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Registered: 03-27-2003
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Mon, 11-15-2010 - 2:39pm

Hi everyone,

I have been lurking for a while and I guess I should introduce myself. My name is Becca and I have 3 boys. My oldest is 9, has had 2 heart surgeries and has an anxiety disorder, pica, and sensory integration Dysfunction. My youngest is 5 and has an Arnold Chiari Malformation. My middle is the one we think may have Aspergers.

DS 2 is 7 and has always been a bit different. He could identify his letters at 18 months with no instruction at all, just TV. He could sing in tune very early, and we now know he has perfect pitch. He has always been kind of different. Very proper in his speech, choosing a subject or toy to focus on, and socially awkward. We've also seen some very sensory things from him like stopping abruptly at disney world many times and feeling the floor, walls, or whatever else seemed interesting (this past summer). After that I noticed hand flapping for several weeks, though he seems to have stopped that. There are lots of other things. I think he's at the very mild end but I really do wonder. I started thinking about it early in the summer but we had our hands full with Getting his older brother diagnosed with his difficulties, and DS 2 just didn't seem as critical.

DS 1 started going to a therapist for his anxiety. On the first day of therapy I had to bring all 3 boys with me. DS 2 played with legos and got distressed that a piece was missing. Then he wanted to go outside with his older bro to see the animals (the therapist has a farm). While we were waiting for DS 1 to return DS 2 pinched his finger. He cried about it for about 1/2 hour. The therapist offered a bandaid but he didn't want the one she offered, he wanted one from our van. Then we had the chance to all go see the horses and he refused, wanting to stay by the van instead.

The next session she asked me about him, whether we'd thought about Aspergers. I did a questionnaire and he's fully within the range for his behaviors. His teachers don't notice anything like that at school. He interacts with one other child who is much like him. His interactions seem very normal with that one child, but he doesn't seek out others. He doesn't say hi to friends that we see when we're out unless he's prompted to do so. He's very much a loaner and has very imaginitive solo games that he plays. So I'm not really sure if he has it or not.

Thanks for reading this, I look forward to learning from all of you as we figure out what's goign on with him.

iVillage Member
Registered: 09-27-2007
In reply to: hokie1999
Mon, 11-15-2010 - 7:31pm

Hello Becca and welcome to the board.

Jessie Mommy to Gabe (5.8 yrs old ASD, CAS, SPD) and Zane (1.10 yrs old ESD)

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Avatar for hokie1999
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Registered: 03-27-2003
In reply to: hokie1999
Mon, 11-15-2010 - 8:18pm

Thanks for the welcome. We have been through the school system testing w/ my older son for his issues. Since the anxiety/sensory integration don't seem to have much of an impact on his grades he doesn't qualify for any services. They are accomodating him in several ways but they don't have to. The school testing actually found nothing wrong with him, we paid (and are still paying) for private testing that uncovered everything. I knew a 9 year old having tantrums wasn't right, but he doesn't do it at school (I think because of the fairly rigid routines).

As for Owen, my middle, I don't think he'll qualify for anything either. He gets 100% on almost all of his work, reads and comprehends at a 5-6th grade level, and he's in second. So it's not causing issues at school. I may start him in some occupational therapy. The OT my oldest will start going to also has some social play groups that will start during the winter. I will definitely sign him up for that. So far when we do play groups he ends up playing alone. Even when his best friend comes over they play together for a while and then he ends up playing alone. Completely by choice but I'm trying to get him to enjoy social activity a bit more.

Thanks for the support. It's frustrating because he seems typical enough, but when he flips out because a bee is near, or he gets a tiny injury, or he's feeling everything around him, it's obvious to me that he's not completely typical. I worry about him getting older and getting teased.

BTW, my oldest is named Gabe too!

Becca

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Registered: 01-07-2008
In reply to: hokie1999
Tue, 11-16-2010 - 5:49am

Welcome to the board. Your son sounds very like my son at that age. There are a lot of red flags there for Asperger's Syndrome. I do think it is worth having him properly evaluated, even if he isn't particularly impacted at school, because then you can understand how to support him better and possibly head off some problems later. Particularly things like social and emotional development, and organisational issues, may well impact on his academic work later (eg in middle school where he has to work in groups and has more complex homework). For a while we struggled with our DS because he was so academically brilliant in many ways - the archetypal little professor - that his teachers couldn't understand his quirky, odd behaviours that sometimes got him into trouble. Even now all of Euan's academic reports are fine, but his behavioural issues that stem from the Asperger's do have an impact on his academic, social and emotional development.

Forewarned is forearmed!

Kirsty, mum to Euan (12, Aspergers Syndrome) Rohan (7, NT) and Maeve (4, NT)

"My definition of housework is to sweep the room with a glance"


Follow my blog on http://mumsnet.com/blogs/kirsteinr/


 

Avatar for hokie1999
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Registered: 03-27-2003
In reply to: hokie1999
Tue, 11-16-2010 - 2:58pm
Ok. Maybe I will look into it. I'm sure the school will act like I have 2 heads but oh well! It was interesting b/c when they missed Gabe's issues I got a very cold feeling from certain people on the team (not all) but after we had the private testing done the attitudes became much more positive. Like they thought I was crazy until I had proof that I wasn't. Frustrating!

Becca