct what he was saying towards anyone. He just made some random comment.

I think I am going to go in again on Monday when he has speech and see how he does. He has a bad speech session on Monday too. He was stuck on the fact that he didn't get the game piece he wanted...and then wouldn't move on.

I don't want Gabe to struggle at school....but I almost feel relieved that they are seeing some of what I see. It makes me feel less crazy....and it's almost a "I told you so" type of feeling with me.

Thanks for letting me vent....sorry for the random thoughts...and comments....just needed to clear my head...and think about a plan.

On a happy note....we went to Tumble Town today...and Gabe and another little boy who has to be autistic too...played together. I work with the other little guys mom....They chased each other all around TT.....it was fun watching them.



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iVillage Member
Registered: 03-27-2003
Tue, 02-23-2010 - 9:37pm

I think some preschools require too much sitting and don't give enough time for gross motor play in their days.

                                

iVillage Member
Registered: 10-08-2009
Tue, 02-23-2010 - 9:53pm

Hi.

iVillage Member
Registered: 01-25-2007
Wed, 02-24-2010 - 4:12am

The thing is that they continue to do variations on circle time or floor time all the way through elementary school. I tried for years to get an OT eval through the school and only succeeded when my

Avatar for ralenth
iVillage Member
Registered: 03-27-2003
Wed, 02-24-2010 - 2:23pm

What is in his IEP as far as OT goes? Alex also had OT issues on sitting in circle (and circle time does last for awhile... Alex is in 2nd grade, and still has to sit in circle time in the morning). Somethings that have helped him in the past - being able to sit in a chair, rather than on the floor, or leaning against the wall. In preschool, he usually sat on one of the teacher's laps, and did MUCH better during circle time when that was the case. Now he gets sensory breaks (5-7 during the day, depending on how his day is going). That helps him so much. The OT has worked with the teacher and aids on what different things he can do during the sensory breaks, to help get his engine on the right speed. A weighted lap pad, helps him, during the day, too. Sitting still during the day has gotten worse and worse for Alex, until this year, when the OT and teacher put so much in place for him.

Also, Alex's private OT told us that the spinning and crashing he does is his way of regulating himself sensory wise - and we should allow him to do these things (when safe). And encourage other sensory activities throughout the day (at home).

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iVillage Member
Registered: 09-12-2008
Thu, 02-25-2010 - 7:02am

Thanks everyone for all the advice. I am meeting with Gabe's reg ed teacher and sped ed teacher today. I plan on talking to them about the above issues. I know what their response will be. Some of the other kids in the room do the same thing. First of all some of the other kids in the room also have IEP's. Second, if they don't have IEP's I feel sorry for them. Third, I am not here to discuss the "rest" of the room. My only concern is my son. If little Timmy is spinning on his head at circle time, then that's your concern and his mom's concern. I get so tired of hearing there are other kids in his room acting like him. There are 18 kids in Gabe's room. Three of them have noticeable issues. One of them being Gabe. That means 15 other kids are doing well and following the rules and not struggling. I am ready for a battle.....again. It's never an easy thing.

At the last autism meeting I went to there was an awesome advocate that spoke. I can't wait to use some of her strategies.

My meeting is today at 3PM...I'll keep you all posted.
Thanks again for the tips.



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iVillage Member
Registered: 09-12-2008
Thu, 02-25-2010 - 8:30pm

So the meeting was cancelled. Not because of snow...but because the sped ed teacher remember at 0830 this morning she had made a dr. appt for her son a few weeks back. Blaaa. But I did get a big note from her today written all in red. One thing she said. We'll contact the OT again to see if we can get a wiggle pad and some ideas about sensory breaks. Maybe they will make a difference at home. WTF? Difference at home. I don't care if my child stims till his little heart is content at home....I let him sensory seek. But he is NOT sitting at circle, is not attending, I won't go into how many times there was failed communication. And they think the sensory breaks I asked for were to help at HOME. Again....WTF. Oh, and she said...Gabe seems to be the same as he always is. Then why two days ago am I getting a note home saying he is having a hard time attending? Then he must always have a hard time attending and sitting still. These people must think I am an idiot.

On a really positive note...I got in contact with a speech pathologist that may be able to test Gabe for a better aac device. I am soooo excited. I asked him if aac would help with Gabe's word retrieval issues (they are severe) and pragmatic language....and he said they would. He is the first person that has listened to me...and not make me feel like a crazy mom.

So now I am going to go to the school bright and early monday morning...and sit in on speech, and I am not going to let him play with my hair and calm him down. I am going to let him stim and I am writing everything down. At least that's the plan.

Okay off to put the baby to bed....not that he will sleep....but I'm attempting it anyway. I swear I am going to give my kids benadryl for bed.



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iVillage Member
Registered: 09-12-2008
Fri, 02-26-2010 - 6:14am
what happend to message number 8?



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iVillage Member
Registered: 03-27-2003
Fri, 02-26-2010 - 7:54am

I find it incredibly irritating when no one listens to what you are saying and then a few months later they parrot back your own statements about what must be going on.