Please tell me I'm not crazy......
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| Mon, 05-21-2007 - 1:11pm |
We had a terrible terrible IEP last thurs. Just for a re-cap, I took Chris to a doctor, paid 2800 dollars out of my pocket to find his Dysgraphia, and also to look for Asperger's.
Results came back as falling into the 70's for Written expression and also very low Visual Processing. The doc thought Bi-Polar, but I don't agree, I feel his rages are due to the AS. He also said he had a thought disorder and had major problems holding onto a conversation.
The doctor agree'd that he did have "Traits" of Aspergers, but didn't quite fit the spectrum. (I know that I really messed that one up as I truley didn't understand the questions that were asked on the Gilliam Autism Scale. Plus as time has gone on, I recognize more of his behaviors that would answer those questions better. Pulling out some childhood videos has helped also as I saw he didn't respond to my voice calling out for him and another video to were you see my friend walk up to him, put her hands out to pick him up and he didn't respond by putting his hands up. She had to it 3 times before he finally responded in a hesitant way. He was 10 months old at the time).
So anyway, I take the doc's report to the school and they do their own testing. Well of course everything they did showed he's fine!!! Everything averaged out, including OT and Speech.
They don't see the Autism either. The only things the teacher put as strange behavior was staring at his hands. She also puts in the report that he does strange things. She was asked this at the meeting and she mentioned how he rolls his eye's up in the back of his head (He has done this since he was two, and I had an eeg done to rule out seizure's, which so far nothing showed. I now tend to think its a tic, because you can tell its not something thats done on purpose, it just happens. She also said when he talks to you he gets his face real close to yours (which is something I have noticed too when he's with other kids). She also said (which isn't in the report) that he stairs off into space instead of doing work. Well she calls it daydreaming, I call it checking out and in his own world. And I told them "I do not put my child on a Anti-Pyscotic for nothing!!!!"
(Which btw has been a god send, I haven't seen a rage in 2-3 weeks from him.)
I know why they don't see Chris's Autism, I explained that he holds it together in school, has a very rigid personality and is very rule orientated. There's no way he's going to let it all out. He saves it up and brings it home and explodes with it. Believe me I have 5 pages of examples of Autistic traits that I see him display.
So far we did not sign his IEP, only that we all met. I'm waiting for a phone call back from a parent advocacy group to get some help.
Anyway, have you ever had this problem? That the school just doesn't see it? I almost feel like I'm crazy, and maybe I'm in a terrible dream and maybe I should just give up.
Lainie

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I guess what makes me the maddest is that they are totally not accepting the doctors report at all. Because they say so!
I also know if he had a different teacher it probably would be a bit different when it came to his odd behaviors. She's been a you know what from the get go. She actually pulled him aside one time, cornered him and accused him of pulling one on over me! The poor kid just fell apart. This was when I was just realizing the possibilty of AS.
I'm very lucky as the parent advocacy called me today and we have an appt june 5th. The next IEP is june 7th and they will come to the meeting. The lady was soooooo nice. She said hey even if you have to call my voice mail in the middle of a sat night and need to vent, please do lol. She says she has quite a few parents that do that lololol.
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