How did you cope with your child's diagnosis?

iVillage Member
Registered: 12-07-2006
How did you cope with your child's diagnosis?
5
Wed, 02-22-2012 - 10:42pm

Hi everyone. The last time I was on an ivillage message board was as a part of the 2007 expecting club and then playgroup. My son is now 4 and was diagnosed last fall with autism. It has been an emotional rollercoaster ever since. How did you cope? How are you coping now? I have buried myself in the technical stuff such as getting him the right related services but have not given myself the time to emotionally process everything. Thanks for listening.

iVillage Member
Registered: 07-18-2006

My daughter was diagnosed at three and is now nine. I still don't know that I "cope" with it well. My biggest advice is to take one day at a time. Spending to much time thinking about the future just spins me out, anxiety wise. My mantra is "It is what it is, I'm doing the best I can!" (That works for all of life's slings and arrows, not just this one!)

I can't say I haven't struggled alot. I had lost my only sibling to suicide five weeks before she was diagnosed, and for the first year or two I just walked around in a fog. I've come a long way since those dark days, but I still struggle.

Become your child's best advocate. Do what

iVillage Member
Registered: 04-15-2004

totally agree with caroline93!

iVillage Member
Registered: 03-26-2012

Well, quite frankly, I was a bit shellshocked. We knew our 9 yo. had many struggles, both with school and things at home. We'd struggled for years to get her the help she needs at school, and that fight isn't over. But since her first developmental pediatrician two years ago didn't say anything about the autism surveys we filled out, we figured it wasn't an issue. It was a huge shock when this past February her neuropsychologist, after extensive testing, diagnosed her with PDD-NOS and Sensory Processing Disorder.

I spent the first few days in a bit of a fog. Finally, though, I had an epiphany. My precious little girl was the same person right that minute as she was a week earlier, before we had the diagnosis. And that realization made all the difference. Having a name for the struggles didn't suddenly make her a different person, but it did give us a direction in which to go to help her.

Caroline

I'm a Type A mom, and my husband and two precious girls have ADHD. My youngest also struggles with PDD-NOS and Sensory Processing Disorder. Visit the chaos at our house at
iVillage Member
Registered: 04-15-2004

To be honest it took me several years to become comfortable with my son's diagnosis.