Not at all sure...(Young mom here need advice)

iVillage Member
Registered: 07-14-2011
Not at all sure...(Young mom here need advice)
5
Thu, 07-14-2011 - 12:16pm

My 3 year old daughter's pediatrician said she 'may' have a pervasive developmental disorder. I don't have insurance and don't feel we are getting the best advice here for her. He really didn't give any other than we will have to watch her development and if any significant problems arise that certain therapies might help. I have no idea what he's even talking about! I really don't know much about pdd or what to do. I don't want to just sit around and wait until she's 5 and in kindergarten and having problems.

She talks and she will respond to questions and interact sometimes on her own and she can do many things on her own, had no problem with potty training, likes to help try to dress herself, etc. The things that do worry me is she doesn't really like to play with other kids, but she's not shy. She just doesn't seem interested. She can be at a birthday party and while the other kids are playing a game, she wanders off to check out the balloons or I find her off in a corner playing with her shoes. If I try to get her to play with the other kids she will go over to them, but it takes a lot to get her to really interact with them very much. She does seem easily fascinated with things that aren't toys. Just random objects around the house and she does like to spend a lot of time on her own. She is very active, but doesn't usually need to be entertained. Still, if I play a game with her, watch a movie with her, or tickle her or talk with her, she acts just like any little kid to me. I don't really know if anything at all is wrong or if the doctor just put this idea in my head and is making me worry too much.

What should I do, if anything? Should I just keep watching and seeing how she is doing? Should I try to find some kind of specialist and get some kind of testing done? I really don't know what to do at all.

iVillage Member
Registered: 01-09-2003
Mon, 07-25-2011 - 7:47am

welcome, you have received some really good advice, I would call your Dr's office and ask about a referal to Early Intervention or ask them how to contact them yourself.

iVillage Member
Registered: 01-07-2008
Wed, 07-20-2011 - 7:27pm

Welcome to the board. I think at this stage you need to listen to your mummy gut instinct. I *knew* there was something off with DD1, and everyone told me he was fine until he was 4...and I *knew* that DD2 was a textbook 'normal' kid even though everyone was concerned about developmental issues. I was right, on both counts. Professionals are good at picking up stuff we might not know about, but they also don't always get it right.

I'd keep an eye on her and get her evaluated if you can. There may or may not be something, and the process of getting a diagnosis (or not) can be long and frustrating, so be prepared for that. But it can unlock some help and support that can be useful. If she's a bit quirky, great. If there's something more than that, then the sooner you find that out the better position you are in to help her.

Either way, she's your lovely daughter, no matter what, and a diagnosis (or not) will not change that, don'tworry.

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Avatar for Cmmelissa
iVillage Member
Registered: 11-13-2008
Fri, 07-15-2011 - 2:27pm
Hi rebeccaccm, welcome to the board. Please let me know if you have any questions about the site, I'm here to help. I'm glad you found this board, the members on here are very supportive and knowledgeable.

I hope that you can get some answers soon, not having a specific diagnosis can be very frustrating and stressful :(

iVillage Member
Registered: 02-28-2008
Thu, 07-14-2011 - 3:42pm

PDD-NOS [pervasive developmental delay - not otherwise specified] is a form of autistic spectrum disorder.

Andrea, mom to

Graham
Miles
Anson