Prayers, white light, Pos thoughts .....

iVillage Member
Registered: 11-28-2006
Prayers, white light, Pos thoughts .....
17
Mon, 06-25-2007 - 11:17pm

For Chris for Wensday morning....

Thats when Chris starts his eval at the Regional Center and they will be testing him. For those who don't know, its been a nightmare for me with a few doc's. They just don't listen to the mom! Or believe it or not, they have some really stupid info regarding Autism. Like the doc from Stanford who didn't do any testing that said he couldn't have anything on the Spectrum because he didn't obsess over things like Telephone Poles or Shower heads... Oh and he said that the obsession never change (LOL I know you all will get a good laugh over that one)

Anyway, I am hoping and praying that this will be the last time he will be tested, at least for a long time. He's tired of tests (docs and the school), he stims everytime a new doc/school testing comes up.

I want and expect for Chris to get some help, otherwise, he won't and I don't know what we'll do. But he won't for sure without the proper dx.

He was dx-d by his Pysciatrist with Autistic Spectrum Disorder, but to the regional center, that means nothing until they test him.

I'm taking him off the Risperdal for a couple of days hoping it might help give better and truer test results. I already ok'd it with his Pys who is totally on my side and thought it was a good idea.

Anyway, I have been going thru alot of confusion and worry for the last 11 years with him, not knowing what in the hell was wrong, and I do feel at this point God owes me one.

Chris has been asking questions, and I need to be able to sit down and explain a few things to him. It won't be fair for him going thru his life not understanding why he gets confused, or why he can't understand his friends jokes, or why he struggles so much in school, and why he doesn't understand story's that are fiction ect....

Don't be suprised if I bump this if i need to up till wens morning. I need all the prayers I can get and lurkers can help out here too :).

Thanks guys, your the best!

Lainie

Pages

iVillage Member
Registered: 11-13-2003
Mon, 06-25-2007 - 11:35pm

Hugs and prayers Lainie. I wish you the best with the eval. It is a lot of hoops to go through. We just got rejected by the Regional Center and can appeal but so far we have decided to wait and see how our son does in the coming year. Please, I hope I'm not bringing you down. My ds does exceptionally well in new situations with new people. If they could have seen him at home or school. Well .. . I'll be thinging of you guys.

Molly

Molly
iVillage Member
Registered: 12-22-2003
Mon, 06-25-2007 - 11:37pm

Lots of hugs and positive thoughts headed your way.

Amy

Meez 3D avatar avatars games

iVillage Member
Registered: 06-13-2007
Mon, 06-25-2007 - 11:37pm

(((Lainie!)))

Oh girl I know how ya feel with the whole dx thing! Dakota goes to Cinci tomorrow morning and I'm 'bout to have a meltdown of my own wondering what all they will say! Hugs and love to you and Chris! I hope you get the answers you so desperately seek. I know your frustration at watching your child struggle and not being able to help him cuz you don't know what the problem is yourself. Hang in there honey. We are all pullin' for you and Chris and will pray for both of you!

Hugs and Love to you both!

Jen

iVillage Member
Registered: 04-11-2007
Mon, 06-25-2007 - 11:40pm
I am wrapping you both in white light right now. I will on Wed. too. I know how frustrating this process is. I actually fought more with the school than the docs, but there is always somebody that can't seem to understand that we know our children better than anybody else, and how dare they doubt us!
Carey
iVillage Member
Registered: 11-28-2006
Mon, 06-25-2007 - 11:47pm

WOW! See how cool you guys are! I walk away for a little bit to gather and put on a load of laundry, and voila! 4 posts!

I have been so paranoid about all of this, wanting to be so thorough this time that I have been journaling for quite awhile about his behaviors. When I first went to the regional center I had about 7 pages of red flags. Now I am armed with 17, and am thinking of sitting down with the dsm and pick out examples of how he would fit on the spectrum you know?

Isn't this horrible, I feel like I have munchuesens syndrome or something LOLOLOLOL. (No don't worry I don't lol)

Thanks guys, already I am feeling better :)

Lainie

iVillage Member
Registered: 03-26-2003
Tue, 06-26-2007 - 12:18am

Fortunately for Lainie and unfortunately for you Molly, SDRC is NOTORIOUS for denying services for children with ASD's unless they are severely and very obviously full spectrum kanners autism. You almost always have to appeal if the child has good verbal skills. We had to appeal with Cait but not Mike, but Mike's behaviors were very extreme when we were having him evaled. I have heard other RC's are better about this and my understanding is there are some in Northern Cali which are pretty good.

It is a common gripe down here. In particular I know adults with ASD who are trying to gain services to help them with job skills, etc and it is nearly impossible for them to qualify.

Sending positive prayers and thoughts your way lainie.

Renee

Photobucket
iVillage Member
Registered: 05-28-2004
Tue, 06-26-2007 - 5:24am

{{{{Lainie}}}}

{{{{Chris}}}}

I have little time; 3 y.o. is already waking up and asking Daddy where his moon sand and his mommy are. (In that order, by the way.)

But I wanted to throw in my positive thoughts. Sorry it's been such a rough road. I've been there too, and it's frustrating and expensive.

Thank goodness for the psychiatrist!

Love, Sidney

APOV on Autism
iVillage Member
Registered: 06-25-2003
Tue, 06-26-2007 - 9:13am

((((((((Lainie)))))))))


I'm running out to aa Dr's appt (for me) but I wanted to send P&PT your way.


-Paula

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 08-10-2006
Tue, 06-26-2007 - 11:54am

{{{{{{Lainie}}}}}


Sending lots of hugs, thoughts and prayers your way.

< < Photobucket

Christine

iVillage Member
Registered: 11-28-2006
Tue, 06-26-2007 - 9:36pm

Bumping to the top so it doesn't go to second page....

Thanks for all of the great comments, prayer, ect. I'm still a nervous wreck, but I'm okay lol.

Considering a nice cold tall one about now lol

Pages