Hello, ds (7) just dx as PDD/NOS
Find a Conversation
|Wed, 05-28-2003 - 9:27pm|
I have always sort of known (although I do go into denial sometimes) that something was wrong/different with Derek. Derek could have been a cord accident at birth since the cord was chocking him for almost 7 hours before the Doctor did a C section. His heart rate wasn't good through out the labor and he flatlined once.
Derek didn't talk much to us when he was small but we figured he was like him Daddy and just wasn't a talker. When Derek went to Preschool at age 4 is when we really understood he was different. I believe at that time his speech was that of a 2 1/2 year old. He went to early intervention and we found out that he could explain somewhat what an object was used for but couldn't tell us the name of the item. The ST told us that while Derek was smart he couldn't process what we would tell him. After telling concerns to a MD not a ped. and going to a Neurologist (not a ped one) we got no where. (Just a wait and see approach) About a year ago I decided to which Drs. and take him to a Pediatric Dr. in our area which I heard was good with Developmentally delayed kids. After listening to us he said "I think your son has PDD but I want him to have a speech/hearing assessment." I said great since I really thought Derek had a auditory processing problem but I read about Autism and thought NO WAY! since they listed a child who doesn't like to be touched and hugged. Derek is a VERY super affectionate kid, even sometimes to strangers. So we had the eval done and they suggested us seeing the Child development unit at Children's hospital. I was fixated on the autitory problem and didn't mention the PDD and they said he wasn't old enough for that testing.
Fast forward to this year. Went to see ped for a yearly check up (yes I am lucky Derek hardly ever gets sick) and he again said PDD and told us to tell the Development unit that is what we want him tested for. I called and made a appoint for 2 months later (the soonest they could get us in). I started reading articles about PDD and realized that there are different degrees of autism.
Derek's autistic traits are: repeating words and phrases. Memorizing cartoons and telling us word for word. Fixation on certain toys (that toy is all he plays with). Flaps hands when excited(didnt realize he really did this until he met the Dr. who eval him on Tues) and hangs head and skates in circles when he can understand what his hockey coach wants him to do. hypersensitive to noise. Hyperfocuses on things and doesn't hear us. Has never had stranger anxiety. Totally tunes out when he doesn't understand directions. Has a hard time maintaining friendships. Doesn't understand jokes. Has a hard time answering open ended questions. (Geez, makes me wonder how I could have been in denial for so long!)
There is more probably that I forgot but I wanted to introduce myself and try to come to terms with the fact that my son does have a disability and isn't something that can be "fixed" over night. I just wish everyone could understand him the way I do and not give up on him so easily.
Thanks for reading my book if you got this far.
Brandy, Jeff & Derek in Western PA