Has this happened to your girls?

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Registered: 03-26-2003
Has this happened to your girls?
2
Sat, 04-12-2003 - 5:39am
Jade has started having 'sleep walking' type episodes. I'll describe. Last night she wet the bed (that in it's self is strange), then she got up and went to th bathroom to finnish. After that she went and got new night clothes, changed into them, and then came out to my office and got me to put her back to bed. I knew she was acting weird at first because of the way she was phrazing things. With most kids the subtlety would have gone unnoticed, but with her Aspieness her slight change in grammer was blarring. I took her back to her room where I found the wet nightclothes in a heap on the floor (she is VERY maticulous about her room). I asked her what happened (knowing that it was strange for her NOT to tell me right away that she had had an accedent) and she just started laughing in a very eerie way and started clawing at her face. When I took hold of her hands she litteraly jerked awake. Then of course she started crying (who can blame her?).

After I got her calmed down, her bedding changed, and back in bed I called her ped to tell him about it. This is the third time something like this has happened in the last 3 months, and it happens at the same time every month. Her dr has scheduled an EEG for Monday. He says that he doesn't believe it's coincidence that she is having these episodes within a day or two after her monthly tantrum. He said that he believes she has already started peri-puberty (she's 8.5, the women in our family start menstraiting at about 9) and he think's they are connected. I know that some types of siezure disorders can begin onset durring puberty, such as Epicomia. Have any of your girls had this happen? If so, what was the dx (if one was obtained).

TIA,

Candes

Peace,
Candes  
iVillage Member
Registered: 03-26-2003
Sat, 04-12-2003 - 5:27pm
Although that hasn't specifically happened yet, we are watching for things like that. Cait is at higher risk to devlope a full seizure disorder because of her current EEG findings and the ASD diagnosis. When the EEG for Cait was found to be consistent with partial seizures I looked up lots of info on it. Her "spikes" do occur more often during sleep and she will talk in her sleep and such.

Unfortunately, approximately 1/3 of children with ASD's have some type of seizures as well. They often will begin during puberty. I also have heard that these types of things can increase during that time of month. It is also common for them to occur during sleep. I think it is definitely prudent to have an EEG to rule that out. Hopefully it is just sleep walking maybe increased with hormones. But it would be worth checking into.

Good luck,

Renee

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Registered: 03-27-2003
Sat, 04-12-2003 - 1:45pm
Hi, this has never happened to my dd who is 10(AS), but it did happen to my older dd who is 14. She is a sleep walker & just recently she got up went into the livingroom , changed clothes,& ended up on the couch & doesn't remember it at all. When she was younger, she got up & went into the kitchen & peed on the floor. We woke her up & she was totally unaware of what was going on. This could be nothing more than sleep walking or it could be a seizure disorder of some kind. As a nurse, I would say that because she has loss of urinary function she may be having a night-time seizure problem. I had a roommate in nursing school who had grand mal seizures & would convulse @ night (woke me up 2x doing this). Have you ever heard her convulse, the bed shaking, etc.? She would wet the bed also. There are much milder types of seizures, ie. Petit Mal. It is a good thing that your peds is doing an EEG. Also suggest an MRI. The pre-pubery thing is unfamiliar to me.8 1/2 seems really young for this to be starting. Good Luck, Mary Ann