Ped Neuro says head circum. is 90th%

iVillage Member
Registered: 11-13-2003
Ped Neuro says head circum. is 90th%
Sun, 04-04-2010 - 6:37pm

We saw a new ped neurologist a week ago and I learned some new things.

iVillage Member
Registered: 01-25-2007
Mon, 04-05-2010 - 4:13am
I've never had any doctor comment on my son's head size, but the pedi did mention it when my NT daughter was a baby. Both kids have large heads and so did my late husband. I would label them all "high functioning". I understand your concerns. Those are a lot of stressful tests to try and get your son through. We never had any of those tests done so I can't offer any advice on them. I would encourage you to explore keyboarding, it has made a big difference for us as handwriting was a trigger for behavioral issues. Those have vanished since he has been allowed unlimited access to a computer for writing. Extra time is important too. When all the tests are done you can really sit down and analyze how he is being impacted at school and at home. We also found that the low muscle tone was making sitting in class or on the floor in groups for long periods of time intolerable as well. Good luck and keep us posted.
iVillage Member
Registered: 03-27-2003
Mon, 04-05-2010 - 8:54am

We saw a neuro when Tom was 2 and still not talking at all.


iVillage Member
Registered: 09-27-2008
Mon, 04-05-2010 - 9:11am
It is my understanding that there is a correlation between ASD and head circumference.I have been asked in the past by Dr's about my d's head size as a infant. I do not remember what percentile she was in but it was large.I put it down to a family thing.
My d also has severe motor delays and would be considered very high functioning.She is 14 and always been in a regular classroom with accommodations only until recently where we have pulled her out of school not for academic reasons but for lack of supports with social competence.
iVillage Member
Registered: 03-25-2003
Mon, 04-05-2010 - 11:36am

For what it's worth, both my kids (#1--ADHD+something & #2--nothing more than some OT type issues) had head sizes that were off the charts. It caused issues with finding hats to fit, but that's about it.

I know for sure the Dr said it was nothing to worry about when they were infants. Because, you know, new parents worry about everything. And no eval's ever asked about head-size (birth, they ask about birth all the time!). It might be a more-common-in, but not at all causal thing? Though they used to say Aspergers correlates to a certain body type (skinny), rib-cage formation thing, and I haven't heard anyone talking about that lately, either.

My NT did a brain MRI last year at age 8 1/2, unmedicated, and it was one of those proud-that-child-could-hold-still things. I completely understand why you're scared of the possible results--but, seriously, you're going to go INSANE if you're like me & you think about it too much. Try distracting yourself, repeat that you'll deal with the results when you know what they are, etc., etc.--whatever works for you. Because it's such a waste to worry in advance of the data, when you can't control anything anyhow (so easy to say, so hard to do, sorry 'bout that!). I hope you find out something that will help you help him!!! It's so great that they're doing all that!

iVillage Member
Registered: 12-22-2003
Mon, 04-05-2010 - 4:06pm

Both of our spectrum kiddos had head circs. that measured off the chart. Interestingly though, our Aspie's head was "larger" than our Autie's head. In my opinion, it's a matter of correlation, not causation. KWIM.

The testing can be horrible. When Claire had her EEG at age 6, it was very traumatic. My husband took her, because I knew I wasn't strong enough. According to my DH, that's the day she stopped calling him Daddy and started referring to him as Marc. She kept crying for him to save her, and he couldn't. To this day, she still calls him Marc...and she'll be 10 in August.

I'm not telling you that to scare you, because honestly, Claire is much closer to being classically autistic than to being a child with Asperger's. She has almost no ability to reason, and at that age, she could barely communicate.

Hugs to you...both of you.

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iVillage Member
Registered: 07-25-2007
Mon, 04-05-2010 - 5:57pm

DS had his sedated MRI

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Registered: 02-24-2001
Mon, 04-05-2010 - 7:18pm

Good luck with the testing!!!

iVillage Member
Registered: 06-03-2006
Wed, 04-07-2010 - 8:51pm

son has had several mris with contrast.