Multi topic vent by insomniac
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| Fri, 12-15-2006 - 2:49am |
UUUUGGGGHHHH
The school won't give me speical area progress notes and and probably hates me for asking...
I have requested/complained semi-formally by e-mail and now have to take a bottle of patience pills before I bring out my poison pen and address SOMEBODY formally..
Still have to pick who that somebody is, the superintendent? the school board? The state's quality control people?
I have had a tense relationship for years with the person who is in the middle of my informal request/complaints about progress notes, and that same person will soon chair my other son's upcoming transition from Early Intervention to Preschool Special Education...
House is a mess, holiday shopping not done, holiday cards not sent, hair needs highlights, short on cash....
DH always seems to be working the "night shift" leaving me alone with two ASD munchkins who cannot read each other's cues, and are both completely inflexible about language, and get into fights instantly about things like, "It's not a truck, it's a vehicle," "No, not a vehicle it's a truck!" and the fights are intense and quickly go to hitting. Or, the 5 year old gives the 2 year old unwelcome kisses and hugs, no respect for his space, with the same outcome.
I am so stressed out I am yelling at my sons for doing asperger-y things that they can't help. Or if they can help it, it is with the help of social stories and sensory diet interventions that just arn't coming to me in as easily as "Will you just stop touching your brother??? When he says "no," that means he doesn't like it!"
Then I feel awful, like I'm yelling at a child with a stomach virus to stop vomiting. Not to mention I am not helping him learn positive behaviors.
Oh, and I work full time, trying to actually bring improvements to my agency, and the people who report to me all seem to have no children or grown children. So when they have a personal crisis, like their cable TV is out and they missed their favorite show, or their new boyfriend isn't calling back, or their friend never shows up on time for a restaurant reservation, all I can think about is that they actually have time to watch TV, date (for me, I'd like time with DH doing something other than nagging him), or eat out. Thank goodness I'm a good actress. They think I care about their problems.
DH comes home from "work" and tells me how little work he had to do...how unfair is that? If I had his job, I could handle my correspondence with schools from work, etc.
Now I can't sleep, so I will be tired and have fewer resources to draw on when my children act up tomorrow evening. If only I had a full-time autism aide at my house that I could assign to update picture schedules, write social stories, etc. I can't do everything that needs to be done.
Take me away!!!!!!
The overwhelmed and self-pitying Sidney


It's sooooo late, and I'm soooooo tired.
((((((Hugs)))))))) to both of you.
Sidney,
It sounds like you were having a "Stop the world. I want to get off"
visit my blog at www.onesickmother.com
Hugs to you both.
I'm having problems getting progress notes this yr too. I had to ask for them. When they came it was only on the goals for organization and writing. And attached to the progress about organization was a note from the sped. teacher about how she messed up and didn't explain to the aide well enough that Kyle was responsible for packing his bag to go home at night (with her guidence) so the aide had just been doing it for him. URG!
I never got any notes about OT or SLP, even after emailing them seprately. Hopefully I'll get them at the IEP on tuesday.
I hope you are able to get some sleep tonight and are feeling better.
Samantha
Well girl, some big monster hugs!
Will you be getting any time off over the holidays to sit and relax a bit with school out, etc? I know leading up to the holidays is crazy but I typically really dig that week inbetween short of the "It's not a truck, it's a vehicle" conversations. LORDY do we have those too. I had to laugh at that (sorry) but I understand your frustration. Only a household with 2 of 'em would really get the full brunt of that one. Complete with them running to mom expecting me to make the other one say it their way.
With the holidays coming up, sounds like a transition to preschool, etc. Life is not being kind right now. I hope you find some way to relieve some of the stress. For me insomnia is the first sign of real trouble for myself so take care of yourself.
Do you know the preschool folks well? Will it get better when ds does transition to preschool? Maybe that will help.
Renee