I feel lost

iVillage Member
Registered: 02-19-2004
I feel lost
3
Mon, 10-24-2005 - 1:46pm

I am just feeling so lost today. I don't know if I am doing enough for my DD. Her neurologist seems to think it is Aspergers, but her therapists don't agree. I am not sure who to believe. Should I take her to a child psycologist for evaluation or a developmental pediatrician. I don't even know where to start to find one. There are so many web sites and therapies and diets to read about. Where do I start. Especially without a firm diagnosis. I guess I need a second opinion from a Doctor. I just needed to vent. I know all of you have been there. It is just a never-ending constant pit of my stomach all encompasing... last thing I think about when I go to bed and first thing I think about when I wake up....HELL! Sorry to be so melow-dramatic. But sometimes I just want to scream and just dig a hole and not come out.

There...I feel better! Thanks for listening

R

iVillage Member
Registered: 03-31-2003
In reply to: kaylasmommi
Mon, 10-24-2005 - 2:17pm

I think you really need to go to another developmental pediatrician or a pediatric nuerologist. Your pediatrician should be able to refer you to these types of doctors. The hardest part of this whole thing in my opinion is figuring out what sort of therapy you are going to get your child. I looked into a lot of different therapies for my son, and to some degree you need to follow your gut. No one is going to say "this is the best, most perfect therapy". You will get many different opinions and you will ust need to go with the ones that you feel make the most sense for your child and her specific issues. You can always come her and ask for what people recommend and look into those therapies as a start.

I know this is very ahrd to go through, but you will get there. We are here to help support you if you need anything!!

iVillage Member
Registered: 06-25-2003
In reply to: kaylasmommi
Mon, 10-24-2005 - 4:14pm

Deep breath.
Let it out...

Relax

OK the world didnt; end right there while you did that, so I think you should take several more deep breaths, relax and repeat until you start to feel a little better.

You don't need a diagnosis to get help for your daughter. And as you are aleady getting help for her, -she has therapists and is getting services, I think you should take some time to look at the things you have done right and congratulate youself for that.

Some kids are hard to diagnose. You can go to five different doctors and get 6 different answers. MY DS didn't have a DX until he was 5.5. However we knew what the individual issues were (SID, tone, speech delay, attention issues, his learning style etc etc) so we worked with *those* from 27 months and he did just fine.

(((((hugs)))))

-Paula

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 10-24-2005
In reply to: kaylasmommi
Mon, 10-24-2005 - 5:10pm

I know it can be frustrating...Take some deep breaths and look at the positive. Your DD is receiving therapies, so you are doing something. I think at one time or another we all feel like we should be doing more...I know I do!

My DS rec'd early intervention for a speech delay and sensory issues. Both his ST and OT told me no way did he have ASD. Eventually another therapist made a comment to me that she didn't think he had autism, but something didn't seem quite right. I felt the same way, so got a referral to a Child Psychiatrist who specialized in ASDs. Eventually DS was dx'd by two separate doctors (the Child Psych and a Developmental Ped) that he was HFA. Follow your gut. If you want a second opinion, get it.

You should be able to go to your regular ped and ask for a referral to a developmental ped. Have you contacted the Regional Center regarding an evaluation? The hardest part will be the wait. The wait lists can sometimes be quite long, but you can get on the cancellation list.

Good luck to you.




Edited 10/24/2005 7:48 pm ET by summer_gal