Just told, son has PDD-NOS or Aspergers

iVillage Member
Registered: 02-24-2010
Just told, son has PDD-NOS or Aspergers
3
Wed, 02-24-2010 - 7:52pm

We knew that he marched to the beat of his own drum, but we never thought PDD-NOS or Aspergers. I only learned how to correctly spell Aspergers - today.

I am scared, concern, and worried about my son. He is only 6 and in Kindergarten.

What do I do next??

iVillage Member
Registered: 02-28-2008
Wed, 02-24-2010 - 9:06pm

{{HUGS}}

It's a hard dx to hear. I felt a lot of grief, even though I was expecting it. I had a lot of fears too, but he's come a long ways in the 4 years since our dx and I'm expecting he'll do fine in the long run. You'll be surprised how they can develop and learn coping skills when they are supported in the right way.

It's important to know that he's still the same quirky kid that you've known and loved all these years. That hasn't changed, what's happened with the dx is that you've been given information that will help you help him to be the best he can be. The dx will allow you to access therapies and information that will make his quirks more understandable and give you ways of dealing with him. We can help point you in the right directions thru our own experiences.

Let the school know that he's been dx and ask for them to do an assessment to see if he qualifies for an IEP . He likely will, even if it's only for the social aspects of school.

Ask the professional who dx'd him if he/she recommends any therapies and for referrals to therapy providers. There may be recommendations for OT , speech, or a social skills group.

Check out your local library and bookstore for books on Aspergers and PDD-NOS. Amazon.com has a ton. Anything by Tony Attwood is good. Other books are good depending on what kind of quirks your son has. The Explosive Child is recommended for melt downs.

Hang out here. Read, post, vent, share. We'll help you through your journey as you learn to support and nurture your son in new ways.

Hope to get to know you better over time. Feel free to post anything on your mind or ask any question. we're here to help.

Andrea, mom to

Graham
Miles
Anson

Andrea, mom to

Graham
Miles
Anson
iVillage Member
Registered: 01-07-2008
Thu, 02-25-2010 - 6:50am

Welcome to the board, and the club. I guess it isn't a club most of us would have chosen to join, but it does have some benefits. The best one is that now that you know what you are dealing with you will be in a much better position to be able to deal with it. I think of like needing glasses: you can bump around for ages not being able to see the blackboard, and sometimes you might get given glasses that make the blackboard even blurrier, but once you get the right prescription (the right diagnosis, the right combination of help, support, therapy etc) then the blackboard can come into focus. Obviously it would *great* if you could see the blackboard without the glasses, but if you *do* need the glasses, better to try and get the right prescription.


I hope that makes sense to you!


Andrea has given you a good start. Find out as much as you can about Asperger's and how it makes your son tick - but bear in mind that each Aspie is different so your own knowledge about your son is just as valuable as any book or therapist. From my own experience, having the diagnosis, whilst scary, was more helpful than not having it (when we were just struggling with an 'odd' kid and issues we didn't quite understand). I find it easier now to understand and support DS, and so does his school and family and everyone around him, which in the long run makes for a happier DS better able to deal with the strange NT world around him.


Good luck, and welcome to the board, and feel free to jump in with any questions - there are a lot of BTDT mums here and I can pretty much guarantee that you are *not* alone in any issues, fears or problems you are having.


Kirsty, mum to Euan (11, Aspergers) Rohan (7, NT) and Maeve (4, NT)

"My definition of housework is to sweep the room with a glance"


Follow my blog on http://mumsnet.com/blogs/kirsteinr/


 

iVillage Member
Registered: 10-08-2009
Thu, 02-25-2010 - 1:59pm

Hi.