How many doctors did it take to get a Dx

iVillage Member
Registered: 11-28-2006
How many doctors did it take to get a Dx
21
Wed, 02-28-2007 - 1:42pm

Just got off the phone with Doc.......

I feel kind of empty, and sad for my son. He told me over the phone about the report he is typing up for the school, but as he has "Traits and personality Oddity's", he does not get the official Dx for Aspergers.

As a mother I know he has something on the Spectrum. I feel man, did I not tell this doc enough? Was I not clear enough? I mean how can he say his body bumping, and his eye rolling thing is a personality oddity?????

The school right now is freaking on me. The teacher called me and wanted to know about this report, because they don't have it in their hot little hands. This doc had told me 3 weeks ago that he would score everything and then get it to me within two weeks and today its going on 3 weeks, so I have been hounding him by phone because I really need this report. Even if its just for the Dysgraphia, he needs help.

And what am I supposed to do now about his thought disorder????? How about the times he just obsesses over money and business and thats all he talks about with the other kids in school? Now he won't get any social skills help without that Dx.

Right now the school wants to talk to me about retaining him, and I just don't know what to do. My husband did bring up a great point on them doing some standarized testing to see where he is at. It won't matter so much of the work he hasn't finished in class as to what he knows at this point. And I have a feeling he is learning, but just not putting it down on paper as he can tell me verbally every detail on Christopher Columbus or what they have learned in Science.

Anyway, how many docs have you gone thru?

Part of this post is also cuz I gotta let it all out. I'm trying to find a therapist right now, but when I ask for someone (for me) if they have a have alot of knowlege in Autism they get confused, like I have Autism, or I'm looking for a therapist for my boys.... Plus, there doesn't seem to be any in my area, and I might have to drive an hour to an hour and a half for one.

Big Big Sigh here....

Lainie

Pages

iVillage Member
Registered: 11-28-2006
Thu, 03-01-2007 - 1:27am

I said "He's a very nice man" and he said "very nice man". Things like that.

Then he went into how he HAD to read in order from what his list from school said. At this time a book report was due, and I thought it was more important to pick this book instead. He kept saying, It has to be in order, it has to be in order.....

I just thought it was weird.

Tonite he asked for a broken appliance to take apart (which he often does). I found a broken DVD player we are about to throw out. So he sat there and concentrated on taking this thing apart and fixing it. He also likes to take things apart and build robots out of the parts. He has great incentive, but of course never hits the goal. its impossible.

He seems to concentrate on the details, and not the whole picture.

I went downstairs a bit ago to say time to get into bed. He was lining/setting up his army men. He wanted to take them upstairs and I said okay. I gave him his melintonan (sp?) and he started to pick them up. He did it in a weird way, and I asked him are you counting these? He didn't answer. I said you know Chris when I was little I would count things. I still do. (He got mad, and dumped everything and said I interrupted his count and now he has to start over). He then said "how many times did you count when you were a kid?" I said I don't remember exactly, maybe 20 times, but I was a kid and I just know I would have to count a certain amount of times, clicking my teeth in bed or something bad was going to happen to me, like the devil was gonna get me or something.

He then said "Okay I got 60 of them, I can go to bed now"

These are the things the doc has missed I think........

Lainie

Pages