OT: Two new DXes
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OT: Two new DXes
| Wed, 08-08-2007 - 8:36pm |
As many of you know, I have a rare genetic connective tissue disorder called Ehlers-Danlos Syndrome.
| Wed, 08-08-2007 - 8:36pm |
As many of you know, I have a rare genetic connective tissue disorder called Ehlers-Danlos Syndrome.
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Paula,
I'm just popping in, but I just wanted to offer ((((hugs)))) in case I don't get back after the kids are in bed.
I can't believe you've been through all of this and you are merely "beat."
It must be nice for all to have a name. I can't believe that story that the nurse would make the executive decision not to call you! Grrrr. But at least Siobhan gets the corrective experience of hearing that their is a medical reason for her symptoms and that she is believable.
Sidney
It sounds like you had an exhausting day! Is Siobhan's hip dislocation a congenital thing? Reason I ask is that I had a dislocated hip when I was born but they didnt find it when I was born. Hereditary thing, runs in girls in my family. Long story short, I had to have 2 corrective surgeries before the age of 2 to reconstruct my hip, basically to rebuild my left hip, full body casts, etc, plus 2 knee surgeries when I hit my growth spurt in my teens to correct the length of my left leg which at its worst was 2 1/2 inches shorter than the right. My mom said that my hip used to pop out of the socket when she used to change my diaper, used to freak her out!
Christine
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Christine
oh (((Paula))) when I saw that title I just knew what this was.
BIG HUGS TO YOU! I haven't been around very much lately so I didn't even know about your dx but I do remember you having some problems a ways back. I'm glad to see you're taking it in your stride. They don't call us the fightin Irish for nothin!
Teresa
Geesh, Paula! Hugs to all of you...get some rest. You've certainly earned it, darlin'!
Amy
For the love of Dia woman!!! Tell your body and the various genetic links to "give it a rest" already;)
Glad to hear Pete may work his way outa dx; and I KNOW you will be draped all over the schools to get them both PT. What th hell woman...no more dx please,.....( unless it's me talking about my kids,...lol)
Dee
Man oh Man Paula, I know you expected it but still! I am glad Peter's is provisional and may just be the need to have the hypotonia addressed. I will cross my fingers on that one.
Maybe NOW you will get dingleberry nurse to listen.
Renee
Christine,
I do remember a neighbor of ours had a girl with a congenital hip dislocation. That woman
visit my blog at www.onesickmother.com
hehehe
You don't know the half of it!
visit my blog at www.onesickmother.com
Well,
visit my blog at www.onesickmother.com
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