Getting our diagnosis on Tuesday...
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| Sat, 12-17-2005 - 9:42pm |
It sounds like the Neuro Psyche thinks it's Asperger's. So it looks like that is probably the diagnosis we will end up with. Or else she will say she thinks that is what it is but wants to wait 6 months to a year to officially diagnosis her since she is so young.
It's been a rough week, more seizures, pneumonia, and behavior worsening. I'm hoping that whatever happens with the diagnosis will somehow make me feel a little better about the situation. My hope is that a diagnosis will help us to help her. Just not looking forward to telling my in laws....
Pneumonia kicks my butt too so I'm really tired. Normally things like this don't get to me, I know stressing about the appointment will not help, so normally I wouldn't. But being sick makes it hard not to concentrate on everytyhing.
I think the hardest part of this whole thing is the fact that she has good days and bad days. There are days when she almost seems typical, and then there are days when she acts autistic.. and there are in between days where it's more Asperger behavior. I think that is the big reason my family still wonders, because it seems to almost "come and go." Except that we can't connect anything to the change in her behavior. From the people on this board I know that the good days and bad days are normal, but my family does not.
I just hope we get some answers, that's all I want. We will then be switching her seizure meds after we get the Neuro Psyche's opinion. Hopefully that goes well too.
Those waiting for a diagnosis, I completely understand...

It does sound like you've had a rough week!!! My dh had a hard time with the dx, so I ended up telling my inlaws. It was a year ago, but I'm still not sure if they accept this or not. They don't really talk about it. I'm not sure if they just don't believe us, or they just don't know what to say.
Nathan used to bounce back and forth too. There were days where he seemed ok...no real issues. But then he'd do something out of the ordinary. Now that he's older, his quirks stand out more. The stress of school and everything really bring out his tendencies. When he was younger he just seemed a bit immature, but can't really say that anymore. He'll be 7 next month, but he doesn't act like he's 7. His speech delay is more noticeable now, although he is doing wonderful.....and surprising us all the time with his knowledge. He's a fast learner, great memory, and it definitely shows!
Good luck on Tuesday. And good luck with telling the family. I hope you're feeling better soon too.
michelle