OT: Update on Angel

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Registered: 03-26-2003
OT: Update on Angel
2
Sun, 06-01-2003 - 3:55pm
Well, as some of you know, my youngest dd, Angel, now 5mo old, was born with 7 different orthopedic problems and there were concerns as to whether she would ever be able to walk.

Well, here we are 5 months after her treatments began, and she is coming along pretty well. She started her first set of double serial castings when she was 3 days old and has been through everything from weekly cast changes, to PT, to tiny surgeries to lengthen numerous tendons. We still don't know if she will ever walk without assistance, but she WILL walk. HOOOOORAY!! She has 3 major surgeries scheduled to begin in late August. In the meantime we are concentrating on her PT.

Darn the luck if she wasn't actually PRESCIBED one of those Ultrsaucers from Evenflow. LOL. I went and picked it up last night just before the store closed (we had a BBQ before that) and DH spent an hour fussing and cussing over all the parts involved to put it together. LOL. Angel spent all of 10 minutes in it before she got fussy and wanted out. But her supervising nurse at Children's had said that it would be that way and to just keep putting her in it a few times a day until she got used to it. The idead is that it will encourage her to use her legs. Right now they are stiff from being is casts and long braces for so long and they don't straighten all the way out. The dr wanted her to use the Ultrasaucer specifically because aside from encouraging her to reach with her legs it also turns easy, wobbles, and bounces, which he says will help her with her dexterity and ballance.

Oh, and here's some really good news on her. She is AHEAD in her cognative development and gross motor skills of the upper body. (Happy happy joy joy) Her ped did a full cognative test and tracking on her because of the level of autism in our family. He says that while AS and PDD can't be ruled out at this point she is deffinately not a classic autistic. She says "Mummm" for me, "Dawww" for Dh, and "Woooooo" when she dirties her diaper and wants changed. She also makes this "ffft ffft" sound that we thinks means "Jade! Eva! Get the heck away from me, your smothering me" Tee Hee. Actually the dr says it's her 'no' sound. She still has yet to come up with a 'yes' sound though. The ped says its normal for babies to learn signal 'no' before 'yes' since a giggle, laugh, or smile will usually do the job for them. She is also holding her own bottle, but she DOES drop it pretty easily (like every time she turns her head). And dispite the problems with her legs she can sit up with very little assistance. She needs help getting to the sitting position, but once she's there she's fine. Wel, at least until she she shifts forward like she wants to craw. The she falls flat on her face because her legs won't do what she wants them too. But she's gotten pretty good as scooting......well, dragging herself is more like it. LOL. She has VERY strong arms.

She is also incedably social so far. She loves to play and refuses to be left alone like my other kids did. If she's awake she wants everyone's undivided attention. She also loves to be shown new things. She's just as apt to give you her attention as she is to demand yours. She watched with great interest while her dad put the Ultrasaucer together. She did the same thing when we went to the aquarium last weekend and we were listening to the shark expert talk about the Nursesharks they had on display.. when Eva got boered with it and stated talking Angel looked at her and said "ffft ffft" until she stopped (okay so DH stopped her by taking her outside)

Okay, I've rambled on enough. It's just so cool to see her making such great progress.

Peace,

Candes

Peace,
Candes  
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Registered: 03-26-2003
Mon, 06-02-2003 - 11:40am
Wow, she sounds like she is doing great! I don't think any of my kids had those language skills that young. Even the best ones were just babbling. Great about her motor skills too. How great scooting at that age and sitting up. Dave was my only one to get around that early (crawling at 5 months) and I was told that was quite advanced. Mike crawled at 6 months.

I hope you continue to get such great reports.

Renee

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Registered: 03-26-2003
Wed, 06-04-2003 - 9:53am
That is great news Candes! What a thrill to see her doing all of that stuff. I laughed over her communicating. It sounds like she is going to be quite the talker:) I hope that Angel goes from strength to strength. She sounds like she is determined enough to overcome all of her othopedic problems.

(((hugs))) to you Candes.

Larissa

Larissa