Let the Stress Begin!

iVillage Member
Registered: 04-11-2010
Let the Stress Begin!
12
Thu, 08-05-2010 - 5:08pm

Just a little background. My 6 year old dd was diagnosed PDD-NOS a few months ago. We don't have a detailed report yet, but we just finished testing. Her ped psych wanted to wait until she was 6 to do all the testing, she just turned 6 in June.

I can feel the stress starting to build, school starts in 2 weeks. I'm very anxious about how 1st grade will go. It's been so nice all summer not having to worry about how her behavior was at school (social issues). No yellow lights or red lights to discuss. She does not deal well with change so I can only imagine how the school year will begin. I've been being very positive with her and talking about it. She's excited about going, so that's a plus.

I'm not sure if she will have a 504 or an IEP, but she will need some special treatment it seems. That also makes me nervous, the thought of going through the process with a new teacher. I was very fortunate that her kindergarten teacher was someone I knew personally, so I was very comfortable talking to her. I've never met this teacher and won't until the day before school starts. Her ped psych suggested preferential seating (away from windows and doors) and she is a very strong visual learner and had a difficult time learning from just telling her things, another accomodation she may need. He also suggested having her speech and language tested.

I keep hearing how important 1st grade is now, how much they need to learn during this year. I just worry she's going to fall behind or have a very difficult time. In our district you cannot hold a child back, even if the parent requests it, so she has to make it work.

All of these things stress me out. I do feel very fortunate that I have good friends that work at her school and give me great advice. They even took extra time to match her with the teacher they felt was best suited for her.

Her ped psych is trying to get a group together of families like us. One group for the kids to work on their social skills together and one for the parents to talk about things. I'm really looking forward to this. It will be nice to sit down and talk to others who are going through similar things.

Thank you to anyone who read through all this. It's just nice to get this out to people who probably understand what it is like.

Tami
Lilly (6) PDD-NOS

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iVillage Member
Registered: 11-28-2006
Wed, 08-11-2010 - 2:22pm

Oh absolutely Heather. And I know there are some kids who are just a bit quirky or who are so high functioning they don't need the services, but damn school, don't look at me like it's just my parenting and my kids are tantruming, or they have no friends, or they're getting bullied and then say no, sorry, no IEP, there grades are too high.

My kids suffered for years because of that.

iVillage Member
Registered: 04-11-2010
Fri, 08-13-2010 - 11:19pm

Thank you all so much for your responses.

As of right now, the school does not know about the PDD-NOS dx. It's been a long road (which I've heard is common) getting here. We had an incorrect dx of ODD late last fall, but her teachers and I did not agree and it took me some time to find a dr locally that had good references. She was diagnosed a few months ago and her kindy teacher was aware, but there is nothing in her file yet. Her psych wanted to wait until she was 6 to start the testing for that age group. He's working on the report now and will have it either before school starts next Thursday or within the first week. I will be giving her teacher a copy as soon as I get it. So far his suggestions are preferential seating away from windows and doors and visual aids as she is lacking in her auditory learning skills.

So far Lilly is holding her own with what she has learned, but her kindy teacher is afraid that without some help, she will begin to fall behind.

I'm very fortunate to have friends that work at Lilly's school, ones that will tell me the best way to go about getting her the help she needs.

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