New to the board.....

Avatar for mamabearof2
iVillage Member
Registered: 08-30-2003
New to the board.....
3
Sat, 08-30-2003 - 2:04pm
Hello everyone. Our son was diagnosed about 2 years ago with PDD-NOS-he is 15 years old now (apparently he must have mild PDD-NOS) and just entered High School. The school is not familiar with this diagnosis. I provided the middle school with a 27 page description of PDD-NOS and they placed it in his file and the teachers read up on it-I am hoping high school does the same. Before that he was diagnosed with ADHD (I have been reading where PDD-NOS has been misdiagnosed as ADHD) which we thought was not the right diagnosis. My question is--where is everyone from on here (we are in Iowa) and how many has children with PDD-NOS that was misdiagnosed and do you find it difficult or easy to work with the schools?

I look forward to getting to know about your families-

mamabear

Linda5Fburgerbear.jpg image by suzyqe1            &nb

iVillage Member
Registered: 07-11-2003
Sat, 08-30-2003 - 3:53pm
Welcome to the board, Mamabear! It's great to have a teen on the board. We have a few and it's always nice to have more. :)

We live in northern CA. I have 3 dd's on the spectrum and two were mis-dx'd originally. My 12yo, Ayla, was dx'd as ADHD (Inattentive) when she was 5, but she has PDD-NOS. My 9yo, Jade, was originally dx'd with ALIS (she was 9 weeks preemie) w/ severe MR. With her we were told that she would always be a mental vegetable and never learn to walk, much les talk. But that was many years ago and she has had her dx adjusted to HFA with mild MR (and a few other things). She now walks, talk, plays, just fine. She is very obviously autistic, but very high functioning now. My 3yo, Eva, was dx'd with ASD, no mix-ups there, her sisters and her dad forged (AS) the path with the drs for her.

I am a homeschooler, but I did have Jade in a program with the local district. I thought the extra 'professional' help would do her good. It didn't. But I think that was just this district, there's one 20 miles north of us that DH and I would love to have her take a morning schedule with. They have very advanced programs and IEP fittings for people on the spectrum....ANYWHERE on the spectrum.

Well, that's us. Again, welcome to the board. Feel free to jump right into the conversation. :)

Peace,

Candes

Avatar for maresgood
iVillage Member
Registered: 03-27-2003
Sat, 08-30-2003 - 5:41pm
Hi MamaBear, My name is Mary Ann & I have a dd with AS & ADD which I've been told by the psychol. that they go hand in hand. She is 10 soon to be 11 & wasn't diagnosed till last yr. I am an R.N. & had never known about AS or PDD! I've had to do some research. I knew my dd's behavior was odd but couldn't figure out what was going on until an astute teacher brought it up. I was SO thankful for finally getting a diagnosis. I will be interested to hear how your ds does in high school. I have 1 dd going to highschool this yr. too. My other is going into 6th. What kind of spec. ed services did you have in middle school? How did your son do? Kids can be so mean in middle school that I worry about my dd & kids making fun, etc.Anyway, nice to hear from you. Keep posting ~ MaryAnn
Avatar for mamabearof2
iVillage Member
Registered: 08-30-2003
Sat, 08-30-2003 - 6:12pm
Thanks for the nice welcome everyone! Please excuse the type-o's but when I begin typing my thoughts go faster than my fingers.

I was very worried about middle school (I am not called mamabear for nothing, if someone looks wrong at my cubs I am ready to defend) DS had a HORRIBLE 5th grade teacher that called him odd and strange and if she put him in a closet he wouldn't knock to get out. I tell you she was HORRIBLE. I heard of this toward the end of the school year and went to the Principle. Keep in mind he was not diagnosed with anything except for ADHD then. I thought about taking the PDD-NOS info I have to her and flash it in her face and say "see there was a reason he behaved the way he did!" He was and is NOT a difficult child, he has always has a sweet spirit just kept to himself. Mary Ann I understand what you mean when you say thankful for finally getting a diagnosis. Anyway in Middle school he was in what is called Learning Connections where the classroom is small and he did not go from class to class except for math which is his education disablity. He did very well with Learning connections and I was concerned of being bullied since these kids are prone to being bullied. I work with teens and have had them come to me saying that DS was being picked on and they took up for him. I know kids will pick on other kids so I am educating on how to handle bully's.

Anyway in High school. First he was in main stream high school with regular classes and was getting lost and confused. I contacted his counselor when they had their first full day of school and had her to look in his file to catch herself up to speed on his disorder. That day she pulled him out of classes and now he mainly stays in one class however the teacher there says he whizzes right through her stuff and feels he needs to be challenged more. We have to find his nitch and I won't stop until we do. Oh yeah he is taking drivers ed this quarter. It took him 5 try's to get his permit. I want him to have as much of a normal life as he can.

Sorry for rattling on but another issue. DH wants us to sign him up for disability but I am dragging my feet I guesss. I don't want him held back in life and wonder if he could work without relying on disability. Thoughts anyone?

Mamabear

Linda5Fburgerbear.jpg image by suzyqe1            &nb