Has your child ever had Kawasaki's di...

iVillage Member
Registered: 03-31-2003
Has your child ever had Kawasaki's di...
6
Wed, 11-14-2007 - 11:34am

Has your child ever had Kawasaki's disease?



  • Yes
  • No


You will be able to change your vote.


iVillage Member
Registered: 03-31-2003
Wed, 11-14-2007 - 11:39am

I know this sounds like an odd question,

iVillage Member
Registered: 11-24-2007
Sat, 11-24-2007 - 10:37pm

Actually - I've been trying to research this very question for quite a while and came across your message while searching yet again tonight. My son always had little signals that he had PDD from birth on (I'm an Occupational Therapist). Not bad - but some things like never wanting held - even as an infant, always wanting to swing, etc.

He got KD just before he turned 5 and after that it has been a downward spiral of health issues and worsening PDD/Autism. He is 9 now and it's affecting his school. He doesn't look anyone in the eye anymore (except us), he's being called "the weird kid" in school and doesn't realize it's a derogatory label, and really struggles socially.

All our doctor's claim there isn' a link between the two - but I'm convinced there is.

iVillage Member
Registered: 03-26-2003
Sun, 11-25-2007 - 1:16am

Hello and welcome.

I haven't seen you post before but your's struck me as interesting for a few reasons.

first, your login contains my maiden name, and second because you were in the field when your child was born. I worked as a teacher specializing in autism when they were born so I remember seeing some signs but thinking perhaps it was just me being overly sensitive. They 2 with ASD are now 13 and 11 and i have 2 typicals who are 9 and 7.

Nice to meet you. I wonder if you distant family, lol.

Renee

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iVillage Member
Registered: 11-24-2007
Sun, 11-25-2007 - 9:08am

Hello

I am new here - just looking for anyplace I can get information to help my son. I work primarily with geriatrics, but I knew what I was looking for. We do a lot here at home for him, but at school it's difficult for him and it tears me up.

As for my name - Lyons is my married name. Most of our family is back in Ohio - we live in North Carolina now.

Thank you!

iVillage Member
Registered: 03-26-2003
Sun, 11-25-2007 - 12:17pm

Welcome again. My maiden name is Lyon. My dad's family is spread all over the US but I think I was the only one ever in Ohio when I went to college. Most are either of the coasts. You are now closer to my brother who lives in Georgia.

I am so sorry for the frustrations with your son. I am not terribly familiar with N. Carolina law but being a special ed teacher I am pretty good with the federal law and testing stuff. I read the other message some and really his medical diagnosis has little or no bearing on his qualifying for an IEP. At least it shouldn't. IEP's and eligibility are determined by educational evaluation done by the school. Has he ever been evaluated at school?

Also, 4th grade is a big jump. This is when kids really start to struggle often and even if he has had testing in the past it may be worthwhile to have him retested now through the schools. It may be different than his last set. From what you are saying it sounds like at least an educational evaluation is in order.

Anyway, I will stop hijackig this thread as I realize I am in the wrong one for this and continue it on the other, lol.

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iVillage Member
Registered: 03-31-2003
Mon, 11-26-2007 - 1:18am

I think KD is just so rare that it is hard to see a statistical relationship - even if there is one. Take the poll - 20 responses, and 2 yeses - 10%. The rate of KD in the general population is only about