Hello, ds (7) just dx as PDD/NOS

iVillage Member
Registered: 03-28-2003
Hello, ds (7) just dx as PDD/NOS
3
Wed, 05-28-2003 - 9:27pm
Hello, my name is Brandy and I have a son Derek who's 7. My son was just dx'd as PDD-NOS with ADD and Auditory Processing problems because of the PDD.

I have always sort of known (although I do go into denial sometimes) that something was wrong/different with Derek. Derek could have been a cord accident at birth since the cord was chocking him for almost 7 hours before the Doctor did a C section. His heart rate wasn't good through out the labor and he flatlined once.

Derek didn't talk much to us when he was small but we figured he was like him Daddy and just wasn't a talker. When Derek went to Preschool at age 4 is when we really understood he was different. I believe at that time his speech was that of a 2 1/2 year old. He went to early intervention and we found out that he could explain somewhat what an object was used for but couldn't tell us the name of the item. The ST told us that while Derek was smart he couldn't process what we would tell him. After telling concerns to a MD not a ped. and going to a Neurologist (not a ped one) we got no where. (Just a wait and see approach) About a year ago I decided to which Drs. and take him to a Pediatric Dr. in our area which I heard was good with Developmentally delayed kids. After listening to us he said "I think your son has PDD but I want him to have a speech/hearing assessment." I said great since I really thought Derek had a auditory processing problem but I read about Autism and thought NO WAY! since they listed a child who doesn't like to be touched and hugged. Derek is a VERY super affectionate kid, even sometimes to strangers. So we had the eval done and they suggested us seeing the Child development unit at Children's hospital. I was fixated on the autitory problem and didn't mention the PDD and they said he wasn't old enough for that testing.

Fast forward to this year. Went to see ped for a yearly check up (yes I am lucky Derek hardly ever gets sick) and he again said PDD and told us to tell the Development unit that is what we want him tested for. I called and made a appoint for 2 months later (the soonest they could get us in). I started reading articles about PDD and realized that there are different degrees of autism.

Derek's autistic traits are: repeating words and phrases. Memorizing cartoons and telling us word for word. Fixation on certain toys (that toy is all he plays with). Flaps hands when excited(didnt realize he really did this until he met the Dr. who eval him on Tues) and hangs head and skates in circles when he can understand what his hockey coach wants him to do. hypersensitive to noise. Hyperfocuses on things and doesn't hear us. Has never had stranger anxiety. Totally tunes out when he doesn't understand directions. Has a hard time maintaining friendships. Doesn't understand jokes. Has a hard time answering open ended questions. (Geez, makes me wonder how I could have been in denial for so long!)

There is more probably that I forgot but I wanted to introduce myself and try to come to terms with the fact that my son does have a disability and isn't something that can be "fixed" over night. I just wish everyone could understand him the way I do and not give up on him so easily.

Thanks for reading my book if you got this far.

Brandy, Jeff & Derek in Western PA

iVillage Member
Registered: 03-26-2003
Wed, 05-28-2003 - 9:54pm
Hi Brandy, Jeff, and Derek, welcome to the board. I know how you feel about wanting to be in denile. This can be a lot like getting a beautiful new toy and findig out it has factory deffects that can't be fixed and ther are no refunds. But on the same not, the toy is still so wonderful you wouldn't trade it for a million perfect toys.

Personally, I don't see people on the pectrum as being disabled, just diferent. My dh and 3 of our 6 dds are on the spectrum. Sure they drive me nuts sometimes, but they also crack me up. When I first met my dh we had no idea what AS was much less that he had it. All I knew was that he was so unexplainably strange that I would have to marry him to keep him from getting away. Oh, did I mention I'm a behavioral researcher? Well, I was still in school at the time. But I figured it would take me the rest of my life to figure him out, and he is a very facinating specimen. LOL. Even with his dx I still see lots of reasons to study him (maybe that's why we ended up with 6 kids). Okay, so I'm in a funky mood, sorry. I'll try to behave.

Anyway, your son certainly sounds a lot like my kids and the discriptions my MIL has given me of DH when he was little. Stick around, I promise to be more socially acceptable in the future. (wink)

Peace,

Candes

Peace,
Candes  
iVillage Member
Registered: 03-28-2003
Thu, 05-29-2003 - 5:54pm
Thanks for the warm welcome. I wouldn't change Derek for the world. He is such an unique funny kid. I just wish (like any parent) that I could make things better so he doesn't have to struggle so much.

Thanks for letting me vent and come to terms with things!

Brandy

Avatar for maresgood
iVillage Member
Registered: 03-27-2003
Sat, 05-31-2003 - 12:30am
Hi Brandy, I'm from Sharon, Pa. but I've been in Ca. since 1981. I go back home every summer to see my family & my kids love it in Western Pa. I went to nursing school in Pittsburgh. I have a 10 yr. old dd who we just now got diagnosed as A.S. I was in denial until her teacher last yr. brought it up. We went to our peds for an eval. & next month we are going to a psychol. who specializes in A.S. She has many of the behaviors as your dd. She used to hand flap but now cracks her knuckles. She is sensitive to noise, & other stimuli. She has very few close friends nor does she care to make any. She memorizes dialogue from cartoons, movies & books. She is currently obsessed with Harry Potter but has had many obsessions. My other dd is ok, but also shy, she is 14. Welcome to the boards, I'm glad to see someone here from my neck of the woods! Good luck with your ds, do whatever it takes to get him the help he needs. :) MaryAnn