Need P&PT. Will be in NIH study tomorrow

iVillage Member
Registered: 09-10-2004
Need P&PT. Will be in NIH study tomorrow
3
Mon, 01-21-2008 - 8:58am
I know I haven't told you all this yet, but we did decide to be a part of the study on autism at NIH.
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iVillage Member
Registered: 03-26-2003
Mon, 01-21-2008 - 9:57am

My thoughts and prayers are with you. After doing much research these last few days I can see why you would do this study if it brings some answers and an overnight EEG and MRI are some tests that all kids with ASD should have but due to doctors or insurance they don't.

It appears there is a possibility Cait may need a spinal tap fairly soon as well. I was doing some research and it is more uncomfortable than painful. Just like an epidural. It is that first numbing shot that is the worst because of the sting. Hopefully things go well for him.

My neuro did some research on autism and the family connection to autoimmune disorders. We also had some blood tests done for Dave for metabolic disorders based on his EEG. It all seems interrelated so I iwll be thinking about you.

Renee

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APOV on Autism
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iVillage Member
Registered: 09-10-2004
Mon, 01-21-2008 - 10:11am

Renee, thanks so much!

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iVillage Member
Registered: 03-27-2003
Mon, 01-21-2008 - 11:58am

I'll be thinking of you.