pdd-nos vs "Provisional" pdd-nos

iVillage Member
Registered: 02-27-2010
pdd-nos vs "Provisional" pdd-nos
6
Sat, 02-27-2010 - 4:35pm

Hi everyone. I am new here. I have an 11 y/o boy. by age 2- adhd, possible pdd-nos. age 6- cap deficit, adhd, and pdd-nos dx.
age 9 possible mood disorder. age 10 and 11 mood disorder, provisional bi-polar and depression and provisional pdd-nos.
UMDNJ of newark, nj autism center reccommended for testing.

what is the difference. i don't see one. below is a poem that explains him best. Please give me opinions and also let me know if any of you have children like this. Thank you luvinmom4life@aol.com

From infancy to eleven I've watched my child
Now a pre-teen; no longer wild.
Rambunctious, moving here and there.
People always stop and stare.
Play and learn, at home and school.
He needs a friend to try to be cool.
He doesn't like water over his hair;
Looks to escape anywhere.
While standing near a quiet serene brook
Every fiber of him gently shook.
Everything in order is his rule.
Anything that spins is his tool.
Loud sounds are too much for him to bear.
He covers his ears and sits over there.
At my heart he gently tugs
When he, finally, allows my hugs.

Ty all for reading.

Mary E. Barabos
iVillage Member
Registered: 10-03-2004
Mon, 03-01-2010 - 7:14pm

Welcome to the board. I have a 12 year old son who is dx'ed PDD-NOS. He does not have a mood disorder or adhd and is not bi-polar, but sometimes his PDD-NOS makes for outbursts and down moments that are more extreme. In his case, everything that goes on with him is traceable to sensory issues and missing social cues. There are others on this board that have the dx'es your son does and I hope they chime in here soon.

We live in NYC, but DS actually attends a school in NJ that is for kids on the spectrum. He is doing very very well at this school and learning so much.

Thanks for sharing your poem. Your son is lucky that he has a mom who loves him so much and who understands.

yours,

Sara

iVillage Member
Registered: 02-27-2010
Tue, 03-02-2010 - 10:57am

ty for replying. I was beginning to think it was stupid of me to post anything. Kinda thought that my don't difficulties are nothing compared to others'. i guess my self esteem is in the pits.

Mary E. Barabos
iVillage Member
Registered: 02-28-2008
Tue, 03-02-2010 - 12:23pm

Raising a child on the spectrum is hard and self-esteem can really take a hit from it. You are not a bad mother, you have every right to be feeling the feelings that you are, and you are not alone. Everyone of us has had days when we wished it would just stop being hard and give us a break.

You obviously love your son and want to do what is best for him, but you're just a human too and need to take care of yourself as well. We often refer to the 'oxygen mask' scenario where you need to first put on your own oxygen mask before helping your child put on theirs. Find ways to replenish yourself, even if it's just taking a brief walk or sneaking in a nap while they are at school.

I just wanted to give you a few words of encouragement since you seemed so down. Life isn't fair, but it's also true that you're stronger than you think. Keep the faith.

Andrea, mom to

Graham
Miles
Anson

Andrea, mom to

Graham
Miles
Anson
iVillage Member
Registered: 02-27-2010
Tue, 03-02-2010 - 12:47pm
ty for your words of encouragement. As far as taking a break, for many reasons, I ended up in a clinical depression, nearly catatonic. 11 months later i have finally come back (at least about 85% of the way). Sleeping and in/out of the hosp for so many months--(my husb took take of everyone.) I am DONE "resting". I feel rotten that everything went south the way it did. But yes i do remember to take breaks now. and so does he.
Mary E. Barabos
Mary E. Barabos
iVillage Member
Registered: 11-28-2006
Tue, 03-02-2010 - 12:51pm

Hi,


I also just wanted to welcome you to the group.

iVillage Member
Registered: 02-28-2008
Tue, 03-02-2010 - 2:25pm

{{HUGS}}

Don't beat yourself up about your depression. I had a major one with hospitalizations too. It makes my note about taking care of yourself all the more important because if you stress yourself out again, you'll risk a relapse.

Just keep putting one foot in front of the other, pace yourself, and do the best you can. I'm glad you're feeling better but as you noted, you're still not at 100%.

Kick back and make yourself at home here. There's no one who's going to judge you. We've all been kicked around too much as it is, to judge anyone else. Feel free to ask questions, vent, cry, whine, share, brag, or just generally express yourself. I think you'll find us a generally accepting bunch.

Andrea, mom to

Graham
Miles
Anson

Andrea, mom to

Graham
Miles
Anson