Lower functioning than we thought?
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| Wed, 02-22-2006 - 5:34pm |
I was talking to my DH and my therapist (who is also Mike's therapist and autism specialist) about this today.
Mike is just getting further and further into his own head and harder and harder to communicate with. We have been working on the same 3 rules for the last 7 years and he still doesn't get it. He doesn't even realize often when he is doing one of those behaviors. Then when you try to do a social story or talk about the problem he can only follow the conversation for minimal turns and never comprehends it. It is very frustrating. Anyway, some situations have come up recently with behavior that DH and I are thinking we are going to have to go back to the token system we used when he was 3-4 years old. It is more a token system for more autistic type kids with visuals of his rules.
I mentioned to DH that I thought perhaps Mike was lower functioning than he appeared and we thought. He agreed probably so. I asked the therapist too. She agreed but added that he is on the verge of puberty and it may be puberty that is causing him to have more and more difficulties. That hopefully his brain will come back at 16 or so, lol. (FUN!).
Anyway, I don't have any questions or know really why I was typing this here. It is just on my mind. Socially/emotionally the therapist put him at about 4-5 meaning we only have about 30 years at this rate for him to grow up. Sorry. I will stop being snarky now. I am just tired and i have to go get them from school and go to hippotherapy.
Renee


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I'm so sorry, Renee... You sound really frustrated and defeated, and boy I think we all know that feeling all too well. But I can only imagine what you're going through right now. I wish I could help in some way! I guess all we can do is keep on fighting, and keep on hoping...
(((HUGS)))
Jennifer
((hugs)))
Oh, Renee......lots of cyber chocolates your way!!!
Mike and Sam sound so much alike. I'm not convince social stories work at all; they don't seem to help Sam with the big rules we've been working on his whole life either. If the vice principal tells me that I need to "stress" keeping his hands to himself again I think I may explode. I almost laughed right in her face when she said that to me. There could not be a more prevelant topic in our house on a daily basis.....well other than Bionicles, Star Wars, Magnetix, or legos........
We are still working on BMs in the toilet, washing hair, cutting nails. I'm not sure he'll ever be able to take care of himself. But then again tonight he volunteered to wipe off the kitchen counter and stove top! He even did his night time chores (feed the fish, pick up toys, sit on the potty) without too much of a hard time. I'll take the easy times when I can get them!!!!
I'm there with ya.....
Chrystee
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