GFCF diet

Avatar for suitemadameblue
iVillage Member
Registered: 03-26-2003
GFCF diet
2
Thu, 03-27-2003 - 9:49am
I am just looking for any BASIC information about this diet.

Tristan has been getting sick on a pretty regular basis lately, and we initially felt that maybe he was lactose intolerant. Doesn't add up too much, tho, because he can drink milk and not get sick, so there has to be something else.

I did a little research on the net, and one of the things that made me think about this diet is - he has, especially on his legs - what seem to be permanent goosebumps. That has always irked me, but I always assumed it was just something about him, and that's that. But then I realized it's almost as if they get more predominent(??) after he's had a high dairy or wheat type of day (ex: eating alot of ice cream, eating out at McD's, hot dogs are right out).

Whether this will help the PDD or not.....I don't know. Right now, I would like to treat the sick side of things, and maybe the PDD will be helped as a side-effect. (does that make sense??)

~Carrie

iVillage Member
Registered: 03-26-2003
In reply to: suitemadameblue
Thu, 03-27-2003 - 6:26pm
Makes perfect sense to me.......

My Dh is currently Casien-Free, as is our newborn dd. Dh has had strange problems with dairy products all of his life, but like your ds he didn't exactly seem lactose intollerant. He liked to say he was 'lactose-unfriendly', LOL. He had ear wax build-up so badly sometimes that he couldn't hear and he was plauged with headaches and the occasional unexplained rash. After doing some research we talked to our dr nad he put dh on the GFCF diet to 'see what would happen'. On the diet all of DH's main medical complaints suddenly disapeared. His Aspie-ness mellowed out too. He's still Autistic and always will be, but the diet helped him cope with us NTs better (we were driving him nuts).

After more expirementing (under dr supervision) we figured out that DH has no problems with Gluten, just Casien. So when the baby started having problems the first thing her ped looked at was Casien. Low and behold she's one of the happiest babies you ever saw as long as you don't give her anything with Casien in it. Otherwise, she's a fussy, power-puking, rash covered, Cling-on, who never sleeps. Whether or not her Casien alergy means she is ASD is yet to be seen.

Peace,

Candes

Peace,
Candes  
Avatar for littleroses
iVillage Member
Registered: 03-28-2003
In reply to: suitemadameblue
Fri, 03-28-2003 - 11:24am
Hi! I am also very curious about the GFCF diet. I've talked to people who have said it has made remarkable changes for their child (and one or two for which it hasn't). I have read dozens of books so far trying to learn as much as I can. My daughter has epilepsy that fortunately is controlled with meds. She has always had a hard time with milk products and never really liked them anyway. So one summer I decided to take away dairy just to see if that would help her seizure disorder; a little experiment. I replaced it all with soy products. On her next EEG her seizure activity had spiked enough for the neurologist to be concerned at the dramatic change and order and MRI. I thought my dairy idea was dumb...this was all before I had ever read or heard any ideas about gluten or dairy. Recently, I have learned that soy has a protein similiar to dairy and wheat which could react the same in way in some individuals. Perhaps the soy I replaced the dairy with was making everything worse! I know this is all correlation and there's no scientific basis but when I heard about a GFCF diet I thought perhaps this would help her developmental delay.

I have not met one specialist or MD who has looked into the biological possibilities of this nor ever even brought it up. So far, they are just treating the symptoms. That drives me crazy. My oldest daughter had a rash for the longest time and the DR just kept giving her cream. Was she supposed to use cream til she was 30 or perhaps we can find the cause? (soap products). So, that's my frustration in getting my daughter help, I feel they just treat the symptoms. But now I'm digressing.

I haven't started her on this diet yet because I'm taking her to see a doctor who will run a bunch of tests and who is open to the possibility of biological causes of her delay. My highest hope is this will be a magic bullet but I'm aware of the possibility that I'm just chasing a shadow. Either way, I am checking out all avenues. I have also decided to try the diet even if the tests don't show anything because others have mentioned that oftentimes, the tests don't indicate any abnormalities and their child has improved anyway. I am also now just trying to educate myself on how to cook differently. I am photocopying recipes from a bunch of books at the library. Also, I am learning how many foods surprisingly have gluten/dairy. (I will also not use soy).

I know I didn't have a lot of experience to share with you, but I am very interested in this too! Good luck!